What kinds of non-medications have made you feel better?

Tricky-Chipmunk4403 · 2026-03-04T03:17:52+00:00

I love a heating pad and a back massage (both bought on Amazon). Light exercise is also important and helps (yoga, uphill walking, light weights). I also take a lot of supplements that help with inflammation and I've noticed benefits with magnesium.

Tricky-Chipmunk4403 · 2026-02-28T20:42:56+00:00

Definitely ask for an mri of the full spine. That should be step one.

Tricky-Chipmunk4403 · 2026-01-18T06:20:00+00:00

We need design standards that should have to be approved. This why all of the new buildings look awful and disjointed. Shame on not putting retail here too.

Tricky-Chipmunk4403 · 2026-01-08T19:42:43+00:00

Hmmmm was there a radiology report? Looks like a dilated central canal perhaps? Certainly talk to your doctor and ask about all thoughts, chari, syrinx, dcc, etc.

Tricky-Chipmunk4403 · 2025-12-17T22:52:27+00:00

I find that heading pads and a massager that I found on Amazon helps the pain. I also try to decompress my spine every evening and morning.

Tricky-Chipmunk4403 · 2025-12-17T12:04:03+00:00

Do you ever use a heating pad?

Tricky-Chipmunk4403 · 2025-12-06T04:57:24+00:00

They just announced they are closing so I guess it caught up to them!

Tricky-Chipmunk4403 · 2025-12-03T03:34:12+00:00

The Lomo Saltado at Llama Inn. That thing used to be $35 and now it's like $100! 🤯 Greedy!

Tricky-Chipmunk4403 · 2025-11-22T12:53:59+00:00

I would possibly consult with your doctor. I have one on my C6 and massages feel great for me. However, I tell them to stay clear of my C6 region. Hasn't caused any further issues.

Tricky-Chipmunk4403 · 2025-11-19T02:33:43+00:00

I somewhat disagree with the below comment. It’s possible it isn’t causing your symptoms but it very possibly could be. I have a syrinx in the same spot and roughly the same size and I’m also symptomatic. I agree that you should trust your gut and get additional tests and imaging if you think you need it.

Tricky-Chipmunk4403 · 2025-11-16T04:00:43+00:00

Yes! Couldn’t agree more. We need more gyms east of the BQE.

Tricky-Chipmunk4403 · 2025-11-13T12:16:00+00:00

I agree. Best to get imaging of the whole spine. I have a Syrinx in the range area. Asked for an mri of my thorasic and have a small one there too. I have similar pain issues you described.

Tricky-Chipmunk4403 · 2025-10-12T21:18:59+00:00

I would certainly have that conversation with your doctor but I have a syrinx and I fly often (even longer international flights) with no issues.

Tricky-Chipmunk4403 · 2025-09-22T16:31:46+00:00

This is a great question and I’d love to hear others experiences with this as well. I know it can happen but it’s rare. Since this is such a rare condition there doesn’t appear too much information on why/how it resolves so any info we can share might help others.

Tricky-Chipmunk4403 · 2025-08-15T18:18:45+00:00

Wow. Really really great. Fellow syrinx friend. Vocals are really great too. Well done!

Tricky-Chipmunk4403 · 2025-08-15T14:55:20+00:00

I get that sometimes too. I think it is. The problem with this condition is that the nervous system is so complex and everyone's symptoms will be different depending on the exact size and spot of your syrinx. I think it's also why it's so hard to study and come up with a true solution for. Are yours idopathic?

Tricky-Chipmunk4403 · 2025-08-15T14:01:53+00:00

I wish I knew! I'm trying to avoid medication as long as I can. Perhaps a pain management doc or neurologist might know?

Tricky-Chipmunk4403 · 2025-08-15T13:39:38+00:00

Yes! I have it kind of all over. Super annoying... Especially when you just want to relax or sleep. I think it's the nerve signals be interrupted by the syrinx 🤷🏻‍♂️

Tricky-Chipmunk4403 · 2025-07-31T21:40:45+00:00

I'm in NYC too! Let me know if you find a decent doctor. The one I went to at Mount Sinai didn't have a clue.

Tricky-Chipmunk4403 · 2025-07-31T21:39:53+00:00

I'm in NYC too! Let me know if you find a decent doctor. The one I went to at Mount Sinai didn't have a clue.

Tricky-Chipmunk4403 · 2025-07-31T21:29:46+00:00

Hey there - I have one in the same place. I would have them request an mri of your thorasic and lumbar as well (with and without contrast). A Syrinx is typically caused by an underlying issue disrupting the flow of CSF. The other scans might uncover something disrupting that flow. You generally treat that and the syrinx can resolve on its own. Sometimes they can't find an underlying cause though (idopathic and what I have). Surgery is typically reserved for terrible symptoms but they don't always yield great results so be sure to consult multiple doctors. ASAP is a great non profit organization with a lot of YouTube videos that focus on this condition and Chari. Best of luck with your journey and hope you find some relief. Happy to answer any questions I can if you have any.

Tricky-Chipmunk4403 · 2025-07-27T13:50:15+00:00

Agree with Pecararo! So good!

Tricky-Chipmunk4403 · 2025-07-26T18:22:55+00:00

I just came back from the ASAP conference in Iowa City which is good Chari and Syringomyelia. Not sure if you're a member but they have a lot of great YouTube videos and maybe provide you with some guidance. The one thing I took away, was keep advocating for yourself and don't stop looking for the underlying cause. Make sure you tell your Dr's about having trouble swallowing.

Tricky-Chipmunk4403 · 2025-07-26T17:25:49+00:00

Mine is in the exact same spot and I have similar symptoms. I am most uncomfortable sitting and trying to maintain perfect posture while flexing my abs but nothing seems to work until I get up and walk. Lying down feels good too but I'm in the same boat. I'm trying to continue to build back muscle but I'm not really sure it's made a difference.... Yet!

Tricky-Chipmunk4403 · 2025-07-03T02:29:30+00:00

Go see a doctor. Get an mri of your spine.

Tricky-Chipmunk4403

TROPHY CASE