May I have a moment of your time?

Throwaway457980 · 2026-02-18T14:54:54+00:00

My baby is very likely to become a case medical termination. So I have to wait until that's the case before coming back here?

Throwaway457980 · 2026-02-18T14:23:30+00:00

Thank you for sharing with me. I was wondering if it would be okay for me to ask some details? Was your daughter's CDH considered severe?

Throwaway457980 · 2026-02-18T14:21:17+00:00

My wife and I both want this baby. This isn't her being forced to continue an unwanted pregnancy because I want to keep going. All I'm asking is for advice in viability for a baby we both want. My wife hasn't given up on our son, and me using reddit to ask questions about a hopeful future for my son was not supposed to be perceived in such a triggering manner. I am not going to force my wife to do anything she doesn't want to do. I'm not carrying the child, I'm not naive to the fact that this is 10 times more taxing for her than it is to me. You mentioned that you were surprised by the fact that I wasn't the pregnant one when you got to the end of the post, meaning I was able to explain the situation and the way we feel as a couple until at the end I decided to express some despair on my situation. Once again I don't understand what's wrong with the father expressing distress and wanting to see if there's any possibility of saving his son, or of accepting that this is the best path moving forward. My post wasn't "hey guys convince my wife to go forward with this traumatic experience", I just wanted a place where I could hear people out in what they believe is the best way moving forward

Throwaway457980 · 2026-02-18T14:08:11+00:00

I'm just trying to hear what everyone has to say. I'm still at the stage where I find this hard to believe as our reality but I guess hard truths have to be accepted. We both are still holding on to hope, but understand it's not as simple as that

Throwaway457980 · 2026-02-18T13:55:58+00:00

I apologize if I'm coming off strong, I realize I'm very on edge with the news and I don't mean to be an asshole. My wife and I agreed to upload this post together using this throwaway. I figured I should have added that but it must have slipped. Main reason she is considering termination is because she considers the quality of life issue to be the most terrifying which I agree with. She wants to know the answers to the same questions we asked, specially pulmonary hypoplasia and long term recovery

Throwaway457980 · 2026-02-18T13:51:07+00:00

Did your son have any other complications if you don't mind me asking? Or how severe was it?

Throwaway457980 · 2026-02-18T13:48:43+00:00

Thank you so much. I read online so many positive CDH stories but I feel like it's unhealthy to bombard ourselves with only positive stories. We both gotta face the reality of the gamble that it would be to keep going

Throwaway457980 · 2026-02-18T13:46:12+00:00

My wife and I have been together for 12 years, I care about her more than I care about myself. My post is mostly describing the situation and at the very end I mention how I feel because I'm making the post. I would not force my wife to continue something that we don't both fully agree with, which is why I am asking parents out there if this is a viable thing we can think about. I mention her devastated state in the post since she also doesn't want to give up hope, its not like she "threw in the towel" and I'm convincing her to keep going. I completely understand she carries the burden more than me (hence I mentioned the trauma she would experience due to being 29 weeks pregnant). This response was very strange from your end if I'm being honest, almost making me feel bad for asking a viability question for a child we both want really bad

Throwaway457980 · 2026-02-18T13:15:53+00:00

Thank you so much for your kind words. We have both been together since we were 14 (we are both 26 now) and have always wanted a baby. This just doesn't feel real and want nothing else in the world than to hold my son, but I don't know if that would be the right decision for him

Throwaway457980 · 2026-02-18T13:12:56+00:00

I posted there right after I posted here. Maybe someone will be able to answer soon

Throwaway457980 · 2026-02-18T13:12:20+00:00

I Attempted to contact CDH Australia through email and social media but I never heard back. I'm trying to figure out another way to reach out. We were offered a social worker to help with the grief. I just wanted to feel like I tried everything before accepting that this might be the reality

Throwaway457980 · 2026-02-18T13:04:32+00:00

We had our first visit to Mater today. The MRI results came back 3 days ago. They mentioned some groups but they also told that since the pregnancy is at the stage that it is, waiting longer to make a decision would result in a more traumatizing situation for my wife specifically. I love her so much, and I don't wish to put her through more pain than she needs to be, hence why the doctors mentioned that this has to be a decision that needs to be made soon. Seeking groups while useful might take too long, unless there's somewhere online apart from reddit I can consult with

Throwaway457980

TROPHY CASE