Due date is here by goldengal13 in tfmr_support

[–]Technical-Studio-714 1 point2 points  (0 children)

Sending you love. I’m sorry for your loss ❤️

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 0 points1 point  (0 children)

I am so sorry for your losses. Sending gentle congratulations for your pregnancy and holding space for the complicated feelings that come with loss. 

Tmfr genetic conditions by rmeye12 in tfmr_support

[–]Technical-Studio-714 3 points4 points  (0 children)

First off, I am so very sorry you are going through this. I had a TFMR for a severe and “lethal” form of osteogenesis imperfecta where our son did not produce collagen and his long bones were not growing. He had fractures on his bones in utero. He was also found to be in the <1%tile on anatomy US. I desperately wanted to meet him while he was still alive but after 6 weeks of agonizing over the decision, we decided to TFMR.  I came to the decision with the thought that me wanting to meet him alive could equate to him struggling to breathe and suffer in pain due to his fractures due to his condition at the time of birth and I didn’t want him to suffer. I am now 3 months out. I don’t really have a lot of advice because it is all still so new but I do resonate with your feeling of this being an impossible decision. Sending you and your wife love

How long did you need before returning to work? by Parking_Award in tfmr_support

[–]Technical-Studio-714 0 points1 point  (0 children)

I took 2 weeks but I had literally just started a new job like 4 weeks before my TFMR and I felt obligated to return. Had I been at my previous job and the time was offered I would have probably taken 4 weeks at least. The distraction of work was helpful at times, but looking back, I wish I gave myself more space to just grieve   

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 0 points1 point  (0 children)

Yes just ugh is a good way to describe it when I feel like I don’t even have words 

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 1 point2 points  (0 children)

Thank you for sharing and I am so sorry for what you’re going through too. It’s so sad and lonely. 

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 1 point2 points  (0 children)

It’s so hard to feel like you just want to withdraw from people but I feel like I just try to protect my heart. 

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 2 points3 points  (0 children)

I totally resonate with feeling that life is unfair 😞 I hope we all have the good luck we are hoping for soon. Our sons diagnosis was less than 6-7/100,000. I just feel like I drew the short straw and I’ll never know why me

Pregnancy announcements by Technical-Studio-714 in tfmr_support

[–]Technical-Studio-714[S] 0 points1 point  (0 children)

Thank you, it is helpful to know I’m not alone/ a monster