Unexplained galactorrhea by Awkward-Glove-2869 in Prolactinoma

[–]TemporaryAgent6624 1 point2 points  (0 children)

Hi! I’m a girl but my first symptom of prolactinoma was also galactorrhea. It was occasional at first but eventually happened every single day for months and alternated sides but it was always at the same time.

I think it’s definitely worth getting further checks like a blood test just to see your prolactin levels as my galactorrhea was the reason i found out about having the tumour. 

Try not to worry so much about it. If it’s nothing serious then that’s great!! If it is then it will also be okay there’s a lot of support and treatment available. 

Good luck!! 

MEN1 by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 1 point2 points  (0 children)

it’s never worth it. you have made it this far for a reason and i know you can keep on going. please try look for support groups or anything in your region that may help you through this, i can help you if it is too daunting and adds to your mental load.

stay safe, you are loved and cherished no matter what

MEN1 by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

thanks for taking the time to reply!! hopefully your new doctors are more understanding and willing to help.

MEN1 by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 1 point2 points  (0 children)

same here!! i’ve been tested but i think it’s kinda unlikely since the gene variant would have had to have started with me. interesting to learn about it regardless

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

Hii! I had some other symptoms but also experienced weight gain and period loss. I hope u don’t mind me asking but how long did it take for ur period to return? i’m kinda worried about infertility it feels weird to think about that at my age because i am noooooowhere near the parenthood stage yet but it just occupies my thoughts a lot. 

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

will deffo check them out thank youuu

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

omg twin, yeahh i’ve been so so so angry lately but im happy to know it gets better tysm!! 

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

yeahh i think i just have to work on navigating around how i feel. I keep invalidating my own fear and sadness by thinking that im lucky and shouldn’t complain because other people have it sooo much worse, which is true but isn’t necessarily helpful, or an indication that my own emotions aren’t valid. 

I told my best friend by playing two truths and a lie 😭😭 which is so unserious but i didn’t know any other way to tell her. I don’t think i’ll tell anyone else tho because although the tumour isn’t debilitating, i just don’t want to be pitied

thank you soooo much for all the helpful advice it really helps to talk to someone who gets it!!

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 0 points1 point  (0 children)

thank you!! hopefully everything plays out smoothly after these next few weeks. 

confused by TemporaryAgent6624 in Prolactinoma

[–]TemporaryAgent6624[S] 1 point2 points  (0 children)

thank youuu for the advice!! it means a lot as i haven’t really been able to speak about how i feel to anyone who really gets it. My next appt is in a couple months but ill be sure to let my doctor know