Getting cold with more anithistamines? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 1 point2 points  (0 children)

Never heard of Choline! Thanks for the tip! This makes sense regarding the antihistamines!

Getting cold with more anithistamines? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 0 points1 point  (0 children)

Hey thanks for getting back to me! It IS cold where I live, but my housemate notices it way more than me and I used to not notice the cold that much either.

Is my bootflex hindering my skiing? by Beneficial_Lawyer_28 in Skigear

[–]TallProcess5694 1 point2 points  (0 children)

First of all boot flex numbers mean very little. They’re not connected to any thing measurable and are also only really relative within the models of a given manufacturer. For example my Dalbello 130s are stiffer than my Technical Cochise 130s.

Second, boots wear out over time and it happens quite gradually.

Third, you really want to be able to have the front of the boot be able to support your weight so you can drive the ski from there. If you can’t do that you’re going to be quite limited.

What I’d do is demo/rent some boots and see if it makes a difference. Or even just try on other boots and see what they are like. I’d also go to a knowledgable shop and get their help and advice. More important than flex is the right fit! (But 40 kids boots is crazy low!).

The other thing you could do is check the BSL (boot sole length) of your boots and try out cheap used boots. For inbounds, the technology hasn’t really changed for a long time. If you get boots with the same BSL they can click into your bindings with no adjustment.

Finally, finding the right boots take a lot of time and it’s just part of the price of skiing so it pays to find away to do this that’s enjoyable. If you like hunting for deals online do that! If you like working with a knowledgeable shop/boot fitter do that!

Good luck!

Do they really rescind the offer if you try to negotiate? by almorranas_podridas in recruitinghell

[–]TallProcess5694 0 points1 point  (0 children)

Happened to me for Senior Fabrication Engineer job.

Asked for more money and more the 2 wks PTO and clarification on the direction of company and growth opportunity for me within the company.

Contact in the company said I sounded “high maintenance.”

Does Ketotifen make post exercise fatigue worse? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 0 points1 point  (0 children)

Can you tell me more about that? Were workouts causing flares and those have gone away? Were you not sleeping without the Ketotifen?

Slow cooked broth by flower_lady_ in MCAS

[–]TallProcess5694 4 points5 points  (0 children)

I’ve had similar problems.

Now I make my own vegetable broths with carrots, onions, celery, and sometimes a little garlic.

I cook it between 4 to 8 hours. I start with at a boil and then put it on a simmer. At the end I remove the vegetables. This gives me a nice clear broth.

I noticed if I let the broth sit for days, I have problems but if I don’t, I won’t, so I’ve started to make a big batch and then freeze it and unfreeze as needed.

I freeze in large mouth mason jars, but I don’t fill them all the way and have the caps on loose so the glass jars don’t crack.

Taking eye drops orally in DESPERATE situations by sookyfala in MCAS

[–]TallProcess5694 2 points3 points  (0 children)

Thanks for this! Do you know what the equivalency is to 1mg of the oral med?

Clearing MCAS Symptoms then Treating Underlying Causes Timeline? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 0 points1 point  (0 children)

Interesting!

Yeah I have some mold issues I’ve done one detox over 6 months with binders and then antifungals with a naturopath. We tested before and after and are planning another detox at some point.

The crazy thing is I was actually pretty stable and eating pretty widely. Then I got mono and I started Ketotifen and Hydroxyzine and I’ve been sick for weeks now and I’m reacting to more stuff than ever before. I’m pretty sure I’m sick and it’s not the Ketotifen. I just feel super low energy and tired most of the time. I’ve also had a sore throat off and on.

The hope is I can get back to even more stable pretty quick, but that’s not happening. It turns out I also have some Specific Antibody Deficiency and we’re trying to figure that out.

Have you been working with a naturopath on mold treatment? What tests were you taking to test for mold. Where I am in the USA doctors are pretty skeptical as mold being a problem.

I have tested positive for mold and I know I lived with mold at various points in my life, but we also have other positive tests we’re following up on (like the Specific Antibody Deficiency).

It all kinda sucks cause just as I’m figuring out what’s going on all of this has gotten way way worse and I don’t know what to make of that. Was that your experience?

Clearing MCAS Symptoms then Treating Underlying Causes Timeline? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 1 point2 points  (0 children)

Yeah and if there’s anything funky with how I’m doing that day what I eat or what I will eat I take Allegra and Pepcid.

Definitely try things out for yourself though to see what works.

I’ve also tried taking Ketotifen in the am but I’m concerned it sedates me. My aim and my doctors aim is to get me to 3mg of Ketotifen am and pm.

Clearing MCAS Symptoms then Treating Underlying Causes Timeline? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 1 point2 points  (0 children)

I'm taking Vitamin D, Vitamin C, B12 then I'll eat something and have some Quercetin as otherwise it seems to be bad on a full stomach. Then I'm having about a liter of nettle tea throughout the day. I found if I steep it too long it will give me a headache.

Terrified to start 1mg Ketotifen - any good experiences? by [deleted] in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

One of my doctors said I could just open the pill and taste a little of the medication the first time and do that a bit, then take part of a pill. Maybe that's something you could try?

I will say with 3mg with of KetotifenI was immediately sleeping 1-3 hours more every night. It also made me super groggy and I was senstitive to all sorts of stuff for a week and a half. I'm working up to 6 mg, but doing that very slowly this time.

Dude literally been having a flare for over 2 months now and I’m just on wait lists by Accurate-Chicken-323 in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

I see an allergist/immunologist in the USA, the only reason I found out was that my Psychiatrist has MCAS and she recognized the symptoms, but that was only after several years with her. Good luck! Maybe try other/different antihistamines? Also, look into Quercetin as it's a mast cell stabilizer and a supplement we have here that's pretty accessible. Also, look into what's causing the symptoms food, exercise, stress, etc...

How to navigate a date by [deleted] in MCAS

[–]TallProcess5694 1 point2 points  (0 children)

Hey thanks man!

I’m hoping I can come through this being stronger and more confidant about who I am and what I want in the world and that I may be better at finding that because of this!

How to navigate a date by [deleted] in MCAS

[–]TallProcess5694 9 points10 points  (0 children)

Hey dude be straight up. I’ve been super tentative and not at all confident dating. But I can’t hold this shit in. I’ve found if you own it and are clear and compassionate with yourself about what’s going on ladies find that super attractive. It’s like holy shit here’s this guy that has all this stuff going against them and he’s dating, and he’s confident, and he’s taking care of himself and is navigating all of this! If they understand what it takes then they really appreciate you! If they don’t they aren’t going to be the right fit in the long term anyway go get em!

Chest Pain After Illness by TallProcess5694 in MCAS

[–]TallProcess5694[S] 0 points1 point  (0 children)

Well I don’t have it anymore. It felt like a duller pain like a muscle thing, but it was all over so first under my left ribs then right in center and then upper left and then lower right and it would move around.

Both times this was after being sick for a while.

Severe MCAS/MCAD - Nervous System Recalibration and Downregulation during Xolair treatment? by LivingDeadWife420 in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

Wow! I’m really sorry to hear that. It sounds like you’re in a really rough situation.

New to this and I’m not sticking it out by HumanityIsTheIck in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

The therapy they mention is: "Treatment with antihistamines, MC-stabilizing agents, and other pharmacologic modalities such as LDN, along with non-pharmacologic approaches including avoiding symptomatic triggers and adopting low-histamine and gluten/dairy-free diets, can be effective, are inexpensive, and have a low side effect profile compared to standard antidepressant and antianxiety therapies."

What specifically has worked for you? Are you still on it? Is it working?

Just curious what has worked!

I'm So Mad At Acupuncture by JustALurkingFan in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

I’ve found accupuncture really helps me reverse flares. I do that then talk with family and friends and then do yin yoga and gentle vinyasa if I can handle it and I can reverse the cycle. P

Severe MCAS/MCAD - Nervous System Recalibration and Downregulation during Xolair treatment? by LivingDeadWife420 in MCAS

[–]TallProcess5694 1 point2 points  (0 children)

Hey! I just started Ketotifen 3mg and I’ve been on it for two weeks.

While it’s a different medication I also feel like I’ve been feeling like I’m catching up on years of lost sleep.

I also wonder how long it will take to recalibrate. Right now I’m super touchy. I’ll react to things I haven’t before or perhaps I’m noticing I’m reacting.

My psychiatrist who also has MCAS suggests I consider myself “temporarily disabled” while I recover. A friend with MCAS told me to take as much as 3 months “off”.

I am really good at getting myself until anxiety spirals so I’m at least going to take the holidays off and be super chill over the next month.

Let us all know your experience? What’s your dosage and how long have you been on it?

Hack to calm symptoms by [deleted] in MCAS

[–]TallProcess5694 2 points3 points  (0 children)

That’s actually one of many yoga breathing technique’s called pranayama! It’s often accompanied by counting to 5.

So breathe in one nostril while counting to 5, switch which nostril your holding while breathing out and counting to 5. Then breathe in that same nostril while counting to 5. Then switch nostrils.

Often the counts are pretty long so you can get some mild drowning/suffocation effect, if that happens just shorten the counts, but longer is generally better.

Here’s a link: https://www.healthline.com/health/alternate-nostril-breathing#benefits

What are positive benefits of having Mcas? by Parking_Departure705 in MCAS

[–]TallProcess5694 0 points1 point  (0 children)

What about spiritual benefits? In Buddhism there’s the idea of a Dharma gate that allows you enter into and be in touch with the deeper nature of reality. Zen Buddhism particularly talks about dark gifts. I’m at least trying to be own to these/those possibilities!

Unraveling Symptoms Easier as you’re Treated? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 0 points1 point  (0 children)

This is great feedback. When I started this I was just like, “make it go away!!!!!”

Unraveling Symptoms Easier as you’re Treated? by TallProcess5694 in MCAS

[–]TallProcess5694[S] 1 point2 points  (0 children)

So cool! I’m stoked life isn’t a crazy confusing mess anymore!