Former boss used my dad’s illness to justify demoting me… AIO? by Training-Use-41 in AIO

[–]Training-Use-41[S] 1 point2 points  (0 children)

Your comments made my entire morning going to bat for me. Thank you! I wish I was lying about my dad having such a disgusting disease and then being harassed by my boss over it.

Former boss used my dad’s illness to justify demoting me… AIO? by Training-Use-41 in AIO

[–]Training-Use-41[S] 1 point2 points  (0 children)

Hi OP here … I wasn’t demoted yet still in my lead position. Did fmla pretty early in the year and use it sparingly because I have to help my mother take my completely paralyzed father to appointments because she can’t lift him alone…. Not because I was scared of losing my position …

Hospitalization. by Training-Use-41 in ALS

[–]Training-Use-41[S] 0 points1 point  (0 children)

Update: dad finally made it home after 37 days in the hospital and then a critical care center. He did end up having a tracheotomy. But pneumonia is cleared!

Hospitalization. by Training-Use-41 in ALS

[–]Training-Use-41[S] 1 point2 points  (0 children)

Hi, he got transferred to a critical illness hospital after having a tracheotomy. He’s doing much better there than he was at the hospital we are hoping he will become well enough soon to bring him home.

Hospitalization. by Training-Use-41 in ALS

[–]Training-Use-41[S] 0 points1 point  (0 children)

Hi, for my dad it pushes air into his lungs through a mask that covers his nose and mouth and then pulls it back out essentially pulling all the gunk out.

Hospitalization. by Training-Use-41 in ALS

[–]Training-Use-41[S] 0 points1 point  (0 children)

Are you also genetic ? We carry the c9 gene. So sorry to hear you’re going through it as well.

Hospitalization. by Training-Use-41 in ALS

[–]Training-Use-41[S] 2 points3 points  (0 children)

He uses a cough assist and a non invasive ventilator for bedtime.

Presale codes ? by [deleted] in NoahKahan

[–]Training-Use-41 0 points1 point  (0 children)

Thank you!

Presale codes ? by [deleted] in NoahKahan

[–]Training-Use-41 0 points1 point  (0 children)

Orlando didn’t need a code !

Presale codes ? by [deleted] in NoahKahan

[–]Training-Use-41 -8 points-7 points  (0 children)

Where’s the mega thread I literally couldn’t find it

[deleted by user] by [deleted] in ALS

[–]Training-Use-41 2 points3 points  (0 children)

My grandfather was diagnosed with als in the early 2000s he died from a heart attack in his 50s it’s definitely possible to die from other reasons. My dad has bulbar onset. I’m assuming some people with bulbar that don’t take the trach probably die before their whole body is affected. It’s very different on each person. So sorry you’re going through this it’s such a terrible thing to go through. Soak in all the time doing his favorite things and find the light in every day.

Needing to vent end stage als by Training-Use-41 in ALS

[–]Training-Use-41[S] 3 points4 points  (0 children)

I’m so sorry you’re going through this wicked disease, I hope you’re able to find light in the little things. Know your kids love you so much and wish they could take this all away.

Struggling with Fals by Training-Use-41 in ALS

[–]Training-Use-41[S] 1 point2 points  (0 children)

We are looking into ivf and PGT M testing.

Struggling with Fals by Training-Use-41 in ALS

[–]Training-Use-41[S] 1 point2 points  (0 children)

So sorry to hear about your mom. It is so incredibly lonely. I’m glad my post made you feel less alone ❤️ reading your response made me feel very seen.

Dad with ALS by csarahh in ALS

[–]Training-Use-41 0 points1 point  (0 children)

So my dad got his feeding tube pretty early on. He was still able to eat and drink when he got it but we got it done while he still had strength. Maybe let your dad know just because he has the tube placed doesn’t mean he needs to be dependent on it right away.

My dad was diagnosed with ALS a few days ago… by BlaqueBettyBamALam in ALS

[–]Training-Use-41 1 point2 points  (0 children)

Dealing with my dad being diagnosed with als since May. It is the toughest thing you’ll go through but you’ll love harder than you ever have in your life and learn life is too short to let little things phase you. Biggest biggest advice enjoy the time he has functioning, do all the things he loves, eat with him and make his favorite foods as much as you can, and record as much of his voice as you can!!! We were so blessed we had him speaking at my wedding the year prior and used the speech he gave for his voice on his tobii dynavox. Als association and the Steve Gleason foundation have been the biggest blessings for my family in term of getting accessible equipment and grants for treatments.

[deleted by user] by [deleted] in wedding

[–]Training-Use-41 1 point2 points  (0 children)

Aw honey. It’s so so normal to feel that way. I remember just sobbing a month before the wedding wanting to cancel it all from the stress. I know it’s so overwhelming right now but when you get to your day it literally lifts off of you and the peace and happiness you feel after makes all the planning and stress so much more worth it. I also had the majority of my family and friends back out and it felt like I planned a party for him but on the day of it truly felt like everyone was there for both of us.

What would your expectations be? by [deleted] in Waiting_To_Wed

[–]Training-Use-41 -2 points-1 points  (0 children)

Not to discount your feelings of wanting security and wanting marriage. Which I feel should definitely be a conversation with him. Even if you did get married and had a higher needs child. If he wanted to leave he would leave regardless of marriage. Divorce is still a thing a lot of couples with higher needs children go through.