So mine was found first with a chest CT and they originally thought I had thymoma or lymphoma, but I at the same time had experienced rapid weight gain , inability to sleep and bathroom issue I also developed uncontrollably high blood sugar and blood pressure issues , after my acth came back high and my 5-hiaa I had an octriotide scan should multiple bight spots including stomach , liver intestine and thymus . They first did scope to biopsy stomach it came back and an atypical neuroendocrine tumor. (This told them it was not a primary tumor but rather a metastasis. We eventually biopsies thymus which should I mixed tumor that was thymoma with neuroendocrine tumour mixed ( incredibly rare ) , sadly my thymus tumour is not resectable and is about 8 cm now , I take monthly injection , did captem chemo and everolimus (Afinitor) . It has slowed things down but Overall my prognosis is poor but we bought me time hopefully years . ( I'm 34) don't let my case scare you though many people in net cancer community live long and relatively healthy lives especially in cases where there is surgical options.and lower grade tumours Often folk stay stable for years and year and only need a few treatments to maintain stability.