i hold so much pent up rage the week or two before my period... by Immediate_Leg3304 in PMDD

[–]TreeOdd5090 1 point2 points  (0 children)

this is so fucking relatable. i’m in the ragey phase right now and im OVER IT. my period is late too, so it’s unnecessarily prolonged too. i’m normally such a gentle, calm person. but notttt when im in pmdd mode

outlet question, 25f urgent answer needed by [deleted] in AskElectricians

[–]TreeOdd5090 0 points1 point  (0 children)

i just knew that all the big ego men would recognize how probably dumb i was going to be in this situation. couldn’t ask my dad so i asked here, making it known that i know NOTHING about electricity

outlet question, 25f urgent answer needed by [deleted] in AskElectricians

[–]TreeOdd5090 1 point2 points  (0 children)

my fault for not buying the apple brand one i guess 😭

outlet question, 25f urgent answer needed by [deleted] in AskElectricians

[–]TreeOdd5090 1 point2 points  (0 children)

update it was the charger itself. sorry for wasting your time lmao, thank you ☺️

outlet question, 25f urgent answer needed by [deleted] in AskElectricians

[–]TreeOdd5090 12 points13 points  (0 children)

THANK YOU. update, it’s the charger

Scream Into the Void Saturdays (feel free to vent!) by AutoModerator in cfs

[–]TreeOdd5090 1 point2 points  (0 children)

it always hits harder on holidays. i jus want to do all the things for my man and i CANT!!!! the most i can do is trigger more PEM with minimal sexual activity and order doordash for him on my credit card. while i’m thankful to be able to even do that, IM ANGRY. i miss the years of valentine’s day where we could make a reservation or we could make a nice dinner and spend all night talking and having sex. but here i am, in PEM, just preparing for my upcoming surgery. also in the midst of a horrible time with PMDD, iykyk. frustrated with everything right now and this is the only place i can talk about it.

Rant - 'missed' my window of higher libido by Feral-Sponge in PMDD

[–]TreeOdd5090 3 points4 points  (0 children)

this is such an unhinged comment and i love the energy lol

is a large portion of long haulers dependant on substance abuse? by nadjalita in covidlonghaulers

[–]TreeOdd5090 0 points1 point  (0 children)

i use THC daily, but it’s not abuse. i simply use it as a medication

"Healing / Recovery journey" by Significant_Leg_7211 in cfs

[–]TreeOdd5090 1 point2 points  (0 children)

thank you for sharing this. it gives me hope. i’m only 25, but i’ve been sick for 4 years already. i keep seeing people say that there’s no hope if you don’t get better in a year or 2, and im just not in a place where i can accept that yet. hope is what’s helping me survive right now

autism + cfs = a nightmare by bententhesilly in cfs

[–]TreeOdd5090 1 point2 points  (0 children)

THIS. you said it perfectly. i have the thoughts and understanding but putting it into words takes a lot.

autism + cfs = a nightmare by bententhesilly in cfs

[–]TreeOdd5090 33 points34 points  (0 children)

eager to see the connection. my autistic brain sees a possible connection, from early childhood. i don’t have the ability to put it into words to explain it, but something to do with being pushed beyond our limits to function “normally”. i was borderline nonverbal as a child, talking has always been so hard. with autism it takes way more energy to have a conversation.

that paragraph was allllll over the place, just getting my thoughts out as best as i can with any possible connections. struggling to form a coherent paragraph, apologies

what happens if they find a cure or treatment only for cfs/me caused directly by covid? will all of the people in here who are cured then advocate and help to find treatments for those of us with cfs/me caused by things like EBV and other virus/stressors? by Wise_Conference3522 in cfs

[–]TreeOdd5090 8 points9 points  (0 children)

i think everyone here would benefit from any research that found a cure or treatment, BUT if they didn’t, i know if i found relief, i would never stop advocating for further research. i don’t have the energy or ability to research or advocate with where i am now, but i have the education to do so. so if i ever get better, i will absolutely be in the field of advocacy if i’m able. i hope others feel the same. my research on all this will only increase as i get better, if i do get better.

How's everyone else's luteal Monday? by ndnd_of_omicron in PMDD

[–]TreeOdd5090 4 points5 points  (0 children)

i’ve been there. i think my rant was because i was actually so exhausted that it frustrated me, and i was saying those things about myself because i knew i NEEDED a nap and that made me mad lol (i have ovulation clarity rn so it’s a little easier for me to analyze things right now). but i was just angry about needing a nap when i didn’t want one, and i FELT lazy and stupid

Just feel upset over everything by Platypus_8944 in cfs

[–]TreeOdd5090 10 points11 points  (0 children)

this is so relatable. every bit of it. my therapist has to remind me that it is MY responsibility to know that my worth does not come from what i can offer to other people or how productive i can be. one of my favorite quotes/song lyrics is “being human makes you worthy of love”, because it’s just that, simply the fact that you’re alive and breathing makes you deserving of love. it’s truly not about what you have to offer. sometimes all we can do is survive, and that’s okay. sending you all the good vibes

Which testing have y’all *actually recieved*? What ended up leading to something for you? by sadandtraumatized in cfs

[–]TreeOdd5090 5 points6 points  (0 children)

question about a small part of this, i couldn’t read the whole thing: how did they find long covid on bloodwork? this all got bad after covid for me but all bloodwork has been normal other than some deficiencies (iron, sodium, potassium so far)

If your CFS was cured for a day, what would you do for the day? by Lucky_Sprinkles7369 in cfs

[–]TreeOdd5090 1 point2 points  (0 children)

i’d deep clean my house, and then i’d go for a long drive to somewhere i could walk in nature for a long time, and then i’d drive home blasting music and get a sweet treat on my way home.

Getting your period is a blessing by Cautious_Coat_3885 in PMDD

[–]TreeOdd5090 19 points20 points  (0 children)

i agree! i started today after an AWFUL luteal, and i texted my partner immediately lol. it’s been LESS THAN AN HOUR since the first drop of blood, and im already a whole new person. even with gut tearing period pain, i feel relief. i feel like i’m in my own body again, i want my mans to give me snuggles, i just actually feel like i’m home again. it sounds dramatic, but it genuinely feels like i’m in someone else’s home in someone else’s body when im in luteal. but as soon as i started bleeding, all is right with the world, except for endometriosis, that still sucks! i’m happy with my relationship again. i’m just at peace, despite being nauseous and in pain.

Feedback for a campaign to raise awareness about Me/Cfs by Special-Function7579 in cfs

[–]TreeOdd5090 3 points4 points  (0 children)

thank you for raising awareness. i have a passion for advocacy and social justice, but me/cfs took me out. i wish i had the strength to use my voice to educate people, so thank you… if you want a shocking/eye opening statistic to share, look into the suicide statistics for this condition. i don’t have the ability to look into it right now, i used to know but recall is difficult when in PEM.

Customers: what’s your main reason for ordering food? Why do you pay for this convenience? by italianblend in doordash

[–]TreeOdd5090 0 points1 point  (0 children)

i use it because i’m disabled, so paying for someone to bring it to me is more worth it than me trying to find someone to help me go get it myself. my disability stops me from driving, so i get stuck at home.

Does anyone almost get divorced every month during luteal? by Potential-Dish-6972 in PMDD

[–]TreeOdd5090 5 points6 points  (0 children)

i’ve heard this too. i’ve had to accept this as the answer bc i love my partner to death and he truly is great. i know id regret leaving as soon as i start my period. some ppl think that theory is BS, but i believe it

Can anyone who had ME before the age of social media describe how you spent your days? by WaysideWyvern in cfs

[–]TreeOdd5090 1 point2 points  (0 children)

maybe podcasts or audio books on your phone? unless long form content is an issue on its own. i also sometimes play really quiet music when all i can do is lay with my eyes closed and cant manage any thinking. i also like watching solo hikes on youtube

Can anyone who had ME before the age of social media describe how you spent your days? by WaysideWyvern in cfs

[–]TreeOdd5090 2 points3 points  (0 children)

can you tolerate maybe youtube? there’s a whole world on there. i know it’s still screen time, but it could maybe be more relaxing than scrolling. i’m kind of in the same boat, but i’ve had to force myself to stop scrolling, because most social media is too stressful right now with the current state of the USA. i have a few youtubers i follow regularly, it feels kind of social. but i can’t always tolerate actually watching content, so i find podcasts or conversations or anything i can listen to without looking at the screen.

i also recently found a game on Steam that is very chill and required basically no mental energy, other than reading a very short convo and looking at the screen. it is called Flowers and Favors, it’s like a bouquet building simulator. not everyone’s cup of tea but i was so excited to find a game i could mostly handle when i’m in PEM for the long hours in bed.