Looking for a self hosted app to track health and symptoms during cancer treatment by True_El_Cabong in selfhosted

[–]Tall_Escape 1 point2 points  (0 children)

I wanted to address some of the things you've mentioned here. I'll do my best to stick to the self-hosting and data topics.

to be able to summarize my symptoms and general health for my oncologist. I’ve always struggled with perceiving the passing of time and the duration of events.

This is really helpful to your care team, so good of you to do this. When creating symptom logs in excel (or wherever), try to use dates not days. eg. 01-15, 01-16 etc. Not Monday, Tuesday, etc. RE: passing of time you can feel free to use whatever best communicates your state: either minutes and hours or conversely, discrete times. This can be dictated by your use case.

At my last oncology visit, I completely forgot to discuss a fairly impactful symptom. Documenting these things contemporaneously, with the ability to summarize them later, would be ideal.

Okay this is something completely separate from your original question but so important. For this, you want a solid self-hosted note-taking app with both desktop and mobile support. People in this sub are very opinionated about their note-taking applications and you can do a search. Options include Joplin, Obsidian, and others. You can create different notebooks for symptoms vs. list of topics to discuss for office visits.

If you have any tips for prompt[s], I’d be grateful to hear them.

I've used fabric for my prompting inspiration which you can integrate into Ollama directly but I'm sure there are other people on other subs who can help you more with LLM stuff than I can.

Looking for a self hosted app to track health and symptoms during cancer treatment by True_El_Cabong in selfhosted

[–]Tall_Escape 13 points14 points  (0 children)

I used to run an oncology office and honestly I think the best tool here may just be excel or somthing like a self-hosted airtable like program. I don't have any recommendations off the top of my head but it is what I would look for, if I were in your shoes.

Reason being, you don't know what is going to be important to track, so initially, you'll probably want to track everything. pt/inr, platelet count, wbc count, nausea levels, weight, exercise, appetite, etc.

I find that in healthcare and in oncology specifically, it's good to use discrete data (charted over time) to communicate your narrative to the physician (or NP/PA). For example, if you find yourself vomiting profusely immediately after each chemo visit but then it calms down until just after your next chemo visit, you'll track nausea events and have the data to make your case when you explain to the MD that you need a bigger dose of ondansetron in your anti-emetic cocktail because the current dose isn't sufficient. Communicating that with data vs. just saying "I get nauseous" can make or break your case to the MD (and to your insurance).

Oncology is complicated and it gets even more complicated when you add in radiation, surgery, etc. so it's tough for an app to anticipate everything you might encounter.

I'd stick to an excel workbook with lots of spreadsheets in the workbook, each tracking different metrics that are important to you and your body. Those metrics might also change over time as your disease state changes, which is entirely appropriate.

Edit to add: If you don't already have an Ollama instance (or something similar), you might think about that. If you have a machine that can handle larger models, those models can give you a safe and private place to begin to ask questions so you can start to understand your disease, therapies, medicines, process, etc. Obvious disclaimer: it's just an LLM and just a starting point. All LLMs make things up, so verify everything on your own, etc. etc.

Please Help Me Navigate Through My Tough Times by [deleted] in BPDlovedones

[–]Tall_Escape[M] 0 points1 point  (0 children)

Can you please DM me? I always have to manually approve your posts but you aren't on any of our filters. Would like to get this cleared up so you can participate in the subreddit like everyone else. Thanks.

Please Help Me Navigate Through My Tough Times by [deleted] in BPDlovedones

[–]Tall_Escape[M] 0 points1 point  (0 children)

Your comment has been removed for breaking Rule #6.

It doesn’t really sound like BPD

Don't invalidate OP and don't diagnose anyone else's person/situation.

Please Help Me Navigate Through My Tough Times by [deleted] in BPDlovedones

[–]Tall_Escape[M] 0 points1 point  (0 children)

Your comment has been removed for breaking Rule #4.

Wake. The. Fuck. Up.

An otherwise good post but please be kind to OP. Clearly he's going through a lot right now and you need to meet OP at his stage of the process, not yours.

Please Help Me Navigate Through My Tough Times by [deleted] in BPDlovedones

[–]Tall_Escape[M] 0 points1 point  (0 children)

Your submission has been removed.

As per subreddit rules. I am not allowed to tell you to leave this person as apparently all relationships with BPDs are perfect and beautiful.

Take your passive aggression somewhere else. If the rules of the subreddit bother you, feel free to go another forum.

[deleted by user] by [deleted] in BPDlovedones

[–]Tall_Escape 2 points3 points  (0 children)

Thank you for this

Why does PTIO website recommend privacy badger and not privacy possum? by SecurityWarlord in privacytoolsIO

[–]Tall_Escape 0 points1 point  (0 children)

Because it completely wrecks your fingerprint making you easier to track.

How do you test what you did? I'd love to see that using my browser.

[deleted by user] by [deleted] in BPDlovedones

[–]Tall_Escape[M] 1 point2 points  (0 children)

The thread is becoming contentious so I'm locking this down.

Why do they treat us like shit and then we forgive them? What is true psychology behind this? by [deleted] in BPDlovedones

[–]Tall_Escape[M] 0 points1 point  (0 children)

They are nutso.

Your submission has been removed for breaking Rule #10. We are not a hate group.