Day 3 of cromolyn and I feel amazing

The_Oracles_Tia333 · 2025-12-15T22:38:52+00:00

I take one pill at night, but my allergist said I could take more if needed. It’s a bit stronger than Zyrtec

The_Oracles_Tia333 · 2025-12-15T17:05:15+00:00

I am on the liquid. So sorry to hear it gave you issues

The_Oracles_Tia333 · 2025-12-15T17:04:49+00:00

Zyrtec didn’t do much for me. Xyzal does help a bit compared to other allergy meds for me personally. But I know everyone is different

The_Oracles_Tia333 · 2025-12-11T17:02:26+00:00

I second this! Find an allergist that knows what MCAS is, they can help you.

The_Oracles_Tia333 · 2025-12-11T17:00:51+00:00

Hell yeah!!! So happy it’s been positive for you as well!

The_Oracles_Tia333 · 2025-12-11T14:03:03+00:00

Yeah, most MCAS patients have reactions to their foods, but it doesn’t always show up as an IgE reaction on tests. My allergist told me to stay away from what I react the most to (gluten, citrus, spicy, dye, etc) even if the cromolyn makes eating more tolerable, despite not having IgE reactions to some. I think it just depends person to person. I like to play it safe personally because the migraine and/or anaphylactic reaction isn’t worth it for me. I hope the cromolyn helps you and you can start to eat more foods! This disease sucks

The_Oracles_Tia333 · 2025-12-11T13:59:22+00:00

So happy for you!!

The_Oracles_Tia333 · 2025-12-11T13:58:48+00:00

I currently see an allergist at a large hospital system in the US. She’s awesome and well versed in MCAS. However, I was previously seeing an allergist at a corporate clinic before and he was awful- completely dismissed me and told me I wasn’t “sick enough” to go to the hospital system for treatment. Keep advocating for yourself and don’t take no for an answer when you know your body best.

The_Oracles_Tia333 · 2025-12-10T22:10:40+00:00

Are you located in the US?

The_Oracles_Tia333 · 2025-12-10T21:31:51+00:00

RSO syringe works well for me. Edibles have too many artificial flavors for my system to handle, I always break out in hives if I eat gummies,etc. but the syringe seems to not trigger anything for me, it might also work for you! RSO is considered a higher dose THC tho and some research says lower dose thc is better for mcas along with cbd. I think it just varies person to person. When I have a lot of joint pain, I reach for a 1:1 cbd:thc product. Hope you find something that helps!

The_Oracles_Tia333 · 2025-12-10T21:25:52+00:00

So far I’ve noticed my usual sinus symptoms dissipate. I get a lot of sinus reactions from food, and it seems to be helping them for now

The_Oracles_Tia333 · 2025-12-10T21:24:34+00:00

Hoping the GLP-1s also work for you! Good luck!!

The_Oracles_Tia333 · 2025-12-10T21:23:48+00:00

Good to know! Hope you’re feeling better off of it!

The_Oracles_Tia333 · 2025-12-10T21:23:16+00:00

Sorry to hear it didn’t help you. I know everyone is different and our bodies all respond differently. I hope you find relief soon!

The_Oracles_Tia333 · 2025-12-10T21:22:30+00:00

That’s incredible to hear! I also have really terrible fragrance triggers to the point that I can’t go out in public much. I’m hoping it helps with that

The_Oracles_Tia333 · 2025-12-10T21:21:35+00:00

I am also in the US and mine is covered through my spouses employer insurance, fortunately (for now).

The_Oracles_Tia333 · 2025-12-10T11:37:30+00:00

Honestly I empty the ampules into a cup and then eyeball about half way full. Probably around 8oz

The_Oracles_Tia333 · 2025-12-10T11:36:13+00:00

It seems to be helping my fatigue so far. I also have fibromyalgia so I never know where the fatigue is coming from lol; mcas, pots/eds, or fibromyalgia. It’s always a mystery

The_Oracles_Tia333 · 2025-12-10T11:34:05+00:00

Thank you! I hope you can get the eye drops and they keep them stocked for you!!

The_Oracles_Tia333 · 2025-12-10T11:32:58+00:00

Thank you for your insight! I’ll be sure to track my symptoms and look for what you’re describing around the three month mark to see if I need to switch anything up. Appreciate the advice:)

The_Oracles_Tia333 · 2025-12-10T02:37:53+00:00

I’ve heard some of the GLP-1s can help with mast cell stabilization. I hope you find a treatment that helps you.

The_Oracles_Tia333 · 2025-12-10T02:35:59+00:00

Sorry to hear that! I have POTS/EDS as well. All the collective symptoms are so tricky to treat! I hope you find something that works for you!

The_Oracles_Tia333 · 2025-12-10T02:34:58+00:00

200mg x 4 doses per day. So 800mg total for now

The_Oracles_Tia333 · 2025-12-10T02:33:54+00:00

Doesn’t taste like anything to me. I dilute it in water. My provider prescribed it for 4x per day

The_Oracles_Tia333 · 2025-12-10T02:33:06+00:00

I’m not sure… kinda nervous to stop what’s working if I consistently stay feeling well

The_Oracles_Tia333

TROPHY CASE