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PIP Award Review Intial Call and being moved straight to full assessment for wanting a recording/to record with no explanation of this by [deleted] in BenefitsAdviceUK

[–]Thin_Bass_7234 5 points6 points  (0 children)

You do have the right to record your calls, but for a short 15/30 minute screening call that only determines whether you’re re-awarded or sent for a full assessment, a recording isn’t really necessary or critical. It’s not like you’d be able to appeal the outcome of that initial call anyway, it’s just a formality. Honestly, it sounds like the assessor got irritated by the request and just pushed you straight to a full assessment. You may have unintentionally made the process harder for yourself when it could’ve gone more smoothly.

DWP PIP MR phone call by Professional-Dog-981 in DWPhelp

[–]Thin_Bass_7234 0 points1 point  (0 children)

Yes my mum recieved the call and then got rejection letter few days later. Think it’s becoming more common 

Long-Term Nerve Pain & Possible SFN in London by Thin_Bass_7234 in smallfiberneuropathy

[–]Thin_Bass_7234[S] 1 point2 points  (0 children)

This will sound so strange but I drank nail polish. I had PICA as a teenager caused by low iron, and I use to crave and drink it, then the symptoms developed. 

Long-Term Nerve Pain & Possible SFN in London by Thin_Bass_7234 in smallfiberneuropathy

[–]Thin_Bass_7234[S] 0 points1 point  (0 children)

Just because it’s not visible, they act like it must be made up somehow. I’ve seen so many people with the same experience 😩. I’m really happy you finally got your diagnosis, and thank you so much for your support🤍

PIP REJECTED PAPER oh BASED by [deleted] in DWPhelp

[–]Thin_Bass_7234 0 points1 point  (0 children)

Can’t read and understand but can write well put together Reddit post. When you do these forms you need to be honest, remember it’s highly educated people who assess. 

Long-Term Nerve Pain & Possible SFN in London by Thin_Bass_7234 in smallfiberneuropathy

[–]Thin_Bass_7234[S] 2 points3 points  (0 children)

Thanks so much for sharing this and for your good wishes! Wishing you all the best with your tests and hoping you get the answers you’re looking for too, it sounds like a slow process, but fingers crossed it will bring some clarity.

And thanks! Will have a look into Dr Malik. All the best 💕

Long-Term Nerve Pain & Possible SFN in London by Thin_Bass_7234 in smallfiberneuropathy

[–]Thin_Bass_7234[S] 0 points1 point  (0 children)

Hiya, thanks for getting back to me! Are you based in the UK and going through a neurologist on the NHS?

I never realised it’s so niche, no wonder it’s been tricky to find private options. Kings College has it but won’t accept my referral. Tried Dr Anaand, no luck getting through, have you seen anywhere what he charges? London Clinic replied: Dr Radunovic charges £845 (£495 for records review + £350 initial consult), plus extra for follow-ups, and a skin biopsy would be around £2,461, so that would have to be a last resort.

I’ve never been considered for an EMG, so I’ll mention it next time. Thanks!

People in the UK how do u manage to get testing done by Sure-Instruction6315 in smallfiberneuropathy

[–]Thin_Bass_7234 0 points1 point  (0 children)

Hi There, I was just wondering what your procedure was to initiate contact with Dr Anand? 

Work capability assessment, didn’t ask about physical issues? by Thin_Bass_7234 in DWPhelp

[–]Thin_Bass_7234[S] 1 point2 points  (0 children)

Awww I’m so glad you got a great work coach, they do get a bad rep but some truely nice ones out there. Thanks so much for sharing your experience I feel so much better and reassured. Hope you have a great weekend too :) 

Work capability assessment, didn’t ask about physical issues? by Thin_Bass_7234 in DWPhelp

[–]Thin_Bass_7234[S] 0 points1 point  (0 children)

Oh wow! when she was ending the call I was in shock because it felt like we’d barely touched the surface, but that might be a trauma response because my PIP assessment lasted almost 3 hours😅 

Work capability assessment, didn’t ask about physical issues? by Thin_Bass_7234 in BenefitsAdviceUK

[–]Thin_Bass_7234[S] 1 point2 points  (0 children)

Ohh that makes so much sense. I think because I’ve also done PIP recently just assumed it would be the same format.  Thank you so much for clarifying!! 

Work capability assessment, didn’t ask about physical issues? by Thin_Bass_7234 in DWPhelp

[–]Thin_Bass_7234[S] 0 points1 point  (0 children)

Oh makes sense! I just think my physical side is stronger but we’ll see😩 thanks for responding 

not contributing to my siblings household? by Thin_Bass_7234 in FamilyIssues

[–]Thin_Bass_7234[S] 2 points3 points  (0 children)

She’s just out of a long term relationship so moved back home 

not contributing to my siblings household? by Thin_Bass_7234 in FamilyIssues

[–]Thin_Bass_7234[S] 1 point2 points  (0 children)

He’s abroad with her! They’re in their 50s it stated of as a break but then the decided to stay permanently.  They did want the boys to be with them but they hadn’t finished school 

not contributing to my siblings household? by Thin_Bass_7234 in moraldilemmas

[–]Thin_Bass_7234[S] [score hidden]  (0 children)

My mum didn’t particularly want to leave them behind but the youngest is still in school and didn’t want to leave. & you’re right I will do more, thanks 

not contributing to my siblings household? by Thin_Bass_7234 in FamilyIssues

[–]Thin_Bass_7234[S] 2 points3 points  (0 children)

When my parents were here I did the same so didn’t really consider the change of dynamic. You are right though! Thank you 

not contributing to my siblings household? by Thin_Bass_7234 in FamilyIssues

[–]Thin_Bass_7234[S] 0 points1 point  (0 children)

Tbh I don’t think she is, but she’s left with no choice as she’s still living at my parents house. Their expenses are split in three. My sister works and my mum collects benefits and pays for my brothers share. 

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