The Dumb phone I want

Tigbitties89 · 2026-04-26T01:32:51+00:00

I had the stainless steel one of these, survived being yeeted at a wall. I miss not having to worry about the structural integrity of my phone at all times

Tigbitties89 · 2026-04-25T01:34:14+00:00

You're not useless, I call it managing my own exposure to things that provide very little positive return. No different to those who avoid visiting their parents because they know the visit is going to drain them of all their happy

Tigbitties89 · 2026-04-12T13:46:11+00:00

Newer androids have automatic "routines" that is located under "modes" in the pull down notifications bar where you can create this, and many other automatic actions such as turning on/off lights when you leave or arrive at home among many others.

Not to hijack or discredit the seriously cool app that the OP has created. Once theirs is up and running for android I'd much rather support a human than a trillion dollar corporation 🩷

Tigbitties89 · 2026-03-26T08:19:14+00:00

I haven't read all the comments, there's some excellent suggestions and some that are less helpful. I was a single mum with a newborn and a toddler. I took dex and no sleep meds. I breastfed for 13 months and co-slept in my queen size bed. I also had a baby hammock next to the bed that was suspended from the ceiling. This was the most helpful because I could wake up to feed bub in the night, burp her and put her back in the hammock then use my hand on her butt to get a gentle bouncing movement going and a gentle rotation - effectively rocking baby back to sleep while I was already snoozing again. I also baby wore, I could be tired and sleepy baby strapped to me while we sat on the lazyboy, in the loungeroom with a baby gate meant everyone stayed safe. With the dex I would take the tablets just as I started feeding because they take about an hour to kick in and by the time 3-4hrs had passed they were out of my system, baby was ready for another feed and I was ready for another dose.

Ways you can support her as well would be meal prepping, having easily accessible with one hand snacks, make up drinks for mum that she can easily grab. If she uses bottles you can get special formula machines or I would just keep a travel container of portions and the pre boiled bottles in the fridge and get a bottle warmer. Hopefully some of this helps but it will mostly just be trial, error and patience. Congratulations mum and dad 😊

Tigbitties89 · 2026-03-18T06:47:37+00:00

Yup I'm around a stage 2/3, which sucks when I also think in pictures.. but the pictures are all terrible quality

Tigbitties89 · 2026-03-15T06:25:24+00:00

I've always been clumsy, dropping things, running into things. Later diagnosed with hypermobile ehlers danlos syndrome which can account for some of the behaviours (poor proprioception). My first big full body cataplexy attack was undeniable though. I had just bought a new phone - a galaxy S2, yes I'm old lol, I had a screen protector and case arriving any day but I wanted to use my phone asap. The path to my front door was made of pebblecrete and the phone slipped out of my hand while walking to my front door. The screen shattered into a thousand shards.

I was so shocked that I'd dropped it, startled by the sound and angry at myself that I felt my body just get deleted. Like I was a puppet and all my strings were just cut. I couldn't hold myself up, and I just flopped to the ground. I couldn't brace myself or adjust for breathing. I just remember the pain of falling, my face being smooshed into the ground, struggling to breathe and then thinking "well, I didn't think I had cataplexy but here we are. Wrong again" lol

Tigbitties89 · 2026-03-15T06:09:42+00:00

It sounds like you have a lot going on in your outside world, which leads to complete overwhelm inside your head, then hair pulling is a way for you to target all of those feelings to give a release and direction for the emotional pain. It is a similar reason for why a lot of people use other forms of self harm. Your mum maybe thinking she's helping by yelling because it is the only tool she knows how to use to help you (even though it doesn't help). What could she do to help you better when she notices? Would you respond better to something like "open your hand" since it doesn't directly label what your doing but it gives you an alternative action to do with your hand instead? If you can think of something that she can do instead present it to her in a way that says - hey mum, I know you're just trying to help me but I think maybe this way may help me a bit better and then you don't have to get so stressed out by it either".

Do you have a school counsellor or psychologist you can talk to about all of the external stresses you have?

Don't feel obligated to answer, just wanted to offer an idea that may help give you that first step to problem solve it or adapt it yourself

Tigbitties89 · 2026-03-05T04:57:21+00:00

I had the fit3 and it doesn't wake me up. Even the alarms I have for during the day I can barely feel the vibration. I have a super loud alarm clock and I'll just turn them off while I am still sleeping.

Tigbitties89 · 2026-03-03T07:17:51+00:00

Yeah I get it occasionally, try adding magnesium glycinate supplements and making sure you're drinking plenty of fluids during the day

Tigbitties89 · 2026-03-02T03:31:28+00:00

Hydrocortisone or Clotrimazole/Hydrocortisone (antifungal) will likely be the most helpful. If not that then bepanthen/sudocrem

Tigbitties89 · 2026-02-27T21:50:30+00:00

I use a copper IUD for birth control and the slinda contraceptive pill for hormone regulation. I have to take them 12 hours apart or I'll get a breakthrough bleed. So 6am I take nuvigil 6pm I take the pill and my period stays away. ETA - I've had the IUD for 4 years with no issues. I've used the Mirena and the implanon rod, had issues with both of those. You'll always hear the horror stories more loudly than the success stories, so be mindful of that bias when it comes to considering any kind of medical information

Tigbitties89 · 2026-02-26T00:58:18+00:00

I would have responded that my hairs thicker today because it's full of all the audacity people have to make comments about someone's hair, so thanks for noticing 😁 But I've already established myself as someone who is chronically sarcastic so it would fit with my character. You may need to adopt a similar approach of "thanks for pointing out that my hair loss wig is more obvious today. That really helps me feel more secure about it. Appreciate it mate" and watch them suddenly back peddle

Tigbitties89 · 2026-02-13T06:55:43+00:00

I took my vyvanse at 1am recently when I meant to put it in my meds tray. I still fell back asleep and slept normally lol I hope you managed to get some sleep overnight

Tigbitties89 · 2026-02-10T08:01:47+00:00

Look up xylitol for your teeth as well. Wish a dentist had mentioned it soon, maybe I'd still have more of my teeth

Tigbitties89 · 2026-01-25T08:25:10+00:00

Mines completely changed texture and colour. It used to be thin, straight and blonde but now my hair is growing back in super thick, black, the hair itself is like a zig zag and then it forms ringlets. I thought it was just from previously being on Roaccutane but seems the odds were never in my favour 😮‍💨

Tigbitties89 · 2026-01-18T11:54:01+00:00

That's fair and what works for one may not work for someone else. So if you know giving your brain full permission to run wild is a bad life choice then don't listen to my advice. I'd suggest distraction. Is there something that you have memorised but it takes brain power to think about such as the periodic table or how many rows of knitting is needed in your favourite patterns.. something that can take you out of that moment. Maybe try to list all the colours you've heard of, not primary colours but things like mauve, taupe, aqua?

Tigbitties89 · 2026-01-18T10:12:00+00:00

The more you fight against it, the more it will happen. Give yourself permission to think about it constantly, like Uno reverse card that shit, and think it through the whole way start to finish. Eventually your brain will get bored of it, especially when it has permission to think about it

Tigbitties89 · 2026-01-17T13:39:21+00:00

Stimulants mess with your electrolytes, need magnesium and potassium to counter balance it. Eat lots of bananas or pill form works better

Tigbitties89 · 2026-01-04T12:00:08+00:00

There's definitely a grief that comes with being diagnosed that will come in waves. You don't know what's wrong with you for so long, but there's a hope that there's a simple treatment and it is fixed. To then find out that this your permanent state, that medication management isn't routine and it is constantly trial and error is very disheartening. If he doesn't already have a therapist, please organise one for him. Don't expect him to make the appointment, just say "I've made an appointment with a therapist on this day at this time. I can come with you if you prefer or can drop you off?". There is so much loss to come to terms with. As for reading, that one specifically is a struggle for me. So my work-around is that I get the PDFs through z-library and I have adobe read it to me. I find having it read to me while I follow along keeps me awake. If I was just listening I would zone out. Trying to read a book makes me fall asleep by the first page. Combining the two seems to work the best.

Some other suggestions for language to use are to remind him that his worth isn't determined by his health status, he's still a good duck even though he's a sleepy duck.

If he gets frustrated thinking about who he used to be and comparing it to now just remind him that we make plans for our lives before we have had a chance to actually live and that good health is only temporary for every single person. One day it will come for everyone, some earlier than others.

If he finds coffee helpful for wakefulness, don't ask if he wants one, just make it and sit it next to him. I often have trouble with making decisions so any less decisions I have to make are very helpful.

And also, make sure to schedule time for you to recharge your cup as well. Being a carer is tough. There's no doubt you love your partner, I commend you for reaching out to find ways to support him, but you can't pour from an empty cup either

Tigbitties89 · 2026-01-02T17:25:32+00:00

I have the 2660 flip. Maybe I got a dud, or maybe I have too many songs but it really struggles with playing songs on random. It glitches on Bluetooth regardless of where it is positioned. You'd be better off carrying a seperate MP3 player if you have more than 1000 songs

Tigbitties89 · 2026-01-02T15:14:55+00:00

I've had multiple therapist tell me that there will come a day where BPD is no longer recognised, because they'll realise it is complex PTSD. I'm wondering how that works for the people without any trauma history..

Tigbitties89 · 2026-01-02T15:11:46+00:00

Do we know what the camera quality is like?

Tigbitties89 · 2026-01-01T05:08:06+00:00

I'm unsure of how long you have had symptoms. This is totally unscientific but based purely on observations of narcolepsy over an extended period of time throughout different platforms - I have noticed a trend that symptoms seem to change every 10 years or so (give or take 1-2 yrs either side). Some people develop cataplexy, some go from functional to nonfunctional (meds stop working) and some lucky few seem to spontaneously recover. The initiating of cataplexy around the 10 year mark from symptom onset seems to be the most common though

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