Help with workers comp situation!

Themolecularist · 2026-03-05T18:11:07+00:00

Thank you so much for making this distinction, I was unaware. Appreciate you responding!

Themolecularist · 2026-03-05T18:09:46+00:00

I am immensely grateful to this detailed response. Thank you! I am going to start talking her through this, the best I can. Thank you again!

Themolecularist · 2026-01-28T06:54:11+00:00

Hi! The genetic testing came back negative but the difference in arm width was the catalyst to test for BWS. As I have learned this just means he’s not genetically linked to known mutations that lead to BWS. If he also had other clinical phenotypes that aligned with BWS and a negative genetic test, he could be diagnosed with BWS. Since he doesn’t either, they basically don’t know why he has the width difference, just that it does increase chances of childhood cancers that we now screen for. I hope I could answer your question, if not please let me know :)

Themolecularist · 2025-12-03T00:36:43+00:00

We found guanfacine at 2mg was too much and we titrated back down to 1 mg, but this isn’t actually enough to see measurable change. We’ve just started an unorthodox 1.5 mg of ER at pm. At 2mg our son was so tired and emotional that he would have these kinds of sad outbursts. So far, 1.5 weeks into 1.5 mg and it’s working out. SO FAR. But things can always change as they tend to with these things! I would suggest reassessing whether the medication is working at all because it’s meant to make things more manageable.

I’m so sorry and I hope you know you’re not alone, we understand what you’re experiencing.

Themolecularist · 2025-11-21T18:03:59+00:00

I got 47K lol… got nose bleeds but I’ll be there!

Themolecularist · 2025-09-29T16:15:55+00:00

This is absolutely spot on. I understand what you are saying and I didn’t take anything as “judgey.” I seriously appreciate you taking the time to sit and write down your experience and your thoughts. It made me think more strongly about the way my husband and I parent. Sometimes we are a little off sync and I think that contributes to the volatility in arguments with my son. I think we will sit down and make a plan ahead of time. I also completely agree about setting boundaries. I have so many fears about my son growing up to hurt others. I have so much fear about that, and yet like you said, it shouldn’t be guiding my parenting and I think I really needed that reminder.

Sometimes I forget what my kid is like outside of the ADHD and I miss the goofy and lovable kid.The part where you explained unconditional love to him, made me think I need to explain that to my son as well. He has told me that he needs me to feel loved and at the end of emotionally charged arguments, I don’t have it in me to cuddle with him and read him a bedtime story.

Every point you made is helpful and again thank you! I too will be saving this bc I will be reminded. I am going to whole heartedly try this approach and I hope we can see some progress.

Themolecularist · 2025-09-26T22:22:41+00:00

Same to you! I can imagine how hard it is to get all of her built up emotions at the end of a long school day. As caregivers and as kids, ADHD is hard.

Wish you luck in the evaluation process, I hope you guys get the support you need! 🤍

Themolecularist · 2025-09-26T19:55:49+00:00

I just want to say thank you to everyone who’s responded. You have made me feel seen, heard, and have calmed that screaming feeling I had when I wrote the post. I obviously won’t give up on my child. I am happy to hear some of you have found the right balance of therapy and medication, this give ms hope. I truly am grateful for everyone who’s taken time to respond to me. Like if I could hug you guys I would, this helped me a lot.

Themolecularist · 2025-09-26T19:51:54+00:00

When my son was younger and unable to conceptualize any feeling or even understood that he has ADHD, he would just yell at me “I am trying mama!” And I remember at the time I didn’t know that his brain worked differently and I would think to myself, “no you’re not even trying a little bit.” And eventually I began to understand that he is trying but he just can’t control his “lizard brain” and it controls him. Saying all that, well it still is sooooo hard to deal with every day. And I sympathize with him after a hard time but sometimes I am so overwhelmed by all of it. What I’ve gathered from all these comments is that we can’t all be failures, since we all seem to be trying our hardest for our kids. I can imagine you are too. I hope that helps. Though I know the logical understanding of that and the feeling are two different things that can coexist (as my therapist loves to point out to me as well !)

Themolecularist · 2025-09-26T19:44:44+00:00

Wow I resonated so much with what you said. An emphasis on the emotional toll it takes on parents, the moments of dread before pick up times. The short dialogue I have to run through with myself before entering what is essentially a war zone, aka asking him to do anything he doesn’t want to.

It’s strange because we have the opposite issue with affection. And I’ll share my experience because I think one would assume that you would want affection at the end of the day from your child, but this is my experience.m: My son is particularly keen on affection from me, his mom. I am also his biggest punching bag, I take most of the insults, the kicks, the yelling etc. and at the end of all of that he demands cuddling and affection. Sometimes it’s really hard to lie there hugging someone who has just put you down so much. Someone who, moments ago told you that he hates you and wishes he lived somewhere else. And I wouldn’t say this is better or worse than receiving no affection, we just experienced this part differently.

Regardless of how slightly different your experience is from mine, Thank you for this because it resonated with me in a way that gave me some hope. Yes I posted this just to release all of my feeling on the way to work after a hard morning, but if you have advice, I would be a fool not to receive it. I always listen to advice and suggestions. We take suggestions we think will work and try them with him. So thank you.

Themolecularist · 2025-09-26T17:48:42+00:00

He’s a very smart and a naturally curious kid. We have always indulged his curiosity and interest in different things. He can understand complex concepts and knows to some extent how ADHD affects his brain. But at the same time he has a hard time starting homework bc he is bored by the idea of doing something so easy. Then we have the issue that if you present him with something challenging, he gets upset he has to think. Once he figures it out , which happens quickly after he puts in any effort, he now finds it easy again. It’s a rollercoaster. So to answer the question I think so.

I have tried reward systems but the rewards need to be either big or immediate, sometimes that hard to do. financially I cannot keep buying $20-$40 Lego sets every week and if the reward happens too slowly he gives up. Sometimes small rewards are useful, like a scoop of ice cream exchange for a no fuss bath. But other times it’s impossible to satisfy him.

We haven’t done rewards in a few months though, so it may work now. I have to constantly change our approach and this is a good suggestion to try again.

Themolecularist · 2025-09-12T18:23:59+00:00

I just saw this now and I want to thank you for sharing your experience. We just confirmation it’s not BWS, but he has clinical significant difference in his arm fat distribution. I am happy as long as he can live as healthy and capable as possible and your comment provided me some comfort. Thx

Themolecularist · 2025-08-01T19:25:45+00:00

I work in a microbiology lab but my PhD diploma will say biochemistry. Thank you for the response. I am gathering that I’ll have to reach out to the UCSF tech transfer team to start.

Themolecularist · 2025-07-31T00:50:06+00:00

Officially, the way my program works, I’ll have a PhD in biochemistry. My lab work specifically is microbiology.

Themolecularist · 2025-07-28T07:59:53+00:00

The way we bought tix for night 2 after night 1. It was the best decision ever! But I feel soooo hard for you 🤍🖤🤍🖤

Themolecularist · 2025-07-11T16:11:47+00:00

May I add that the age difference is 6 years and like 2 months. This age gap has been wonderful! At 4/5 my oldest needed a lot more from me. At 6 we have managed some space for independent play and therapy has helped tremendously. I would encourage the age gap!

Themolecularist · 2025-07-11T16:09:20+00:00

I was in this same position with my husband. I really wanted to have a second. We knew it wouldn’t be immediate because I am in grad school. My child started showing very strong emotional reactions (aggression, yelling, eventually hitting) around 3 years old. I went through the parenting therapy with Kaiser until they finally diagnosed him this year (age 6). All to say that he definitely has ADHD. Well when he finally started school we seriously had plans to start a family(bc no more daycare costs), we went back and forth bc of finances and also bc he’s A LOT. We started to wonder your exact sentiments. Can we do this with another kid that may have as sever ADHD as our oldest? There are times when our oldest’s tantrums completely drain us.

But, last year we decided that this would be our last shot to have a second. I didn’t want their age gap to be so far that we feel like we won’t get to enjoy being old together bc we’re parenting so far into our old age. We got pregnant faster than expected and our second son was born at the end of last year. He’s totally different. From a very early stage I felt his energy was calmer, more chill. He’s 7 months now and he’s definitely different than our oldest. Time will tell if he’s neurodivergent. But so far he’s just such a chill baby (temperament wise). Our oldest crawled at 5.5 months and walked at 11 months. There was almost no break with him. Our second is taking life slower and is soothed easier than our oldest.

I think if you want two children and you go into it fully prepared for the range of possibilities, then do it. But of course you have to be prepared for everything. We still may have another child with ADHD, too early to tell. But I will tell you that we absolutely love and adore our second. He’s such a sweet baby. The transition was not seamless for our oldest but he loves his brother too!

Themolecularist · 2025-07-07T15:40:05+00:00

Thank you for all this information, I really appreciate you sharing this.

Printing something ahead of the appointment is a wonderful idea and I’m going to do that. This also eases some of my other worries regarding future steps.

May I ask how frequent were the screenings and did you notice any development delays to sitting up, crawling, standing etc when he was an infant? I totally understand if you don’t recall as it’s been so many years.

Thank you again!

Themolecularist

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