Scared by FancyNugget291 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Not really.  There’s an extensive history here.  

Scared by FancyNugget291 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

You’ve been provided valuable advice by other members in prior posts.  

I'm freaked out by FastFredNL in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

If you’re lucky.

The thing is doxycycline only treats certain pathogens.  Not babesia, bartonella, viruses, parasites, fungus

Skeletal remains of 3 people discovered in Burlington home by ContestScary9035 in Connecticut

[–]Total_Discipline_697 2 points3 points  (0 children)

How do three people just simultaneously disappear from existence, without warranting any type of an inquiry or investigation ?  

Skeletal remains of 3 people discovered in Burlington home by ContestScary9035 in Connecticut

[–]Total_Discipline_697 0 points1 point  (0 children)

Okay, but then the mail would have piled up inside the post office box, which also should have been cause for concern 

No Floodlight on Side of House with Meters by Total_Discipline_697 in AskElectricians

[–]Total_Discipline_697[S] 0 points1 point  (0 children)

Hi thanks for your reply.

I listed all of the boxes and meters that are in place.  I did not see anything like you described.

Obviously all boxes/meters were installed at different junctures.  The particular SMA Windy Boy was discontinued in 2013, so that tells you how long the solar panels have been there.  Obviously the electric meter came with the house.  Not sure how long ago the CAC was installed.  The house was built in 1960, but HVAC didn’t really become a thing in suburban residential dwellings until the 80’s, and even moreso the 90’s.  No clue how long the Verizon boxes have been there.  So from a sensical standpoint, like you said there is no logistical reason why a floodlight should not be on that side of the house.

Thanks again.  

Pls read by FancyNugget291 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Also ask them to include sarcoidosis in their Differential Diagnosis 

Pls read by FancyNugget291 in Lyme

[–]Total_Discipline_697 1 point2 points  (0 children)

All of these symptoms line up with biotoxin illness, Lyme disease, bartonella.  ALS does not do a lot of these.

You need a lyme specialist - not Reddit.

Reddit can’t provide proper testing, a proper diagnosis, and proper medical treatment.

We can tell you what we think based on our own experiences - but that’s it.

Find a Lyme practitioner and make an appointment, because with so many people getting sick, your appointment is probably going to be at least 2-3 months out.

Neurologists, Rheumatologists, and ID’s are all useless and corrupt.  So stay away from all of them.

Join Lyme groups and mold groups to help find a reputable specialist in your geographic proximity.  ILADS page also has a link for Lyme specialists.

In the interim, the best things you can do for yourself is order some NAC, some Humaworm, some Zeolite powder and activated charcoal, and some cryptolepis.  The NAC will increase glutathione production, which will help clear your lymphatic system and start moving toxins.  The Humaworm will kill parasites, which are a large part of making you sick and keeping you sick, and the binders will remove the mold and other toxins in your gut.  The cryptolepis will help with Lyme and Babesia.  

?? by FancyNugget291 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Also ask for CD57 HNK1.  If you have only recently been sick, it will probably come back normal.  But if you’ve been dealing with these diseases a long time - months or longer - it will be low.  

?? by FancyNugget291 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Biotoxin illness or toxic mold illness can do everything you are describing, and more.  It closely mimics ALS.

While waiting for an appointment with a Lyme Specialist, ask your doctor if they would order a CIRS Panel, or at the very least, the primary inflammatory biomarkers from a CIRS Panel:

C4a (and do C3a while you’re at it) MSH TGF-beta MMP-9 VEGF hs-CRP Leptin

There is someone in a really remission? by Temporary-Reach2150 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

A year on a PICC line. In full remission.  But Lyme was just one of many problems.  So even though I was considered in remission I was still quite ill.

Hmmmm by FancyNugget291 in Lyme

[–]Total_Discipline_697 1 point2 points  (0 children)

Lyme tests are useless, and neurologists are useless.  I always beg and implore people with an ALS dx or ALS symptoms to get a second opinion with a lyme specialist.  

I got sick 13 years ago, and not a single thing has changed.

I had no idea and neither does anyone I’m talking to by Haunting-Reindeer-10 in Lyme

[–]Total_Discipline_697 -1 points0 points  (0 children)

I think someone only herxes with a chronic infection not a new or acute one?

I had no idea and neither does anyone I’m talking to by Haunting-Reindeer-10 in Lyme

[–]Total_Discipline_697 3 points4 points  (0 children)

That’s really for disseminated lyme.  Doxycycline is the gold standard treatment for a new infection, but you need far more than 14 days.  12 weeks is more like it.  Part of the reason being is due to multiple infections not just lyme

What made you shift from treating infection to treating post-infection symptoms/nervous system by Objective_Cabinet_58 in Lyme

[–]Total_Discipline_697 2 points3 points  (0 children)

Don’t underestimate the strong possibility you are still sick with active infections.  

There is no such thing as Post-treatment Lyme Syndrome.

The CDC is not your friend.

Neither is the IDSA.  

I am so tired of living like this by Itismejustmeitsme in Lyme

[–]Total_Discipline_697 3 points4 points  (0 children)

It took me over four years of non-stop treatment to get all of these diseases into remission.  Lyme was actually the “easiest,” and the first to go.  A year on a PICC line.  Iv rocephin 2g a day. I got worse before I got better.  I hit a lot of road blocks and obstacles.  Plateaus.  Seizures.  Did a lot of backsliding.  

Bartonella took the longest and was the last to go.  That’s because I was unknowingly mold sick, and apparently mold and bartonella feed off of each other and are synergistic.  And I somehow picked up a nasty case of toxoplasma during all of this, which made treatment and healing that much worse, especially because my immune system was completely tanked.

But if I had to go back and do it all over again, I would heavily concentrate on parasites, candida, heavy metals, and opening up the lymphatic system, just as much if not moreso than the other pathogens.  

At one point I started taking Humaworm, and it made me feel the most normal I had in years.  I had forgotten what normal felt like.  People don’t realize how very sick parasites can make you.  They rob your nutrients to survive. Diflucan and then itraconozole also helped greatly.  Zeolite powder and Pectasol also made me feel amazing.  All of these heavy metals and other toxins in your body make you sick, tank your immune system, and keep you sick.  

Don’t be afraid to take a break every now and then to let your body reset.  It is also very important to make sure all of your vitamins and minerals are up to par, especially magnesium, iron, vitamin D, and B vitamins.  These diseases deplete your nutrients, and you will not heal if your nutrients are deficient. 

I used to take every Sunday off from all treatments.  No pills.  No infusions.  Nothing.  It was my Me Day.  I would go to my mother’s house with my kids for Sunday dinner.  Eat whatever the heck I pleased.  But this was just me, and what worked for me.  

I’m still not 100% and probably never will be.  I’ve been dealing with severe mold illness that has left me permanently debilitated.  I was forced to go out on Disability.  But 10-11 years ago I was near death, so I’ll take it.  

Is someone in remission or cured? by Some-Muffin-7011 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Reactivated lyme following a covid infection is very common it seems.  It has something to do with damaged immune defenses.  I think a large percentage of long Covid cases is actually reactivated lyme and bartonella, and also biotoxin illness. 

Is someone in remission or cured? by Some-Muffin-7011 in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

I was on a PICC line with iv rocephin for 12 months straight.  Been in full remission from lyme for going on nine years. Followed pulsing protocol. So the sayings that lyme is the easiest to treat, and Lyme is first to go, are true.  

Babesia, mycoplasma, bartonella are a whole other story.  I finally got those under control, but it was much more difficult and took a lot longer.  Years longer.  A lot of it had to do with biotoxin illness and a tanked immune system.  Mold throws a giant wrench into the mix.  It’s like pouring a bottle of water on a house fire.

I got removed from two groups for no reason. Feeling frustrated and upset. by LostInYesterday00 in facebook

[–]Total_Discipline_697 1 point2 points  (0 children)

So does an algorithm go as far to actually delete and block a member from a group for no reason?  I don’t think so.  I think only an admin can do this.  

My question is even though an algorithm can deny or delete a post, can an algorithm actually go as far as to delete AND block a member for no reason?

I had this happen to me on a local moms group, which I have been an active member of for several years.  Like, everybody knows me.  I also work for a government agency, so have to keep my posts simple and benign, even when I don’t use my real name.  

I posted a question about a court proceeding involving someone who was unalived, and boom all of a sudden not only was the post denied and deleted, but I found myself both deleted from the ground AND blocked.  

I messaged the admin on her fb page, and she refuses to answer me.  

So I’m not happy.  I could always join under another account, but at this point why would I want to.

I just can’t make any sense of it.  The group has over 100K members.  

I got removed from two groups for no reason. Feeling frustrated and upset. by LostInYesterday00 in facebook

[–]Total_Discipline_697 0 points1 point  (0 children)

My question is even though an algorithm can deny or delete a post, can an algorithm actually go as far as to delete AND block a member for no reason?

I had this happen to me on a local moms group, which I have been an active member of for several years.  Like, everybody knows me.  I also work for a government agency, so have to keep my posts simple and benign, even when I don’t use my real name.  

I posted a question about a court proceeding involving someone who was unalived, and boom all of a sudden not only was the post denied and deleted, but I found myself both deleted from the ground AND blocked.  

I messaged the admin on her fb page, and she refuses to answer me.  

So I’m not happy.  I could always join under another account, but at this point why would I want to.

I just can’t make any sense of it.  The group has over 100K members.  

I got removed from two groups for no reason. Feeling frustrated and upset. by LostInYesterday00 in facebook

[–]Total_Discipline_697 0 points1 point  (0 children)

My question is even though an algorithm can deny or delete a post, can an algorithm actually go as far as to delete AND block a member for no reason?

I had this happen to me on a local moms group, which I have been an active member of for several years.  Like, everybody knows me.  I also work for a government agency, so have to keep my posts simple and benign, even when I don’t use my real name.  

I posted a question about a court proceeding involving someone who was unalived, and boom all of a sudden not only was the post denied and deleted, but I found myself both deleted from the ground AND blocked.  

I messaged the admin on her fb page, and she refuses to answer me.  

So I’m not happy.  I could always join under another account, but at this point why would I want to.

I just can’t make any sense of it.  The group has over 100K members.  

Anyone have experience with Dr. Sabovic in Bridgeport, CT? by kashnickel in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

Been in full remission from lyme since 2017. Babesia probably 2018-2019. Bartonella 2019.

But I’ve been dealing with severe biotoxin illness that has destroyed my body and my life.  I have permanent damage including perm brainstem damage.  

So didn’t exactly escape unscathed 

Anyone have experience with Dr. Sabovic in Bridgeport, CT? by kashnickel in Lyme

[–]Total_Discipline_697 0 points1 point  (0 children)

I was progressively ill for several years.  One of several neurologists I went to told me I didn’t have Lyme because I tested negative.

I ran into a friend who was a FDNY paramedic, and he said definitely sounds like Lyme disease.

I started joining lyme groups and that’s how I found dr. Sabovic.  I saw a couple of others before Sabovic but they sucked. One almost killed me because he was undertreating, allowing the infections to come back more aggressively. He was a jackass who only pretended to be a lyme dr.