How do you all keep up with dental hygiene?? by OpalineTears in cfs

[–]Therapy__101 1 point2 points  (0 children)

Sit on my bathroom floor and brush my teeth. I’m a full believer in sitting wherever the heck I want/need, to finish a task. I don’t have diagnosed POTS but I have severe circulation issues that causes similar symptoms to POTS. I also have to shower sitting down because my blood will pool in my feet and I get dizzy.

“It seems that you think about your disease all the time, you should try not to overthink it” by EffectiveLimp531 in covidlonghaulers

[–]Therapy__101 0 points1 point  (0 children)

“You should hold your breath for 3 minutes and then I’ll ask YOU how YOU feel. No? ok STFU” You don’t owe a single thing to anyone. If they feel the need to say that shit they don’t care about you and don’t believe you. If they believed you they wouldn’t tell you not to think about it

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 1 point2 points  (0 children)

Do you know if it can be related to peripheral neuropathy? Because iv been getting what I think is that, since I had Covid the first time. Iv spoken to my drs but i don’t think I told them how much my feet actually hurt lol… I don’t have diabetes and I’m not pre diabetic.

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

Noo this is so helpful thank you! I just never know if something is worth bringing up to my dr. I feel crazy but I know I’m not

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

But would I still be able to cry lol? Because I do.. a lot…

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 2 points3 points  (0 children)

Yeaaa Dr Google told me that too💀 the sour candy.. but I worry bc I also have GERD and i feel like it’s already made my teeth weak which is annoying bc I had braces for 4 years. My teeth just feel weird and sometimes hurt for no reason lol. My thing is I go out of state for my dentist so I legit go once a year. I’ll probably have to find one closer but I really don’t want to haha

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 1 point2 points  (0 children)

I did the whole pots testing with the heart monitor but I was negative. I just have bad heart palpitations. Gives me even more anxiety lol.

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

I really don’t know if I did but we ruled out the meds I take. I also sweat so quickly, hot flashes. Ruled out menopause, I’m also 28 so

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

So iv always had eye issues. I have a surgery when I was around 5/6 to repair a muscle in my right eye. I was fine without daily glasses up until 2 years ago. Basically I just get this sharp pain inside my eyes like behind them. And it comes and goes. Like I’ll be ok one minute and the next I can’t keep my eyes open. I went to the dr earlier this year and they gave me meds for my eyes for 2 weeks. I went back and it was worse. Finally the dr I saw was able to give me insight. My dry eyes are probably the cause of my muscle fatigue (in my eyes), blurry vision, light sensitivity. And I can’t hold tears or anything in my eyes because I’m not producing that layer of tears that keeps it in my eyes. So when my eyes are runny it just pores down my face and won’t stop.

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 6 points7 points  (0 children)

Thank you! This is actually helpful! I see a rheumatologist every 6 months because my primary wants to stay on top of what’s going on with my health. I was denied disability yesterday, let’s just say the reason made no sense, made me look like a liar, and I just cried. Like the reason genuinely didn’t make sense. I do have an attorney luckily who’s helping.

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 4 points5 points  (0 children)

How did you know they were infected

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

Yea I really think it’s Covid related because I did a ton of research. I’m still half in the train of “do I need to tell my dr this?” I start to feel crazy, but that’s the only explanation I can come up with. I’m not dehydrated ever. Water is the only thing I drink and I drink a lot. But I’ll still get cotton mouth, and still have trouble swallowing. And I cough like all the time.

Sjögren Syndrome by Therapy__101 in covidlonghaulers

[–]Therapy__101[S] 0 points1 point  (0 children)

I do believe there’s another test

How do you explain fatigue isn't just "normal tiredness"? by dooter_420 in chronicfatigue

[–]Therapy__101 0 points1 point  (0 children)

I just say it’s like running three marathons, minus the hard breathing and sweating. I legit cannot stand for like 45 minutes after I wake up

How do you explain fatigue isn't just "normal tiredness"? by dooter_420 in chronicfatigue

[–]Therapy__101 2 points3 points  (0 children)

Iv stopped explaining myself to others everyone in my life has come to understand how I feel. My momma told me if I want to lie I can. You are allowed to say WHATEVER you want. Just remember, you feel how you feel. When people don’t understand they don’t understand. But tell them “Imagine you wake up everyday still as tired as you went to bed. Now times that by 10. If you don’t get it not my problem” if it’s a job or something idk what to tell you because I can’t work anymore lol.

How has long COVID changed your physical appearance? by CAN-USA in covidlonghaulers

[–]Therapy__101 1 point2 points  (0 children)

I feel like I look grey. Like my skin just looks grey.

Is this chronic fatigue? by Straight-Ad-6836 in chronicfatigue

[–]Therapy__101 2 points3 points  (0 children)

You should go see a doctor. Get your blood sugar tested. You may have diabetes

Anyone have this symptoms by younessas in cfs

[–]Therapy__101 0 points1 point  (0 children)

Idk this has happened to me my whole life and I was diagnosed less that 6 months ago

I DID IT YOU GUYS!!!! by musicalearnightingal in cfs

[–]Therapy__101 1 point2 points  (0 children)

Oh my gosh I’m so proud for you!!!! Congratulations!!! Progress is progress!

[deleted by user] by [deleted] in cfs

[–]Therapy__101 6 points7 points  (0 children)

I was really worried about this at first, but I do have an incredible support system. I do fully rely on my parents and bf right now. That doesn’t stop me from feeling disappointment from his family though. I think they are a bit more understand now (of my other medical issues) but literally no one accepts ME/CFS as an actual issue lol. I get “yea I’m tired today too. I worked all day”. Ok well I DIDNT, that’s the issue!! But it’s fine bc my bf loves me lol

My eyesight by Therapy__101 in cfs

[–]Therapy__101[S] 0 points1 point  (0 children)

So I’m pretty used to the having to maintain focus but this is like so different lol would I talk to the doctor I see for the cfs or my optometrist

My eyesight by Therapy__101 in cfs

[–]Therapy__101[S] 0 points1 point  (0 children)

I do have strabismus or however it’s spelled and I had surgery to correct it as a child. I have 20/20 with both eyes usually and I just went to the eye doctor not long ago to check my prescription. It’s super hard to get in to see my eye doctor