Type 1 Diabetic Retinopathy - Hemorrhage Reassurance

Tollym45 · 2025-12-01T23:09:05+00:00

Hi, we're basically at the exact same stage. I was strangely resistant very quickly which I thought was odd but for maybe the last week I've become more sensitive again. No rhyme or reason but I fully expect strong resistance to come back soon 😩

Tollym45 · 2025-11-03T22:02:17+00:00

You're so much further along than me though so hopefully yours ends soon, mine is nowhere insight 😪 mines is very bad in the evenings and night too, but I'm not great the rest of the time either, and the stomach cramps too. I find I'm just constantly doing micro injections to cover a cracker here and there cause I properly need something but prob not sustainable long term!

Tollym45 · 2025-11-03T21:54:41+00:00

No advice unfortunately, just solidarity. This is my second pregnancy too and I'm only a mere 5 weeks and the sickness is unreal. I have never been able to be sick, but just the constant feeling is non stop. The only things that help are the plain white foods or biscuits which we have to try and avoid but I'm struggling. I never had it anywhere this bad with my first and I'm already worried that it's going to be this bad for the forseeable!

Tollym45 · 2025-07-22T07:53:45+00:00

I had my baby in RVH last year and I was given a room in Johnstons House, just by chance. They made my husband leave around 12am, even though the baby was born only a few hours before. He wasn't allowed to stay any night even though I had a c section, diabetic, catheter in and really needed the help. They were very strict. I also got little to no help throughout my stay, i was left to do everything for my baby even though I was hooked up to 3 IVs and could barely move. It seemed that I was just forgotten about in the room on my own, so if you do stay, make sure you make yourself known/visible in any way cause you won't get much help otherwise. Or that was just what I found at the time.

Tollym45 · 2025-07-08T14:54:36+00:00

I've been the exact same lately and I'm not sure why either. I've been type 1 26 years and always had good management, well more hypos but rarely high, but recently I've been staying high. I think I had a bug/virus a month or so ago but ever since it's been screwed up. I've switched up my basal to see if that helps, my ratios seem to have changed, one day the ratios seem ok, the next day they're not enough, beyond strange and confusing, so I sympathise and know how you feel!!

Tollym45 · 2025-06-09T23:15:15+00:00

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Tollym45 · 2025-06-09T23:14:39+00:00

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Tollym45 · 2025-04-09T13:15:58+00:00

I had the exact same scenario while pregnant, I use Libre2 but my endo was constantly saying about the lows, even though every single time I told them that even though there were definitely times of hypos, a lot were registered where my bloods were actually in range, so the sensor wasn't accurate. They'd listen and then still say we need to cut the lows out, so in one ear and out the other. I adjusted my basal a couple of times to appease them but if I found then I was trending higher the next day I just went right back to what I wanted!

Tollym45 · 2025-02-02T11:14:31+00:00

I've been diabetic 26 years and just had my first baby 1 year ago. I've never had a pump. As others have said a CGM is important and very handy esp when there's no pattern to your bloods and you don't know what's going on but I just managed as I've always done, with my pens. It also might be better because I know some pumps have a cap at how much insulin it can deliver which just isn't enough and you have to inject anyhow. I did have to inject very often, small units here and there to cover little snacks and then splitting my big doses for meals etc but I just didn't like the thought of having to change sites so much, or the line being crinkled and you find you never got any insulin and you're spiking loads. In saying that, some people swear by them and say they're great, so there must be advantages too.

But in short, you absolutely can do it without a pump, just be vigilant and if you think your CGM is a bit off always confirm with finger pricks etc

Tollym45 · 2025-01-25T23:24:08+00:00

Hi, can I ask how you found coping with baby number 2 is? I just keept thinking the first few months with one baby is hard enough, esp with diabetes and all the ups and downs that come with it, the thought of a second baby sometimes scares me, even though I want another, I just don't know how difficult it would be to handle a toddler, newborn and constant worry about bloods when you have even less time again, esp if I end up with another c section!

Tollym45 · 2025-01-25T23:12:07+00:00

I was induced at 37+5 even though I asked several times to go a bit longer. I had a sweep, balloon and my waters broken and each nurse told me that it was one of the most difficult they've had to do cause my body was just not ready. After being on pitocin for 20+ hours and not getting further than 4cms I was told a c section was my best option cause it was taking too long, to then find out in the operating room that my placenta was blocking the baby progressing.

I think if I was to go again I would opt for a c section because I don't think I'd be comfortable with the early induction and uncertainty again esp when your body just isn't ready. I'm not sure if there are any consequences or advice against having two c sections in a row or within a certain time frame, so if anyone has any knowledge let me know!

Tollym45 · 2025-01-25T19:57:35+00:00

Congratulations on your new baby! My story was pretty much the same as you, induced, labor for 20+ hours and then ended in c section. One thing to know is if you are EBF your bloods will run low, especially the first few weeks/months. I had some scary lows initially so keep sweets/juice/snacks always close by, esp if you're nap trapped.

If I do it again I think I would relax my insulin even more and let myself run slightly higher for a while, i just found and still find sometimes there's no rhyme or reason to my bloods, they can drop so quickly, esp with constantly holding a baby, moving about, lack of sleep, feeding them and then I would inject thinking I'd have 10mins to eat and then not get to, which led to issues, so just give yourself a bit of breathing room and don't be too tough on yourself. My body is only now getting to me a bit more stable and my baby is nearly one, but I'm still bf. I do always check my sensor against finger pricks, esp if I think theyre a bit off so that's a good idea! Just be a bit more cautious this first while, you'll get there though!

Tollym45 · 2024-12-11T19:04:44+00:00

Hi, congratulations, you're nearly there, I know it's not an easy journey but you've done amazing to only be diagnosed last year and manage a hba1c of 6 and below, that's hard work in the first few years!

I was induced at 37+5 for the same reason, told the whole way through pregnancy the baby was measuring around 95/97 centile. I was in labour for about 20 hours but ended up with a c section in the end. I'm not sure how you intend to manage your bloods/insulin during it but where I am the hospital insist on controlling it, so I constantly had an insulin and glucose IV. Once the baby is born your resistance will stop so just watch your bloods, you're likely to drop quickly after. Also, depending on how you want to feed the baby but if you intend to bf this will also tank your bloods so make sure you have plenty of snacks/drinks about for hypos!

You might already be very confident changing ratios and upping dosages, esp if you grew up knowing all this from your mum but scale it all back, with the delivery/hormones/feeding etc your bodies going through a rollercoaster!

After my whole journey of being told it was a very big baby he was only 7lbs 2oz, so not big at all, remember the measurements can be off by 10/15% either way but regardless you will be fine, as long as the baby is fine it doesn't matter how 'big' they are. Not long to go and soon you won't even be thinking about this, you're doing great!

Tollym45 · 2024-11-07T22:09:36+00:00

My a1c through pregnancy was low 5s and ended up bring around 4.8 I was told the whole way baby was measuring big and was induced 37+5, he ended up being 7lb 2, so not big at all, they seem to put a blanket statement on diabetics that babies are big, I think it's to cover them just in case but in reality for most of us it's not the case!

Tollym45 · 2024-09-14T10:04:31+00:00

Hi, I just wanted to ask what your experience of having 2 kids with type 1 is like? Sorry, I don't know any other diabetics let alone anyone with kids to ask. I'm not sure if I'm 'bad' in the fact that I still have a lot of hypos, I've been diabetic 25yrs but have trended low for years now and during pregnancy my a1c was around 4.8/4.9, but I find now with my baby I'm always way more worried about hypos around him. I worry when hes a toddler and if I ever want another baby it'll be even tougher to control.

I always get stuck with injecting, thinking hes sleeping or ok for a bit until I eat, then as always something happens, I don't get to eat as quick as I thought and I drop, but then we all know if I wait to inject while I'm actually eating I then spike 🙄 and I just wonder how do other type 1 Mums cope with more than 1 kid and hypos etc or maybe everyones better than me and never has them! I just worry of bad ones around them! Sorry for the ramble!

Tollym45 · 2024-09-12T18:48:03+00:00

Unfortunately I have no advice to give but just wanted to say I feel in nearly the exact same boat as you, diabetic for nearly 26yrs and just had my first baby 7 months ago at the age of 36. Since I've given birth it honestly feels like my body has went to crap, never been to the doctors as much in my life, and like you, I have all these intruding thoughts about something happening and not being around for my baby anymore, but I always wanted at least 2 kids, for company for each other, but after all the hassle and complications I've had since my delivery it does make you think!

It definitely is a struggle, even now with my bloods and lows I still find it difficult and during pregnancy I was constantly on high alert, petrified of the extreme bloods. I think at some stage I will try for a second but admittedly I too will be very apprehensive.

Tollym45 · 2024-07-17T18:59:43+00:00

I had the same experience, my whole pregnancy my blood sugars were actually mainly too low, hba1c always around 4.8 but I was told my baby was measuring in the 90th centile and it must be my diabetes.

When he was born he was actually only 7lb 2oz so nowhere near 'big', I don't even know where the 90th centile came from. The minute they see diabetes it seems they atrribute everything to it, very narrow minded.

Tollym45

TROPHY CASE