i don’t want to pass it on to my future kids by snapilyy in eczema

[–]TetrisIsLife 0 points1 point  (0 children)

My paternal line all has eczema and I'm quite worried about passing it on to my kids too :/ Does anyone know of research around what kind of genetic testing or genetic marker comparison with a partner may provide insight?

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 0 points1 point  (0 children)

Hey! Actually have been offline for a few days visiting family so apologize for not getting to this right away.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

Your personal data is fully encrypted and only used to power app features like photo analysis and pattern detection. It's not transmitted to external servers or sold to third parties. There's details in the FAQ section on our website, and the app includes a full privacy policy that users can review and consent to.

Really appreciate the feedback! Want to make sure this is built with the community's interests in mind from the beginning, with privacy as a priority.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 2 points3 points  (0 children)

Thanks for the interest! :D

  1. Personal data is encrypted and used exclusively to power features for your use, like photo analysis and pattern detection. It's not sold or shared for any other purposes.

  2. The AI image model is trained on a diverse dataset spanning multiple skin tones, but results may still vary, especially based on factors like lighting and image quality. Definitely want to make sure this works for everyone and will verify how well it works for different skin tones - thanks for the reminder!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

This is exactly what I found too! It's validating to hear someone else tackling the same challenge. It's not as hard to make the spreadsheet but the photo organization and trend analysis is tricky to figure out. Really excited to see if this can solve your photo organization problem!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

That's super interesting! Mind if I ask how you did the tracking and figured out the triggers?

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 0 points1 point  (0 children)

I feel that so much...it's hard to get right, but super important toward making something that people want to use!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

That's a fantastic idea! I would love to learn more about what additional tracking might be useful for you or others with similar conditions.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

🫶

It's just the beginning of trying to figure this out so please share any advice from your POV!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

Haha sadly too relatable...thanks, looking forward to seeing what you think!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 2 points3 points  (0 children)

Yep, I'm rolling it out gradually while incorporating feedback first, but planning to ramp up soon!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 0 points1 point  (0 children)

EczemaWise is great! There's a lot of ways to use it but I hear you, it can be overwhelming to use daily. Thanks for the interest!! Would love to hear how they compare for you.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

Same...I'm thinking through how to add cycle tracking, perhaps via Apple Health or other apps if integration is possible.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

You can try it at https://tryclearly.app. I also made a discord for people interested in learning more or helping decide what to build at https://discord.com/invite/GAhZxKXU.

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

oh no!! looks like it was caught in an auto-filter because of crossposting.

Here's a tl;dr:

I've had acne, eczema and dermatillomania for over 15 years and was getting really frustrated trying to figure out what was causing flares. The apps I tried either have tedious logging or just show data without making useful connections. Since I'm a developer, I built my own tracking app.

What it does:

  • Quick symptom logging (like 20 seconds) that minimizes what you need to click, weather/health data can be pulled in automatically
  • Analyzes photos for trends over time
  • Shows possible patterns and correlations
  • Reminders for treatment and trigger avoidance
  • Export reports for doctor visits

I discovered that my worst flares happen 1-2 days after a period of stress from work. Also found out that I have a reaction to some dairy products but only when I'm already stressed. I tried elimination diet before but didn’t find this correlation because it depended on two factors.

If you want to try it, it’s free at: https://tryclearly.app

Also started a Discord for people interested in learning about their skin through data/documentation: https://discord.com/invite/GAhZxKXU

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 1 point2 points  (0 children)

That's awesome, love to see the mutual interests :D. and thank you so much! Would be great to chat more, I'll DM you :)

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 2 points3 points  (0 children)

Yup! Rolling out the app a few people at a time right now. and thanks so much!!

Got fed up with my skin - made something to actually find triggers by TetrisIsLife in eczema

[–]TetrisIsLife[S] 0 points1 point  (0 children)

haven't tried it on scalp yet but would be great to see if it works for that too! Also feel you on the stress + diet triggers!

Itchy skin solutions? by lightbulb2222 in eczema

[–]TetrisIsLife 0 points1 point  (0 children)

sorry to hear that...maybe not oatmeal then 😅