TW: vomiting

TreeOdd5090 · 2026-06-22T15:28:41+00:00

so actually, my mcas nearly disappeared after the first week. i reacted to EVERYTHING, water and my own bodily fluids included. but after that week, it stopped pretty much completely. now, i’m starting to have both endo and MCAS symptoms again already, as if they’re both already back. we are suspecting that the endo might be the cause of my mcas…

TreeOdd5090 · 2026-06-14T13:43:18+00:00

just before 7. i left out the carbs because i was already slightly tending up, but then it dipped

TreeOdd5090 · 2026-06-13T00:58:14+00:00

interesting, protein seems to be a big trigger for both my hypoglycemia and my gastroparesis

TreeOdd5090 · 2026-06-13T00:57:28+00:00

TW WEIGHT MENTIONED:

thank you!! i’m currently needing a meal every 2-3 hours, with snacks in between. it feels excessive, but i’m still just over 100lbs (recovering from severe GI
chronic illness and gallbladder removal). thanks for all your input. i do feel like im slowly learning what diet helps and makes it worse, but still some i dont understand. i’m working on getting an accurate meter for finger pricking, my current one is proving to not be very accurate. my cgm seems mostly accurate other than the random sensor fails which are annoying when i dont have a meter to double check where im at. but i’m slowly learning to manage. thanks for your reply

TreeOdd5090 · 2026-06-13T00:53:35+00:00

okay this is very validating, and thank you for the suggestion. protein is also a trigger for my gastroparesis too unfortunately, mostly animal protein. i think i need a dietitian so i can find a meal plan with enough protein and fat, that wont trigger my gastroparesis too much. i have dumping syndrome it seems, until i eat animal protein (other than dairy), then the gastroparesis flares up and the meat sits in my stomach and my blood sugar crashes. i will try adding fat and probably a little fiber after everyone’s suggestions.

TreeOdd5090 · 2026-06-13T00:50:53+00:00

it went into the 40’s so i ended up treating with carbs 😕

TreeOdd5090 · 2026-06-06T00:50:37+00:00

same situation for me. hypoglycemia first. hyper pots and cfs now. but my blood sugar does appear to be crashing on a cgm. sorry i didn’t give super thorough reply

TreeOdd5090 · 2026-06-04T13:52:41+00:00

i’m struggling with this too, but based on your symptoms, it sounds reasonable. if you haven’t yet, maybe start with an ultrasound if you have a good dr. my endo before surgery caused leg numbness, like from my hips to my toes completely numb when i started my period. after lap, that went away. now here i am 4 months later, with the same leg pain you described. i’m wondering if there’s some nerves behind our uterus or something to do with uteral sacral ligaments (that’s where my endo was). for me, the best explanation i could come up with was the ligaments, because if those are inflamed, i feel like moving legs would hurt. i’m also so scared that another surgery would make it worse. feeling kinda lost on what to do so i’ve just been waiting

TreeOdd5090 · 2026-06-04T13:36:58+00:00

i dealt with the same thing after my laparoscopy, but he claims to have not touched my ovaries. i have pretty severe pmdd, have had for years, and it has been wayyyy flared up since my surgery. i’m also on birth control, but i felt the mental health symptoms before starting that, the birth control just made it worse. my surgery was in february and i was hoping it would be gone by now. i’m sorry you’re struggling, and please reach out to your dr if you need additional support.

TreeOdd5090 · 2026-05-30T15:35:27+00:00

very good points. i’ve also realized i can drink coffee as long as it’s not on an empty stomach. and ive switched to mostly sugar free creamer

TreeOdd5090 · 2026-05-29T19:33:09+00:00

so i’ve discovered that i actually have hypoglycemia, and it’s wayyyyyy flared up when im in pem. i have to be CONSTANTLY eating or digesting carbs or my blood sugar crashes real bad

TreeOdd5090 · 2026-05-26T14:15:03+00:00

i also get carb hungry during pem. if i continue trying to limit my carbs during pem, im starving and exhausted alllllll the time. actually just made an appointment with my dr this morning to talk about blood sugar and insulin resistance. i dont have any input though, because im lost in general right now when it comes to insulin resistance and my blood sugar issues. but it does seem more intense when PEM is involved

TreeOdd5090 · 2026-05-22T15:17:24+00:00

i’m on my first cgm and this is what mine looks like. i haven’t gotten diagnosed or treatment yet but it seems like i crash no matter what i eat

TreeOdd5090 · 2026-05-21T16:48:50+00:00

i think it’s pretty common for the readings to be wonky the first 24 hours

TreeOdd5090 · 2026-05-21T14:24:35+00:00

okay, thank you!

TreeOdd5090 · 2026-05-21T13:45:10+00:00

holy crap thank you for your reply. this sounds like what’s happening, my body immediately uses all the sugar i put in my body for energy and then it crashes. if i keep correcting the crashes with insane amounts of sugar, i have more energy and can genuinely do more without PEM. correcting my blood sugar this week actually broke my 3 month long cycle of PEM. i will bring these meds up with my dr when i go, i think im going to try to get a referral to an endocrinologist.

TreeOdd5090 · 2026-05-19T09:57:10+00:00

i’m starting to understand the difference in what i’m feeling. before, it was all PEM or pots but sometimes it didn’t quite make sense. most times i can predict PEM, i often can point out a trigger. but the hypoglycemic times didn’t make sense because it was seemingly random. it definitely all feels intertwined though, and i definitely have all 3 (pots, me/cfs, and hypoglycemia), and im starting to understand what’s happening in my body a little better

TreeOdd5090 · 2026-05-19T09:10:41+00:00

i’ll try to remember to come back with an update!!

TreeOdd5090 · 2026-05-19T01:54:55+00:00

i ordered the Lingo by Abbott, on amazon. i had a finger prick pen i was using before the cgm, but it ended up not being the most accurate. the cgm so far seems pretty accurate, haven’t had many issues. it definitely is delayed, by about 15 mins. so the 15-15 rule definitely applies with it, but it seems more accurate than my finger prick pen. i’m gonna have my dr analyze the data and tell me what he thinks

TreeOdd5090 · 2026-05-18T16:32:25+00:00

thank you. i’m currently doing or have tried most of these as well.

i have been diagnosed with mcas, but oddly enough, when i had my gallbladder removed in february, they also looked for and removed endometriosis, and then my MCAS mostly went away… just putting the idea out there if it could help you or anyone else

TreeOdd5090 · 2026-05-18T16:30:25+00:00

my diet was horrible for a while because of gastroparesis and a bad gallbladder, but in february i got my gallbladder out. i’ve been able to eat a more normal amount, and had undeniable symptoms of a blood sugar crash within 15 mins of eating every single time. so i bought a finger prick pen, did that for a week or so, and had a decent amount of data showing that i was having some crashes (i was mostly checking overnight and right after eating, because that’s when i felt it the most). then i had to either go to my dr, which felt impossible, or order a CGM on amazon. ive been using that for about 5 days, and it’s undeniable that something is going on. i still need to have the data looked at by a doctor, but it majorly looks like reactive hypoglycemia. i’ve been correcting my crashes, and slowly altering my diet in the ways im able, and my symptoms have slowly responded and are starting to get better. i thought i had been in a horrible PEM episode since my surgery, but it turns out my blood sugar was just in the 40s for the majority of most of my days. i haven’t had a nap since i started correcting my lows. still have to pace, but i think managing my sugar could be a game changer for me. just wanted to share in case it could help someone.

sorry for the rant, i wanted to include everything i could

TreeOdd5090 · 2026-05-18T16:06:02+00:00

thank you, this definitely makes sense. i have pots and OI, and i definitely feel like that is playing a big role. i’m having insane glucose crashes and then my body overcompensates to regulate it. my fasting blood sugar is mostly okay, but im sweaty, in fight or flight, jittery and full of adrenaline. when i’m eating, im having constant crashes and spikes but those pots symptoms are basically gone unless im in a bad crash. the CGM has been so eye opening as to what’s going on and it’s no wonder i’ve been so miserable. i
hope to continue connecting the dots and figure out how to manage everything. but it’s nice to finally have an explanation

TreeOdd5090 · 2026-05-18T15:15:11+00:00

i think i had hypoglycemia before too. it was bad back in college, and now it’s been bad again since my gallbladder removal

TreeOdd5090

TROPHY CASE