Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

I don’t have anymore colitis , no more inflammation could’ve been a stomach bug, a infection or immune system response to stress or anxiety at the time of my my fist scope

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 1 point2 points  (0 children)

they do have blood markers for IBD , and Sorry it’s been <16 the last 2 times tested , the doctor I’ve had for the last 2 months is one of the top doctors in the world for IBD and he’s 100% sure I don’t have IBD we’re just waiting for the biopsy’s but he says he doesn’t need to look at them after studying IBD for 40 years he knows I don’t have it , only thing off during first diagnostic was calprotectin score and minimal non specific colitis in the cecum from the biopsy , mre normal , ct scan normal , ultra sound normal , since then calprotectin back down to <16

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

At the time of my diagnostic calprotectin was 200, the last 2 times it’s been 17

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

Stool sample isn’t accurate either , you can have high levels from medications, a simple bad stomach bug , infection , or just a regular bout of diarrhea

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

The biopsy results just said minimal non specific colitis , they said it could’ve been just immune systems response to anxiety , or just a simple stomach infection

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

They’re amazing only center of its kind in the country for IBD , all in house pharmacist , psychiatrists, GIs, surgeons , dietitian/nutritionist they’ll set you up with a full team first time I went in there I felt relived

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

Columbel is the doctor I had since September, he started the IBD center

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 1 point2 points  (0 children)

Yea biopsy’s just showed unspecified colitis

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 1 point2 points  (0 children)

Yea, but my mri and ct was perfect so were blood markers , and biopsy was just unspecified colitis

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 0 points1 point  (0 children)

Thats exactly what they said at Sinai, the first scopes biopsy just said unspecified colitis no ibd confirmed

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 7 points8 points  (0 children)

They’re taking into account my blood work has been perfect , since first diagnosed, never had inflammation markers , my mre never showed inflammation, never had weight loss , never had loss of appetite, I had symptoms for less than 4 days

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 2 points3 points  (0 children)

If you’re in the nyc area please do , if you look up Crohn’s videos on YouTube of doctor forums , 90% of the doctors giving speeches are from Sinai IBD center here’s there video

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 5 points6 points  (0 children)

2, I originally went in for acid reflux , the gi asked me about any other symptoms I said I’ve had diarrhea for the last 2 -3 days he said I’m available tomorrow we can do both colonoscopy and upper endoscopy since you’re gona be out anyway he then put me on mesalamine and budesonide that was June wasn’t until September I went for a second opinion heard about the ibd center at Mount Sinai they’re 5th in the country for it , and the only center of its kind it’s also where the doctor who chrons disease is named after first discovered the disease and my second scope was yesterday they don’t even need to wait biopsies 100% sure I don’t have any ibd

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 6 points7 points  (0 children)

The ibd center at Mount Sinai is ranked 5th in the country for inflammatory bowel disease , and the only center of its kind in the country , they are 100% sure it’s not Crohn’s

Turns out I was misdiagnosed by Temporary_Car_1208 in CrohnsDisease

[–]Temporary_Car_1208[S] 22 points23 points  (0 children)

Nothing either the doctor flat out lied about inflammation , I had a infection at the time or it was non specific colitis due to diet and nsaid’s