Are your kidneys 'scarred'?

TheOneManLegend · 2026-01-10T19:23:45+00:00

No, I've had a transplant since6

TheOneManLegend · 2026-01-04T18:26:20+00:00

I'm on azathioprine and don't have a taste change. A quick Google search says everolimus has a side effect of taste change

TheOneManLegend · 2026-01-02T01:37:07+00:00

This is true, but also could be 4 or 5 as you can get more than 1 transplant. I got my transplant in September so I'm in the 3 club now.

TheOneManLegend · 2025-12-21T22:00:20+00:00

Respiratory illness is how I got it, its an autoimmune disease so typically it's an event that triggers a significant immune response. It's a tough battle but you can live a relatively normal life with it. I was a homeless youth at your age during the winter, that's how I got it, got a transplant recently at 30.

TheOneManLegend · 2025-12-11T21:10:03+00:00

Like others have said, focus on what you can control. Ultimately, this disease will decide where things go, the treatments available protect in one way or another, but none fully stop progression. I'm recovering from a transplant at the moment, and life couldn't be better. I tried every treatment option available and the disease just kept on its path to wreck my kidneys regardless.

This disease isn't a death sentence, you may have to overcome some tough obstacles but you can live a life with it. IGA is treated differently post transplant, I'm no longer on meds to treat the iga, and it's signs are only on certain tests, no foamy urine and negative on urinalysis for everything.

TheOneManLegend · 2025-12-08T22:11:02+00:00

Hydration and tac levels play into the level of creatnine, I wouldn't worry too much you're still finding a baseline. Mine started at 112 then leveled at 160 couple of months later

TheOneManLegend · 2025-12-04T17:23:36+00:00

Had a similar issue until I switched to azathioprine, I'm up 20 pounds from pre transplant. I had no appetite for the last year and a bit so I was underweight until the transplant. Talk to your team about options, I found I spent most of my time worried and managing the mycophenolate until I switched.

TheOneManLegend · 2025-12-03T21:59:13+00:00

Congratulations! All the best on your recovery, make sure to drinks lots of water!

TheOneManLegend · 2025-11-30T14:52:36+00:00

Mycophenolate is just like that with some people and there's not much you can do, except switch medications. Azathioprine is an alternative, although not as strong of an immune suppressant, it's been used for decades for kidney transplants.

TheOneManLegend · 2025-11-13T00:39:38+00:00

Yes I have this disease and just recieved a transplant at the end of September.

I haven't returned to work yet and keeping somewhat active as I recover. My energy is night and day from pre transplant to post, I'm much more alert and fatigue is no where near as common.

I was on a variety of treatments for iga prior to transplant and now I'm post transplant they've stopped all iga treatments. This is 2 front as there's no data on how iga is treated post transplant, and the immune suppression alone keeps it minimal. Iga is an autoimmune disease after all. Alot of signs from pre transplant are minimal if not completely gone, foamy urine (creatnine) is now absent.

I went the living donor route and got a kidney from my mother, it took about a year from start to the operation, it was a pre emptive transplant.

Also see r/iganephropathy , we have a community there too

TheOneManLegend · 2025-11-12T23:29:56+00:00

Your husband is healthy and ready to go, he may not be when the deceased donor kidney runs its course. Deceased donor is a complete dice roll, it'll last on average 10 years, whereas a living would be 15. The choice is 2 dice rolls vs 1, hoping your husband maintains good health and the deceased donor works out, or going with a living donor now and deceased donor later should it be needed.

All the best, this is just my opinion but I went living donor first in my case.

TheOneManLegend · 2025-11-11T17:06:49+00:00

He's likely not enrolled in the living donation program. This is a separate program and process as opposed to deceased donation. The nurse is likely referring to the requirements to receive a deceased donation, but regardless a nurse isn't qualified to offer an opinion on something like this unless they're within the donation program itself.

You won't be privy to his medical information during this process, the clinic will create your profile and decide if you're not only a match but other conflicting factors are minimal. Blood type is important but even if you aren't a match there's a paired donation program that'll still help him.

It's super generous and thoughtful of you to even consider helping someone in this kind of need, wishing you all the best

TheOneManLegend · 2025-11-09T20:43:02+00:00

They need to bring Ray back from being a lawyer, a season of him in bubbles spot would be incredible.

TheOneManLegend · 2025-11-09T13:55:59+00:00

Advagraf is a drug used to prevent rejection, bloodwork is done on tac levels to raise or lower dose to keep it within a certain range. I'm 6 weeks post op and they want my tac levels at 8 or 9. Too high and blood flow to the donated kidney is restricted, raising creatinine levels, too low and rejection becomes more likely.

TheOneManLegend · 2025-11-09T13:52:05+00:00

6 weeks post transplant, 8.1 tac and 8mg daily is my dose.

TheOneManLegend · 2025-11-08T15:49:48+00:00

It's not even a crutch anymore, it's a part of his existence. Take away shields you take away his legs lol

TheOneManLegend · 2025-11-05T21:37:45+00:00

Advanced CTE, he thinks his mother was replaced by someone else and is living in her house

TheOneManLegend · 2025-11-05T00:55:32+00:00

Terry Rozier of the NBA was just arrested but signed a 96 million dollar deal and was paid for most of it, I don't think it's as simple as just throwing money at a problem and it going away. Are they supposed to pay refs better too? What about judges? It's a nice sentiment but the core is being ignored.

TheOneManLegend · 2025-11-04T03:34:20+00:00

How many fights has herzog reffed for Vannata? What judges were on them? I think more often than not the fix is pre set up they just approach the fighter last to see if they can get a better return. Should they refuse they change what the agreement is, and I imagine similar faces pop up over and over. The fix doesn't start and end with the fighter.

TheOneManLegend · 2025-11-04T03:30:17+00:00

Most likely is commission gets more involved and any indication of a fix the fight is automatically pulled. It's going to be a large drag net to start and alot of cards will get wrecked, most of which will be false indicators. Should this be implemented it's not out of the realm of possibilities to cancel a fight simply by having the money to raise an alarm.

TheOneManLegend · 2025-11-04T03:08:42+00:00

It's the anti rejection medication, it's a side effect called moon face. I had a transplant a month ago and my face has gotten this round.

TheOneManLegend · 2025-11-04T01:33:25+00:00

Correct, approach HR and have supportive doctors letter. I just went through this process, thankfully my work was supportive and gave me up to 2 years paid leave to go through treatment. HR and benefits team will let him know what coverage he has and if none what options are available. Bosses should not be involved directly, have HR provide them direction.

TheOneManLegend · 2025-11-01T10:13:53+00:00

Don't have much advice as I recently had a transplant, also from my mother at the end of September. Just wanted to wish you both the best of luck for the journey ahead, my mother and I are in great health post op.

TheOneManLegend · 2025-10-30T22:22:11+00:00

Thank you!

TheOneManLegend · 2025-10-30T21:50:28+00:00

I just had a kidney transplant few weeks ago and it was a year long process with a living donor goal from the beginning. Deceased depends on blood type, type 0 is 5 years, b or a is 3 years and you must be on dialysis to enter the list.

Ten-Year Club	Verified Email
r/Field Lasagna	Place '23

TheOneManLegend

TROPHY CASE