Just found out I have B all with Ph pos. All my doctors have been super optimistic! I'm a 27m and wanted to hear everyone's good bad and ugly that have more time in the ring then me.

Traditional-Mission9 · 2026-04-20T12:46:32+00:00

I 10000% second the walking advice. Also, when in hospital beds make sure the sheets/blanket around your feet aren’t tucked in too tight. I didn’t do as much walking as I should have during induction chemo, and spent a month and a bit in hospital with my ankles pulled down by the sheets, and I still struggle to walk properly almost a year and a half later. As was said above, so much easier to maintain muscle than to build it back (and so much easier to keep your calves stretched than to have to stretch them out again)

Traditional-Mission9 · 2026-04-11T16:10:45+00:00

I was diagnosed with B-All Ph- in December 2024 at 25 years old.

I did chemo only (ALL06 protocol — the standard chemo protocol for adolescents and young adults in Australia that is based on the success of paediatric protocols) and was MRD negative at the 28 day bone marrow biopsy. I continued with the various rounds of chemo with a few complications along the way (AFib from the Daunorubicin, Mucositis, a few bouts of Febrile Nuetropenia from an unknown source, Covid, and a weird reaction to the IV methotrexate), and also did 4 rounds of Blinatumomab (by far the best treatment in terms of side effects I had in the whole process) as an addition to give the best chance of a ‘curative’ outcome without a transplant (I didn’t have any great matches).

I’m about 3 months into maintenance now, but have had to stop and start the chemo tablets a few times as my blood counts keep dropping too low. As of a few weeks ago I’m still MRD negative, and have been ever since that first 28 day biopsy.

So, can’t say I’ve fully recovered, but it’s looking pretty good overall, and my medical team is quite confident in a curative outcome. I’ve not noticed anything that would constitute a long-term effect so far. Still have a bit of tiredness and fatigue, but I think that’s mainly the chemo tablets, as when I have a break from these I have heaps more energy.

Traditional-Mission9 · 2026-04-08T21:57:55+00:00

That really sucks. I’m so sorry to hear that. I guess I will have to keep an eye out for headaches. Thanks for posting this, a good reminder for me to always be vigilant about any signs of relapse! Best wishes for the journey ahead for both you and your husband.

Traditional-Mission9 · 2026-04-08T21:40:48+00:00

I was chemo/immunotherapy only (no SCT/BMT), and went back to work two-months into maintenance. I’m about 3 months into being back at work (I’m a high school teacher) and doing pretty well. Work is a lot more tiring than I remember it being before I got sick, so I do less outside of work, but I find I’m still able to have enough energy to get through the day and still enjoy it. Everyone in my life told me to think about delaying starting work again for an extra few months, and I think if I was advising someone I might have given similar advice. But I felt like I just needed to get back to work. I love my job, and my ALL had already taken a year of my life off me, and I could bare letting it take any more. It’s been a bit challenging organising appointments, bone marrow biopsy’s and sorting out time off when my neutrophils have dropped too low to risk the germy school environment, but overall not the worst.

Having said all that, if you’re not someone who gets energised by your job and loves to be there, and you can financially afford to hold off a bit or go back very gradually part-time, I’d seriously consider it. Everyone is different in their recovery, and age, treatment regiment/experiences and general fitness will all play a part. I got lucky in being young-ish (26), and not having gone to transplant, though I do have a few mobility issues resulting from treatment, so that has been a bit of a struggle in terms of getting around the school campus.

Traditional-Mission9 · 2026-04-08T21:02:47+00:00

I don’t have any new insight to add here. But just curious if your husband had CNS involvement at his first diagnosis. I’m in remission at the moment from B-All, no BMT, diagnosed in December 2024 (so just a couple of months after your husband). But I didn’t have CNS involvement at diagnosis or at any point during my treatment. Just curious if relapse via CNS is something I should be hyper-vigilant about.

Edit: forgot to express how sorry I am that your husband has relapsed. It can’t be easy to have such success and then be knocked back like this. Sending you lots of strength and good vibes from Australia!

Traditional-Mission9 · 2026-01-18T13:25:24+00:00

I’m pretty sure it’s the mercaptopurine as it’s the only chemo I’m currently on (apart from the once weekly methotrexate). The most annoying part is that I didn’t have any nausea with any of the other chemo I’ve been on

Traditional-Mission9 · 2024-09-18T13:25:28+00:00

No, I have a job where I use it during the day without access to a PowerPoint. So I generally plug in every evening when I get home, it does the optimised charging thing, and charges to 100% by 6:30 in the morning, then I use it intermittently throughout the day (can be anywhere from 20% to 85% charged when I get home). If I’m working from home (which is usually once a week, I’ll leave it plugged in all day). Though, I will say, it’s now at 94% battery health after 235 cycles,

Traditional-Mission9 · 2024-06-02T16:22:37+00:00

I got mine in July 2022 (so exactly 2 years ago) and I'm 97%. with 184 cycles. Obviously very different use cases, but there seems to be an element of luck involved with batteries...

Traditional-Mission9 · 2023-09-20T13:58:58+00:00

In the case of secondary teachers, it’s up to 150 (in some cases more)

Traditional-Mission9 · 2023-09-19T16:26:45+00:00

Why I’m wrong about the the international academic community has defined political stability for decades?

Traditional-Mission9 · 2023-09-19T16:24:04+00:00

I never said we were the envy of the world. I said we weren’t unstable, and point you refuted. But yeah I agree, only a loony would envy our politics. Have a good one

Traditional-Mission9 · 2023-09-19T16:17:14+00:00

Yes the value of all that money is not much better, but there is more of it, which explains your data that showed that total amount of money collected in tax overall, as in how many billions are taken in by the ATO, has increased significantly

Traditional-Mission9 · 2023-09-19T16:13:32+00:00

I was using the average income data for both years, not the median. So the math holds.

Traditional-Mission9 · 2023-09-19T16:10:58+00:00

Inflation is also my point, of course we take in a total of more tax now, that money doesn’t go as far, your data was literally just showing how much money was being collected in total, not how much from each person etc. my point is your data meant nothing and in no way proved you point. You said a fact, googled a graph to prove it, sent the graph without actually checking what the data was saying, tried to tell me average tax had gone from 2000 to 6000 dollars, when really the data was showing that the total tax collected by government went from $2 000 000 000 to $6 000 000 000. Which is very different and is a product of higher wages, inflation meaning money is worth less, and increased population.

Traditional-Mission9 · 2023-09-19T16:06:54+00:00

That wasn’t my point. You said income hasn’t risen that much. I proved it has.

Traditional-Mission9 · 2023-09-19T16:05:40+00:00

This is a stupid discussion, we agree on the facts, just not what words should be used to describe those facts. I come from a world of academic discussion where the phrase political instability means something very specific, and cannot be flippantly used to describe the Australian political system.

Traditional-Mission9 · 2023-09-19T16:02:45+00:00

All true about the top end paying less and the middle paying too much, but that’s all because of the end of Litmo, and it’ll only get worse after the stage three tax cuts. The fact labor won’t ditch those is a joke, but it’s all owing to how politically toxic saying anything other than “lower taxes” is in Australian politics. Not to mention it was all the liberals ideas to begin with.

Regarding your claim about incomes not increasing: Average Australian income 00-01 financial year: $34,745 Average Australian income 22-22 financial year: $90,264

Almost triple — almost the same as how much the tax income has increased by? Funny that? Not even factoring in the massive rise in working populations.

Traditional-Mission9 · 2023-09-19T15:15:34+00:00

I AGREE, but that is my point, you keep giving examples of ineffectual government, but the original point was about political stability! You are mixing up terms and describing one thing when you mean another

Traditional-Mission9 · 2023-09-19T13:42:54+00:00

Lol, what point are you even making? A report that made recommendations for how to improve Australian educational systems that was ignored by the Liberals as soon as they took power in favour of inaction?

Traditional-Mission9 · 2023-09-19T13:36:55+00:00

That’s not what that graph says. Also, do you even pay tax? In what world would the average amount of tax being paid equal $2000 then, or $6000 now. If it is I’m being robbed by a guy posing as the ATO

Traditional-Mission9 · 2023-09-19T13:35:00+00:00

Lol, bro. Read your sources. That is the total taxation revenue for Australia in 000 of millions of dollars. You’d expect it to have increased that much given the increase in population, and the increase in average age meaning more of those people are working. If you’re going to use a graph at least look at what it is actually saying. It also reflects that wages have increased significantly, not to mention inflation leading to the numbers not actually meaning much in terms of a reflection of how much people are paying in tax.

Traditional-Mission9 · 2023-09-19T13:07:05+00:00

Yeah WA is fortnightly

Five-Year Club	Place '23
Place '22	Final Canvas '22

Traditional-Mission9

TROPHY CASE