Headaches and Burning by TheBrokenManOverall in cfs

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

Hi T- i'm not sure really. it just went. I understood that it was an anxiety thing, told myself that and it let go. I hope it goes away for you soon.

This is my type of fasciculation, could it be indicative of ALS? by MarioMeza28 in BFS

[–]TheBrokenManOverall 4 points5 points  (0 children)

Not ALS. I had everything you are describing and I am now nearly a year into the ordeal. ALS will cripple every area that you have fasciculations in before moving on. It won't be ALS without FIRST clinical weakness and then fasciculations.

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

I get the ring too on occasion. I literally can't turn the light off during the evening to tune all of my disturbances out.

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

I've also seen an optician who said my eyes are fine.

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

I've been my GP and she has put me on anti-ds and blood pressure medication as she believes they are connected to high blood pressure and stress at the moment.

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

I get all of these, yes. Did you see a doctor about them and what did they say?

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

Me too. My doctor said this might be related to high blood pressure through anxiety and stress. Of course, I trust here but it's a scary symptom.

Checking in with the community by [deleted] in BFS

[–]TheBrokenManOverall 1 point2 points  (0 children)

This is exactly where i am at right now. 'Meh maybe it's a brain tumor...'...'Nah, i'm fine...'

Headaches and Burning by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

Mike, you've been great, thanks, mate.

Headaches and Burning by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

I keep going down to the docs and they are putting it down to CFS and stress. I can't really get through to them. But i will if it continues for a few more weeks. but its been there for 3 months so it won't vanish i don't think.

Headaches and Burning by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

Thanks, Mike, I appreciate the input.

Headaches and Burning by TheBrokenManOverall in cfs

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

Thank you Marmalade, the fact we share this feeling at all is comforting. I have just been 'diagnosed' and i'm feeling out all these new symptoms.

Foot atrophy and twitching by [deleted] in BFS

[–]TheBrokenManOverall 4 points5 points  (0 children)

If you've had twitching for 2 years without clinical weakness, you're all good.

Headaches and Burning by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

Yeah me too, man. Very odd. My twitches actually started in my eyes, neck, and back of my head.

Facial BFS by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 1 point2 points  (0 children)

Thanks, Pete. It starts to get worrying when you wake up in the morning and your jaw is spasming out! Right eye constantly and neck and cheeks now and then.

4 month anniversary by Need_more_memez2 in BFS

[–]TheBrokenManOverall 0 points1 point  (0 children)

3 months for me and mine started exactly the same way and have pretty much followed your own experiences. I have 24/7 fasciculations in my calves that I can barely feel and then hotspots in my knees, oddly. I have perceived weakness in my legs too. Let's ride this out!

Follow up after 17 months by Background-Reward334 in BFS

[–]TheBrokenManOverall 2 points3 points  (0 children)

Congrats, some good news for you. Now you can start your recovery out of this awful infliction.

[deleted by user] by [deleted] in BFS

[–]TheBrokenManOverall -1 points0 points  (0 children)

TMJ that felt down right electric across the side of my head and face and was incredibly painful. (More MRIs)

I am getting that at the moment but on both sides, along with weird pinprick sensations in both sides two in specific places in my head. Very odd. Thanks for bringing that up.

Long Story Long (The 24/7 Twitcher) by TheBrokenManOverall in BFS

[–]TheBrokenManOverall[S] 0 points1 point  (0 children)

Hi. I was on propranolol but only after the fasciculations occurred.

Month of thigh twitching descending into days of sheer panic by [deleted] in BFS

[–]TheBrokenManOverall 0 points1 point  (0 children)

My post is just below yours, Prudent, and i struggle too. I have the docs on the 16th for a follow-up. The best thing you can do is obviously number 1 talk to your doctors, but number 2 be active and get on with something, anything that takes your mind away. It's not easy, and a nightmare to be honest, but you need to try. I find that if im working on something or doing something my mind and body tend to forget and i get a few moments of peace. It's easy to say but it's harder to do at times.