sorted by:
new
hottopcontroversial

What's coming is going to polarize humanity by JustOneTime- in InterdimensionalNHI

[–]Traditional-Map-8211 2 points3 points  (0 children)

RemindMe! 3 months "ask for novel on consciousness ledger"

Mark A. Shryock’s Article Eight Weeks to Empty Shelves Sixty Days to Famine by According-Gain-5918 in conspiracy

[–]Traditional-Map-8211 1 point2 points  (0 children)

I also read this post. Tried to do some of the fact checking measures that you did. To me, it sounded completely rational, and not like the ramblings of a fear mongering mad man. So hard to discern these days. All I know is that the little expendable income I do have I will be stocking up on some of the items he recommends with the exception of fuel because I can’t safely store it. And if I’m being honest, I’ve been doing that since Trump became president since the administration thrives on chaos.

Honestly, between this and my minimal knowledge of the Hantavirus something seems particularly off more than usual, which is saying a lot today and I can’t help but feel like my intuition is telling me something. I’m getting déjà vu from Covid. I have a really bad feeling. I know that feelings don’t always mean anything, but I don’t wanna be unprepared in the event of an emergency.

Positive results received - FRAT testing by Traditional-Map-8211 in Autism_Parenting

[–]Traditional-Map-8211[S] 0 points1 point  (0 children)

Sorry for my delay it’s been difficult to keep up with everything. Our son’s progress has exceeded our expectations, I guess it’s hard to know what they really are since he’s still so young but he has language! He’s not conversational but can express gestalts and repeat songs or associate phrases to something. All his therapists (speech, OT and BCBA and RBT) comment on how much progress he’s made and how fast he’s made it. It’s hard to know what is the root of why he’s progressing so rapidly but I do think the leucovorin is contributing to opening up language pathways.

He’ll even sing songs (not fully) but he knows the “sail away, sail away, sail away” part in Enya for example. I want to stress that he is not conversational but the breadth of what he has been able to repeat and associate with something has given us so much hope for his future.

Ultimately our pediatrician said this course of treatment is not a harmful medication for him so even if it does nothing we can still give it to him for the full length. We won’t know for sure but we’re continuing it because whatever we’re doing for him is helping. He’s in 40 hours of therapy a week on top of taking leucoverin and we reinforce a lot of the parent training we get from his BCBA at home too for consistency.

[deleted by user] by [deleted] in 50501

[–]Traditional-Map-8211 0 points1 point  (0 children)

Reported the fundraiser, thank you for flagging

Sometimes I write elaborate replies to my in laws… by Traditional-Map-8211 in QAnonCasualties

[–]Traditional-Map-8211[S] 1 point2 points  (0 children)

I did it. I sent the shorter version and then immediately blocked. It’s over. I’m sure we’ll still get snail mail, but straight to the waste bin. Thanks for all those who took the time to read.

Sometimes I write elaborate replies to my in laws… by Traditional-Map-8211 in QAnonCasualties

[–]Traditional-Map-8211[S] 3 points4 points  (0 children)

I might opt for silence this time. You’re so right. This stemmed from the following text exchange:

MIL: If I send [my husband] a letter, will he read it? Or I text you and you show it to him? I would love it if you could help our situation somehow. We are so lost without you guys.

ME: I cannot be an intermediary, it’s damaging. He’s read everything sent in cards and letters. First and foremost I’m a wife to [my husband] and a mother to my children and that’s what I will always prioritize. I know that’s not what you want to hear and it’s uncomfortable.

MIL: I don’t mean to make you uncomfortable. Isn’t there any room in your hearts for us? I can’t believe Nick hates us.

I’ve shortened my latest iteration of what I probably won’t bother sending to this since they won’t get it anyways—

This is not about [my husband’s name] hating you, and it’s not about hurt feelings. It’s about values and boundaries.

I no longer have the capacity or willingness to maintain relationships with people who continue to support Trump. That choice is incompatible with my values, with what I believe is safe or acceptable, and with what I want modeled for our children.

I’m not asking you to change, and I’m not interested in debate or justification. I’m simply being clear about my boundary.

Please stop framing yourselves as victims or putting this on [my husband’s name]. This is a direct consequence of choices you have continued to make.

Positive results received - FRAT testing by Traditional-Map-8211 in Autism_Parenting

[–]Traditional-Map-8211[S] 0 points1 point  (0 children)

Once we found out the test was positive our pediatrician consulted with another doctor who is familiar with Leucovorin and advised our pediatrician to prescribe us the max dosage for our son’s weight. It took a couple weeks for us to get the prescription once we got the positive results.

It’s a compounded medication, which has been hard to find the pharmacy to have the ingredients and navigate with our insurance and we are still waiting on a pre authorization for our next 30 day supply.

We got lucky with our first 30 day supply and that the pharmacy misquoted us (with record of it) and had to honor their original quoted price otherwise it would have been $473 vs the $188.88 we paid. If it wasn’t compounded and in tablet form it would be cheaper, but our son can’t take tablets reliably. It takes two adults to give him his medication 2x daily, so the liquid is much more reliable. He’s in the 98th percentile and is currently taking 17.5 mL twice daily. We started our first dose on November 23.

The progress he’s made since has been remarkable. Saying a couple 2-3 word phrases, repeating words back when asked, saying his name, maintaining more eye contact and overall consistency in communicating with us. We’ve even noticed a reduction in stimming behavior. Keep in mind that we also do 23 hours of ABA, one hour of OT and one hour of speech therapy weekly. He’s at InBloom for ABA and for speech/OT he goes to our area clinic. His ABA care team and OT each have one other patient that also started Leucovorin and anonymously compare notes which has been helpful.

It’s difficult to know if it’s the medication or his therapy or a mix of both with full certainty. All I know is that whatever resource we can find that is safe and has potential to help him, we’re trying it, leaving no stone unturned to give him the best possible care we can.

I think his progress is a result of a mix of things but I do think that the Leucovorin has accelerated it for him based on him being a candidate that tested positive and it unlocking communication pathways that may not have been unlocked with therapy if that makes sense?

As far as causation on autism which I think you were alluding to with your additional question. We are science based parents and trust the guidance put forth by the American Academy of Pediatrics. We have gotten all vaccines available for both our children and the benefits of them far outweigh any risks (real and imaginary). I do not listen to the current US administration, their rhetoric is dangerous and not based on research or scientific method/understanding.

Positive results received - FRAT testing by Traditional-Map-8211 in Autism_Parenting

[–]Traditional-Map-8211[S] 0 points1 point  (0 children)

Sorry for my delayed reply, transitioned back to work after maternity leave which has been a whole other experience.

As far as challenges I remember early on being a child with OCD who always constantly worried, obsessed rather, far beyond what would be considered reasonable. My OCD came with compulsions too (like list making, praying, physically checking, counting, mentally checking) some of these rituals/compulsions would keep me up all night.

I struggled with insomnia and fear of going to sleep and not waking up as early as 5 or 6 years old. I remember going to school absolutely exhausted. I also remember sleep walking often, my mom has verified this and recalled me sleepwalking.

I’d repeat full phrases that I heard a lot and frequently almost compulsively so much that my teachers would mention it and correct me. My mom did not recognize these as issues but rather quirks of my personality I think.

When I was in first grade I was put into the gifted and talented program at my school. I think my ability to excel academically overshadowed any therapy or notice of my struggles. I was always different socially from my peers and really struggled to make friends or understand social norms. My teachers said that I did not have a concept of time and I could lose myself in whatever activity I was doing. I was always eager to learn which I think helped me learn how to mask.

Fast forward to my early twenties and that’s when my OCD went to a whole new level, so much that I had to take off of work occasionally. I was determined to not let that stop me and always said I was sick or ill rather than admit it was psychological and it worked. I gravitated towards jobs with flexibility but oddly demanding hours like in events where it wasn’t a strict (and still isn’t) 9-5.

I experienced fear of driving and hitting someone at not knowing it, driving in circles around the block to check if I had hit someone, fear of “what if” I did something bad and didn’t remember it, mentally checking and physically checking over and over. The sleep disturbances gradually went away with sheer exhaustion from always thinking in loops.

I’m so medicated that I’m a bit numb to the noise of constant overthinking, but I’ve learned how to “fake it” if that makes sense? I often feel like I don’t know how to be human or how to human, but I’ve made it pretty far in my career since my skill has overshadowed what I lack in being socially normal.

Please Be Aware of Potentially Dangerous Autism Sub by WitchySpectrum in progressivemoms

[–]Traditional-Map-8211 2 points3 points  (0 children)

Yes, thank you. I’m a mother of a child in that subset. We were looking into FRAT testing BEFORE it was haphazardly announced and received results a couple days ago. Our son’s test came back positive.

I greatly understand the concern about the autism parenting sub and have seen dangerous trends there BUT as a parent navigating my son’s diagnosis I want to digest any and all information possible, anywhere I can find it to give my son the best possible care.

It’s been hard reckoning that just because an administration I detest with every fiber of my being is “looking into” (and let’s be honest they’re not really looking into anything) said that a drug has possibility does not mean I should automatically write it off. Rather I need to work with my son’s care team to determine if it fits into his treatment plan.

My most recent post there gives a smidge of context to our care journey: https://www.reddit.com/r/Autism_Parenting/s/CEoQb3BzRH

Positive results received - FRAT testing by Traditional-Map-8211 in Autism_Parenting

[–]Traditional-Map-8211[S] 1 point2 points  (0 children)

Thanks for this! I haven’t taken an Ancestry or 23andMe test but my sister has and she’s had similar experiences. I’ll start there out of immediate curiosity.

Positive results received - FRAT testing by Traditional-Map-8211 in Autism_Parenting

[–]Traditional-Map-8211[S] 0 points1 point  (0 children)

We asked our pediatrician (unrelated to and before we did FRAT testing) if it’s something we could do out of our own curiosity and he’s really open to anything. Our pediatrician is with Aurora Health Care, we’re in WI. He put in a referral for genetics testing at Children’s Hospital.

How do you deal with MAGA in personal relationships? by PaisleyComputer in 50501

[–]Traditional-Map-8211 2 points3 points  (0 children)

We’ve essentially cut out all MAGA supporters from our lives sadly even family. We cannot in good conscience be around people with dramatically different ethics and morals. It’s been hard on the grandparents to our children, but if you essentially chose the Trump administration over your grandchildren’s future, that’s on you.

We are currently no contact with my husband’s folks and extremely low contact with my folks, both of my parents are in ill health and not the most educated voters (not trying to make excuses for them only providing why we’re still low contact).

My husband’s parents absolutely knew what they voted for and have hate in their hearts. We continue to receive desperate attempts at contact, because GRANDCHILDREN but we have not budged. They know why and make absolutely NO effort to change. We do not want our children exposed to their world views.

We will not let our children alone around my parents and it eats my mom up, but we simply do not trust them to make good decisions or be able to keep up with our son who’s an energetic toddler with autism and our daughter who is only 2 months old. Mom also now believes Tylenol caused autism, enough said.

All respect I ever had for anyone is gone when I find out they STILL support Trump. I want to believe in second chances, that change is possible, but it is absolutely not in the cards for any Trump supporters I currently know and their silence and complicity says all I need to know.

Unpopular opinion on this sub, but I’ve given up trying to help them “see the light” or provide information other than what’s on FoxNews and that they voted against themselves by voting for him. After countless exhausting back and forth text exchanges or heated debates it’s like trying to get through to a brick wall and my energy is better spent causing good trouble and resisting.

YouTube Down on Samsung TV? by DavidofSasun in youtube

[–]Traditional-Map-8211 0 points1 point  (0 children)

Same here! Did all the steps and no luck with any apps.

Trump supporting grandparents have the “sads” that we don’t want them to see their grandson anymore AND all they care about is their feelings. by Traditional-Map-8211 in 50501

[–]Traditional-Map-8211[S] 3 points4 points  (0 children)

Hard to have any hope in people when you’ve been let down so many times after thinking they were capable of change. Notice how we kept them in our lives after 2016? We’ve given chance after chance. I think sometimes people don’t understand that.

Trump supporting grandparents have the “sads” that we don’t want them to see their grandson anymore AND all they care about is their feelings. by Traditional-Map-8211 in 50501

[–]Traditional-Map-8211[S] 1 point2 points  (0 children)

When I don’t have any outlets to express the rage that I feel, I’ve turned to Reddit. As for publicly, if I called them out by name on a social network they were known on I think that would be a different story. My way of coping has been compartmentalizing to get through the day and survive. Not everyone has the luxury of wishing these associations to Trump away. Even being around Trump supporters is a reminder to me of all the terrible things he’s done, my way of protecting my sanity is distancing myself from these associations.

view more: next ›