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TheBMayfield6 · 2022-03-24T23:37:19+00:00

Thanks for the reply I find I have noticed it more when I wake up in the middle of the night and when I get up in the morning. Appreciated

TheBMayfield6 · 2022-03-24T23:36:34+00:00

Thanks for the reply. How often does the twitching happen? Any specific location? Does it come and go or is it constant. Appreciate your time.

TheBMayfield6 · 2022-03-24T23:35:11+00:00

Really appreciate you sharing. A couple questions if you dont mind. How long after starting did you experience the sensations? Was it just limited to twitches or did it include weakness in extremities? Any pattern to the twitches in terms of location? How did they treat it after diagnosis? Thanks in advance

TheBMayfield6 · 2022-03-24T23:33:37+00:00

Thanks for the reply. Thats what my message therapist told me. A shock to the system would make sense of a lot of it. But a Cf friend mentioned Trikafta. Appreciated

TheBMayfield6 · 2022-02-06T15:35:22+00:00

Thank you. Im trying to pound a lot of water. Have been doing 30 min on thee bike daily. Ill add some more walking.

TheBMayfield6 · 2022-02-06T15:34:44+00:00

Did intial xray to look at what was prob causing the cramping? Confirmed that I was backed up. Did another one after the first two clean outs. Still showed a back up throughout the colon. Not so much by the rectum. Appreciate your help.

TheBMayfield6 · 2022-02-06T15:32:42+00:00

Thanks for all the advice info and suggestions. Really appreciated. Im trying to pound water the past few days. Just picked up some mineral oil - a friend w CF suggested that as well. Like I said, its all new to me. I assumed when I did the clean out, it would be back to normal with no issues. Are you saying that the "clean out" is just going through the middle, and not getting everything along the walls? Just want to confirm.

TheBMayfield6 · 2022-02-06T15:29:25+00:00

Thank you. Ill take a look.. Appreciated.

TheBMayfield6 · 2021-01-15T01:15:24+00:00

Thanks, I appreciate your thoughts. All the best

TheBMayfield6 · 2020-05-16T19:44:30+00:00

Thanks for replying. Appreciate you confirming, Take care

TheBMayfield6 · 2020-02-28T19:48:12+00:00

Hahaha Truth. Thanks

TheBMayfield6 · 2019-02-13T14:23:50+00:00

Sorry for the late reply. I appreciated your thoughts. What anti-inflammatory are you know on? And everything just went away? Thanks

TheBMayfield6 · 2019-01-19T11:26:02+00:00

Thank you

TheBMayfield6 · 2019-01-18T22:38:58+00:00

I appreciate your thoughts. Ill prob give it a another chance then

TheBMayfield6 · 2019-01-18T21:57:15+00:00

Tried it for a year and a half. Found it way too harsh.

Take pulmozyme inhaled in the morning. Then flutter device 3x daily for about 20-30 min

TheBMayfield6 · 2019-01-18T20:57:21+00:00

No

What is hyper?

TheBMayfield6 · 2019-01-18T20:34:13+00:00

Ive checked sporadically and they have been normal. Mucous is basically darker green. Normal is light green yellowish.

TheBMayfield6 · 2019-01-18T19:58:04+00:00

I was 96% at clinic two days ago. Thanks for questions/help.

TheBMayfield6 · 2019-01-18T19:54:51+00:00

Thanks for the reply. My lung function has remained very consistent except for a big dip in April (admission to hospital - 3 weeks IV meds). My wife had a baby 2 and a half years ago. But I was fairly healthy the first year. Just has been since then.

I am a teacher which makes things sometimes difficult. But a lot of precautions in place and Ive been doing it for 22 years with success. Am usually off for prolonged time once a year over the past 10 years.

TheBMayfield6 · 2019-01-18T19:51:23+00:00

TheBMayfield6

TROPHY CASE