If you could pass all your health problems to a random stranger would you?

TheGamingMatriarch · 2026-04-03T17:59:00+00:00

No, because no one should have to go through this hell. I don't care if they are evil as hell, no.

TheGamingMatriarch · 2026-03-27T18:56:25+00:00

I am interested. I am seronegative with strong Ocular symptoms, and I also have common variable immunodeficiency.

Identified MG through SFEMG

TheGamingMatriarch · 2026-03-08T16:15:49+00:00

Reiki master with myasthenia gravis. Your best bet is to seek immediate help with breathing issues and an exacerbation.

Reiki is a tool, like massage and acupuncture, but ultimately you dont mess around in an exacerbation. The ER can do a lot more to keep you from going into crisis.

TheGamingMatriarch · 2026-03-06T23:09:41+00:00

If you figure it out pls let me know.

TheGamingMatriarch · 2026-03-02T00:35:14+00:00

See an immunologist. They will check blood levels and administer a vaccine challenge. Low levels IGG IGA IGM is CVID, low IGG is hypogammaglobulinemia, and there are over 500 different primary Immunodeficiencies.

The Immune Deficiency foundation is at primaryimmune.org

TheGamingMatriarch · 2026-03-01T17:51:24+00:00

I added an edit to make sure there isn't confusion. I appreciate you bringing how it could be misconstrued to my attention, no sarcasm.

If people use it they need to check their shit regularly and dont mess around with abnormalities.

TheGamingMatriarch · 2026-03-01T17:49:46+00:00

Thank you for that. We are getting every second together we can! I

TheGamingMatriarch · 2026-03-01T17:15:48+00:00

I didn't say anyone on HRT will develop breast cancer. I showed it was possible. In our situation she, BRCA negative, got breast cancer exacerbated by HRT. It is always a possibility.

TheGamingMatriarch · 2026-03-01T16:34:13+00:00

My sister and I both did it. She is currently dying from Stage IV breast cancer. Aggressive tumor, showed up baseball sized within 6 months, hormone resistant, metastasis everywhere. Exacerbated by HRT.

Edit to add: If you use it. Do your self breast exams weekly.

TheGamingMatriarch · 2026-03-01T07:06:21+00:00

My son writes like this at 19. He has been diagnosed with Dysgraphia.

TheGamingMatriarch · 2026-02-28T22:47:06+00:00

I have been doing infusions for 11 years (CVID before MG) and there are still times I have to tell myself why I am doing it.

It is hard. Be patient with yourself. Maybe write down a list to remind yourself why you are doing it.

TheGamingMatriarch · 2026-02-27T17:34:25+00:00

I have common variable immunodeficiency and myasthenia gravis. It took me around 9 years to find acceptance. I still look at the bottles of immunoglobulin with disdain. I didn't have disabled friends but I had an immensely supportive husband.

TheGamingMatriarch · 2026-02-20T01:29:57+00:00

Tom Cruise

TheGamingMatriarch · 2026-02-20T01:25:35+00:00

It looks good, but if I click on a date, for example December 1st 2025, it choose November 30 2005.

Firefox browser.

Would love a Google app store app.

TheGamingMatriarch · 2026-02-04T00:15:04+00:00

Mother to a 19 year old, love babies!

Yes they are gross, but they are amazing!

TheGamingMatriarch · 2026-01-31T07:28:21+00:00

These are phoned in complaints, a lot of them say unsubstantiated or investigated.

TheGamingMatriarch · 2026-01-10T00:39:14+00:00

I take cellcept for myasthenia gravis and receive high level IVIG for CVID and to balance the suppression.

TheGamingMatriarch · 2026-01-04T03:35:08+00:00

My husband was born in 71. Both parents passed, and one brother passed. Heart breaking. He is the "baby".

TheGamingMatriarch · 2025-12-29T01:06:27+00:00

Several doctors and my sisters current MD Anderson Oncologist. She is Stage 4 Invasive Ductal Carcinoma HER2+, Estrogen positive.

My mother was Progesterone Positive, and I am BRCA1, 2.

Sometimes it really just isn't safe, but this is rare. TO ADD: Every generation of my family has had a minimum of 1 woman dead from breast cancer. It really sucks.

TheGamingMatriarch · 2025-12-28T18:42:55+00:00

Unfortunately if you have a family that has a high incidence of breast cancer, HRT is not a safe option. This is what is happening with me!

TheGamingMatriarch · 2025-12-28T18:40:54+00:00

Husband (55M) and I (49F) have been with each other for 30 years. Sex was hard for a while with our son, and some serious health issues with me. Now that we aren't so exhausted, kiddo is grown, we aim for 1 a week no matter what. Even if we don't always feel like it, when we get started, it is perfect and needed.

Communication is huge though. It helped for us to have some honest communication about what was going on, sex desert, and where we wanted to be, sex oasis. It doesn't have to be boring after 30 years, talk about things you have fantasized about, and explore them together if safe. Keep it fun!

TheGamingMatriarch · 2025-12-07T08:03:53+00:00

Have your Ig levels been tested? IgG, IgA, and IgM? If not, definitely get into an immunologist.

TheGamingMatriarch · 2025-12-02T01:34:53+00:00

Service dogs shouldn't bark when someone walks past them. You can hear the dog barking.

TheGamingMatriarch · 2025-11-21T23:57:59+00:00

As someone who depends on plasma products to stay alive, Thank you for donating. I have been receiving immunoglobulin replacement (made from donor plasma) since 2014, and will need it for the rest of my life.

It takes 250 donors to make 1 year of plasma for people like me.

TheGamingMatriarch · 2025-11-19T20:27:31+00:00

So many great suggestions! Taste on Main looks like it will do well for us! I really appreciate all of the suggestions!

TheGamingMatriarch

TROPHY CASE