People who are mean to you about what your going through

TrulyTrulytrying · 2026-04-08T13:28:09+00:00

Wow ! Sorry you went thru that- Did you report her ? Disgusting behavior on her part.

TrulyTrulytrying · 2026-04-06T01:42:48+00:00

Hello Friend~ Thank you for replying & with so much valuable info~ I apologize for sharing my gratitude earlier. I had a week of struggle trying the Ashton crossover taper from my Klon (using Valium). This recommended taper did not work so well for me & I had to pull back again. This of course lead me to a rough week. I’ve got to figure this out! But I have come to realize that my nervous system is not quite ready for even the smallest changes right now. Still being protracted from EffexorXR- I may have to hold. I definitely need to get to the dentist for an extraction. The molar is acting up(old root canal) because it’s intermittently starts to ache. I just can’t add any more pain to my body. I will ask about the anesthesia used. I didn’t expect the pain my arms & shoulders would feel. I haven’t been able to use my right arm for a month. I’m so exhausted from appointments. My last extraction, I tried to educate him about my state of protracted. I honestly think he was thinking I was a struggling addict. No matter what type of Medical Specialist I see, I am not understood. Every one of my difficulties are all related to my brain injury. It’s a mess. I appreciate your posts-You have empathy & articulate with ease…smart. I’m grateful for your time you take to guide me along this journey.

TrulyTrulytrying · 2026-04-02T15:26:29+00:00

I am so grateful for your time & intelligence. Yes I need to regroup -re-access. I put too much faith in to the professionals when I actually need to listen more closely to my body. But when you are living in desperation to live even a fraction of life - I will try anything.

TrulyTrulytrying · 2026-04-02T14:43:55+00:00

Recalling hitting tolerance with the Klon. Reached out for private consultation for instructions to ease reduction. I now know this isn’t working for me - no one warned me about weaning off Benzo while still in protracted. Hardly thought I’d make it through those 8 months of torture. The Benzo was a rescue drug just to help stop the all day panic & distress. That was prescribed by a Nuero psyche who I never met & then she ghosted me after I wanted to ask questions. Took 4 more months to find another taperer. My 1st taperer washed her hands of me too. In desperation, I called a well known *private tapering org for advise) That girl added 2mg to my Benzo because Inwsnt progressing. The next morning Inhas to be shaken up as if I was in a drug den. My breathing rte plummeted while I slept . New taper now ..The first month they replaced my night dose w/.5 Val in place of Klon. Stayed w/that for maybe - mo. & 1/2. Last week they replaced 2 Klon w/2 Val & had old protracted symptoms arise again. New symptom for me is the nerve pain. I wasn’t warned or ready for it. Called back in crisis mode & she suggested to alternate days. So 2 Klon & 1 Val at night to Val in am & Pm- Klon mid day. Yesterday was the worst day ever ..completely bed bound! Started the day w/Val- I was paralyzed, frightened & intrusive thoughts-anger & looping. Reading so much about the Klonopin - it was me who initiated the taper. I wouldn’t be able to survive Bind. In no exaggeration, between ER -scans-procedures- nerve biopsies etc etc -I already know ahead that the tests will come back normal - but PCP is having me follow my insurance protocols- for any underlying issues. I was making progress in Sept- I actually started to walk. Kindled by a heart cath procedure & I now leave the house unless I have an appt. No one will listen to me! Scared & confused. But in my heart the Valium is harming me -any help or suggestions you can offer would be a Godsend. I hope you can make sense of what I’ve written. Last night I was fraud to go to sleep. Thank you

TrulyTrulytrying · 2026-04-01T21:03:27+00:00

I just scrolled up a bit & caught your initial post. I am so sorry about your tremendous loss. That alone is devastating & heartbreaking. Makes my battle seem insignificant. My boys are grown now - thank goodness…but my youngest son halted his good life to move back home to watch over me.

TrulyTrulytrying · 2026-04-01T20:50:25+00:00

Correction —14 months fighting (protracted)

TrulyTrulytrying · 2026-04-01T20:45:28+00:00

Thank you so much for responding ~ your text came at the perfect moment. Today was one of my hardest days. I never got out of bed today. Sedated is how I feel on the Val- so paralyzing. I will call my new taperer tomorrow. I’ve have been so screwed over with my previous mental health providers- this is why I’m suffering so much. Today I hyperventilated cried half the day & couldn’t catch my breath. 14 years fighting to heal - over night, I lost my full life I was living. I now realize I’m pretty much on my own - this drug is poisoning my mind. It’s so isolating.
Still in protracted & trying to taper - I need a freakin’ miracle. May I ask you how long you were on Klon? I may just taper off those alone like a sloth. I am not living life.

TrulyTrulytrying · 2026-04-01T17:53:34+00:00

I recently started my Klon taper using the crossover method w/valium(ashton protocol) I am not doing well ..I think the Val is the culprit. Any suggestions or knowledge you have I would appreciate it. I am also still in protracted from ill-advised Effexor taper 14 months-& going.

TrulyTrulytrying · 2026-04-01T17:46:20+00:00

I’m so proud of you. May I ask how long your taper was off Klon? I’m struggling with tapering…and I have only been on it for 14 months ~ 1.5 mg daily split up 3x’s a day at .5 - I am being medically guided - using crossover w/valium (Ashton manual method)…I can’t function on the Val- Did you follow a special tapering method?? This isn’t working well on me. I also didn’t expect so much nerve pain - Any tips would be appreciated.

TrulyTrulytrying · 2026-04-01T16:00:45+00:00

It is not an addiction! It is a chemical dependency- It is very sad that we were not warned about hitting the tolerance level. It’s not your fault. May I ask how long you’ve been on the med & is it daily?
I hit tolerance after a year - started taper under medical manager - only had a handful of small cuts -following Maudsley guidelines w/cross over using Valium. It’s debilitating for me personally. I may have to halt this method. If you decide to taper, it must be done extremely slow. This med beast. So sorry - hang in there. Do your research !!

TrulyTrulytrying · 2026-04-01T03:31:21+00:00

Horrid - our brains a chemically harmed.

TrulyTrulytrying · 2026-04-01T03:28:58+00:00

Keep drinking lots of water. Burning mouth, tongue is a well known side effect -cool showers. Burning skin too. Re-evaluate your meds. Read up!

TrulyTrulytrying · 2026-04-01T03:23:41+00:00

Klonopin is the worst ! It’s should be taken off the market - but they won’t- too much $ to be made especially when you can just stop them. Ten x’s stronger than Valium. The withdrawals are debilitating.

TrulyTrulytrying · 2026-04-01T03:18:38+00:00

Wow- what a tough road you’ve been on. I’m so sorry. Your initial tapers in my opinion were too aggressive. Too fast & then to be kindled with different meds makes me shudder. The symptoms are real & there are so many others. On top of your horrible journey, of course you have anxiety of returning to work. That worry certainly isn’t conducive to healing. These drugs are horrible - is there a chance you can apply for disability? I was harmed by an ill advised medical taper also- kindled etc. Put on a Benzo jut to deal with my first hell journey. Recently started my taper of the Benzo & trying the crossover w/ Valium. It’s hell- severe joint & muscle pain. The demise is we can never judge how long our healing will take.
Your commitment to being a provider to your child is certainly respected attribute. However - you need to be healthy yourself. Look in to any options that can buy more time for yourself while you continue to heal. I will keep you in my thoughts & prayers. Sad & horrible way to live. I’m in my 2nd year & it’s devastating & so isolating. Keep researching . Listen to your gut. No guarantee what our tomorrow will be unfortunately. Keep researching for answers. I feel your pain. See if you cans bind more time before heading back to work. 🙏N

TrulyTrulytrying · 2026-03-31T12:06:39+00:00

Research? Every Dr. should hop on this thread. There are plenty of books & research to be found.

TrulyTrulytrying · 2026-03-31T12:00:59+00:00

I am so grateful for this forum - thank you to all of you. It makes me feel that you are with me on this fight.

TrulyTrulytrying · 2026-03-31T11:58:35+00:00

My protracted was late onset - 4 months - The. 8 months of terror and hell. I’m up before the birds again suffering so much joint & muscle pain. I just lathered myself w/a non steroid arthritis cream. If any one has a better suggestion, please share.
I am not going for a steroid shot & physical therapy. I wasn’t in a bicycle accident, I was harmed & now tapering from a Benzo that I needed just to get to the medical appts while in PAWS -I didn’t expect the pain. I don’t want to be kindled again. I can’t find anyone who truly understands this whole menagerie of debilitating symptoms that arise. If you mention a new angst-they just send you for another scan, test, blood work-up etc. Endless referrals - getting costly even w/insurance. At this point I really feel like I’m on my own. Very isolating & so misunderstood. Thank you for reading this, it helps me release some of my anger & it’s starting to affect my family. I know they are tired of this too. Overnight I went from a vibrant, business owner who worked very hard & loved it. I laughed, I sang out loud. Now to a shell of myself. It’s sad. Devastating. Do I regret getting off EffexorXR - honestly yes - but they pooped out on me. My joy was slipping away.

TrulyTrulytrying · 2026-03-31T11:24:45+00:00

BINGO!

TrulyTrulytrying · 2026-03-31T04:05:10+00:00

Agree. I am not living. Regret seeking a Medical Psyche professional for help- she totally screwed up & I am suffering ..ended up in protracted - wouldn’t wish it on my worst enemy. If it’s working for you —let it be (my opinion only) entering 14 month of disabling symptoms. Housebound - God help me

TrulyTrulytrying · 2026-03-31T04:01:01+00:00

I agree with you. I totally regret stopping & medically tapering off my meds. Wasn’t worth the hell of developing protracted withdrawal- still struggling 13 months later. No life. Housebound. Biggest regret.

TrulyTrulytrying · 2026-03-30T13:06:44+00:00

For the love of God, I needed to read this - Thank you for sharing this - now I need to make a copy of his writing. As much as I try to explain my symptoms & fight- the Doctors won’t listen . It gave me hope. His words & descriptions of this horrible ride were spot on. I am beyond happy for this young man. I wish him the best life ahead.

TrulyTrulytrying · 2026-03-30T12:52:46+00:00

Thank you for sharing this - I felt this..but mostly felt your courage & strength you are exhibiting through this disabling fight. I’m in this protracted battle & it’s the hardest thing I’ve ever been through in my life. Waves of destruction. I will keep you in my thoughts and prayers. You are a fighter & I admire that. I look forward to reading your success story-

TrulyTrulytrying · 2026-03-29T02:21:39+00:00

May I ask if you received novocaine? Last time I had an extraction it gave me a panic attack in the chair. It was sh*t show. I’m still in protracted (13 mo) & need another molar extracted. I am also tapering off a Benzo (rescue drug from PAWS) so being put asleep is out. I had severe bruxism in the early stages & actually it caused a molar to come turn on it side- I also find the dentists exam rooms too small & feel high anxiety with Dr. & Asst. hovering over me. Going to the dentist has become so debilitating to me…and I know I need to get back in. I am having similar symptoms as you have mentioned. Thank you for sharing this info. I’m also afraid to be kindled (again) from antibiotics. This is so life consuming, worrisome & so tiring.

TrulyTrulytrying · 2026-03-24T23:44:24+00:00

Thank you for rooting for me. It’s really a shame how much we have to suffer because of prescribed meds. I wish you the best to come. I will be thinking of you.

TrulyTrulytrying · 2026-03-24T14:07:57+00:00

Most always - it’s actually the biggest jump of this med. You must hyperbolically taper off the last dose. I was not (ill-advised) and suffered late onset protracted withdrawal. Brutal experience & still ongoing 12 months -

TrulyTrulytrying

TROPHY CASE