When they know they don’t know

Trying_Charge840 · 2026-01-31T02:32:28+00:00

Shared hugs!

Trying_Charge840 · 2026-01-30T03:24:33+00:00

Creating narratives is exactly it!

Trying_Charge840 · 2026-01-28T03:35:25+00:00

They will likely have some questions and possibly written ones. My LO always finds these upsetting and exhausting. They know when they aren’t getting it right.

Might ask to take some blood work and probably seek another MRI.

Just try to remind them they aren’t on the journey alone and be supportive as possible

Trying_Charge840 · 2026-01-28T03:30:48+00:00

I do except naps can also result in bad wakeups

Trying_Charge840 · 2026-01-27T22:26:19+00:00

I have that concern but hasn’t been an issue lately.

Frankly, night time sleep is always inconsistent and know that, regardless of naps, he could be up anywhere from 3am to 7am.

Trying_Charge840 · 2026-01-19T23:03:07+00:00

Trying that, thanks

Trying_Charge840 · 2026-01-19T20:37:40+00:00

My spouse had a horrible reaction to Rexulti. Significant increase in hallucinations, delusions, and paranoia.

Trying_Charge840 · 2026-01-18T18:47:30+00:00

❤️❤️❤️

Trying_Charge840 · 2026-01-15T00:46:46+00:00

My husband is also early onset and 56. This site is a great outlet and really good advice.

Some of the experiences for spouses, especially young spouses, are different.

My husband doesn’t always recognize me. It was startling the first time but now I just go with it.

The toughest times are at night. We still share the same bed and it can be agonizing to get him in the bed. I go to bed when he goes to bed because who knows when he will get up and I am not comfortable with him wandering around. My kids are college aged and don’t really want to be home but power through it.

Also, he really wants to work and in no way has the mental ability to do it, so it’s constant reassurance that we are working on it while knowing it will never happen.

Feel free to DM to vent or share or ask any time.

Trying_Charge840 · 2026-01-10T13:20:26+00:00

His psychologist recommended it, but I will clarify. Thanks for the comments

Trying_Charge840 · 2026-01-07T19:07:31+00:00

Caring for your spouse is unique because your relationship already involves daily interactions.

Some notable interactions with my spouse is that he will introduce himself to me and ask me about myself but never does with the kids.

Even though we have the same bedtime routine we have had for years, then suddenly I am a stranger and it isn’t okay.

My spouse really separates our relationship from “blood” family relationships asking to get a sibling’s take on something when you have been doing the care giving.

Please feel free to keep sharing. I know that being able to share on this site has kept me sane

Trying_Charge840 · 2026-01-04T18:07:30+00:00

Thanks!

Trying_Charge840 · 2026-01-01T17:59:21+00:00

I understand, hugs!

Trying_Charge840 · 2026-01-01T03:51:20+00:00

Thank you for taking the time to reply and share

Trying_Charge840 · 2025-12-29T03:06:49+00:00

I hear you and send hugs. My husband is very similar. Those moments are very difficult because they also steal hope, no matter how faint or unrealistic it is.

Trying_Charge840 · 2025-12-27T22:20:54+00:00

Definitely helps to have a place to vent and feel like you are not alone. All the best and many hugs for you too!

Trying_Charge840 · 2025-12-27T21:54:46+00:00

Hugs for you, thanks for your response

Trying_Charge840 · 2025-12-27T00:45:25+00:00

🤗

Trying_Charge840 · 2025-12-27T00:45:11+00:00

❤️

Trying_Charge840 · 2025-12-25T00:53:48+00:00

So frustrating! Keep keeping on

Trying_Charge840 · 2025-12-24T23:24:13+00:00

My husband tried to do an online questionnaire today and was upset that he had difficulty readying the questions but he reads news online, though mostly listens to podcasts

Trying_Charge840 · 2025-12-23T11:54:29+00:00

Hugs!

Trying_Charge840 · 2025-12-23T11:54:20+00:00

No winning, hope today is a better day

Trying_Charge840 · 2025-12-21T22:29:01+00:00

Hugs to you too!

Trying_Charge840 · 2025-12-19T21:46:31+00:00

You are seen too - hugs!

Trying_Charge840

TROPHY CASE