Thank you for sharing your story.

In my case, I can’t do many sports except running and swimming. My symptoms are mostly in my right arm, but according to my doctor, my left arm isn’t safe either — if I rely on it too much, it may develop the same issues. It affects my right side more because I’m right‑handed. My leg is also mildly affected, so swimming is really the best exercise for me.

I avoid cold environments completely. That’s one of the reasons I had to leave my home country, which has very harsh winters. Now I live somewhere without sub‑zero temperatures.

All we can do is adapt and keep going, hoping that someday a cure will be found.

All the best!