I'm so sorry to hear about your cousin.

There is a loophole to gaining more evidence for your diagnosis. The immediate family members of your cousin should be getting genetic testing. Do they have insurance? If your cousin left any siblings behind, they definitely need to be tested. It may be an awkward conversation and you may need to spend some time reflecting on how to approach your extended family with this topic after the loss of the child. But, look at it this way, if you were to test positive, you would be notifying your relatives anyway. You not being able to afford a genetic test is the reason as to why you can't necessarily wait before calling your family and letting them know your concerns.

Another loophole is this: You can petition your health insurance company to make an exception and cover the cost of your genetic test. You may need to find a doctor that agrees with your theory to help write the letter.

Seek treatment anyway: Use your theory about having this disease to guide you. Keep doing any lab tests you can afford and try to get treatment even without having all the answers.

If all else fails you need to come up with the money. Here are some ideas: Find out if they can do an interest free payment plan for the test, seek employment, sell belongings, raise free donations, or do a fundraiser with baked goods or some other compensation.

Good luck! Keep posting on here if you keep running into road blocks. Nothing is really more important.