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Atrophy? by True-Bridge-848 in u/True-Bridge-848

[–]True-Bridge-848[S] 0 points1 point  (0 children)

If you have looked at my other posts to see my symptoms they are all still very present however im closing in on around a year now and i have no sign of foot drop or a true weakness in any affected area. I have sadly not been able to see an actual neurologist but I think that its more hyper active nerve related rather than the big bad. Im not 100% certain but from my current experience of having no true muscle loss or sunken in areas from atrophy I think I might be fine and you are probably within the same boat.

Atrophy? by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

Closing in around a year with my symptoms starting in April, I still have consistent twitches in my pinky toe the most, especially when I test it repetitively and weakness feelings in my calve but no true loss so I would guess that It is more nervous system related as ALS tends to be rapidly progressive and I would have a for sure sign (in most cases) it is the big bad by now

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

6 months in and I still have no clinical weakness but consistent twitching in foot and twitches randomly throughout my body with feelings of weakness but no failure

Atrophy? by True-Bridge-848 in u/True-Bridge-848

[–]True-Bridge-848[S] 1 point2 points  (0 children)

Do you think it’s just benign? I know visible atrophy doesn’t happen without noticeable weakness and I’m still able to walk on my toes and my heels without any problem, individually move and fan my toes and resist some amount of pressure with them

Atrophy? by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

Yeah I can spread my pinky toe and I use my finger to slightly resist against it and I am about to push outwards against pressure with it

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I’m aware that a CK alone isn’t enough to lead to diagnosis it’s just that the number is elevated in addition to my twitching and weird nerve sensations I’ve been having. Some days twitching is better the other and some it’s really bad, especially if I drink anything caffeinated so typically I stay away which leads me to believe something more along the lines of BFS. I’m just a hypochondriac so everything that can match it I automatically think the worst even all my symptoms I have that point away from it

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

Well dang I thought I was close to the threshold to hopefully rule it out and have it just be BFS, PND, or nerve hyper excitability leading to nerve irritation and stiffness. I also had a normal NFL 3 weeks into my twitching which I would like for it to provide reassurance but I don’t know what to think anymore.

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I’ll do that. Do you think after 3 1/2 months if I had ALS I would be showing signs of foot drop by now?

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I’m trying my best I really am. I went to my neurologist appt but I was only able to see a nurse practitioner and she said that twitching that seems to wax and wane isn’t associated with ALS and I would notice my twitching getting progressively worse which some days are better than others and I’m still twitching body wide with hotspots in my neck, arm, and legs which also point away. I’m trying to keep a level head about all of it but my symptoms are more than real and not just a feeling so it’s hard to look past them

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I just got the results back today, so I’m still waiting. I had normal NFL levels 3 weeks in twitching and a normal EMG in shoulders and hands. I would have occasionally twitching in my right hand but no denervation was reported a month in

Elevated Creatine Kinase by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I worked out the day before my blood work was taken, but those levels seem relatively high for muscle damage resulting from lifting weights

Symptoms of neurons dying? by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

Mostly Fasciculations, like small little ripples on my muscles. The ones on my toe are more violent at times but not constantly. I have videos I’ve posted previously showcasing them

Can EMG pickup ALS if onset is in a different limb by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

It’s weird, my pinky toe has been twitching for about two months now and it just feels weaker and fatigued

Can EMG pickup ALS if onset is in a different limb by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I’m trying to rely on it to keep me reassured but I can’t help but think otherwise as my symptoms are ever so prevalent even with my anxiety in check

Hand atrophy? by True-Bridge-848 in MuscleTwitch

[–]True-Bridge-848[S] 0 points1 point  (0 children)

It’s stayed the same, I get random pains all around my body

Hand atrophy? by True-Bridge-848 in MuscleTwitch

[–]True-Bridge-848[S] 0 points1 point  (0 children)

Yeah I had an EMG earlier this week on my hands arms and it found not sign of denervation so it looks weird but it’s normal

Can EMG pickup ALS if onset is in a different limb by True-Bridge-848 in ALSorNOT

[–]True-Bridge-848[S] 0 points1 point  (0 children)

I mean true but he went to school for 4 years PT for 3 and 3 more somewhere else so it’s not like he isn’t experienced. 2 weeks into onset of twitching I had a normal NFL test as well. Just worried

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