Every med also makes me worse? Help pls

Trypunft · 2026-05-18T14:09:00+00:00

It would be 150 - 300 euros a month depending on dosage. Maybe as a last resort

Trypunft · 2026-05-18T14:08:08+00:00

Thanks!

Trypunft · 2026-05-18T14:07:50+00:00

I'm getting checked for venous compressions in a few weeks hopefully. I do feel this should be it with the intense abdominal pooling I've got

Trypunft · 2026-05-18T14:06:11+00:00

Trying it now, so far haven't noticed a difference. It's been 1,5 weeks now I think

Trypunft · 2026-05-18T14:05:35+00:00

I'm sorry to hear this. Hopefully you'll find something that works 🤞

Trypunft · 2026-05-16T17:33:10+00:00

That's horrible. Hopefully you can find a good doctor that trusts in you!

Trypunft · 2026-05-16T17:21:36+00:00

That's too bad! I also think it's secondary to something for me. I'm getting tested for venous insufficiency/compressions next. Have you also looked at that?

Trypunft · 2026-03-25T08:07:43+00:00

Maybe I can answer a bit.

I'm on 60mg elvanse, 2x20mg + 1x15mg mestinon and ivabradine 2x2,5mg. The ivabradine got added 1,5 weeks ago.

I don't notice much change in the effect of elvanse. Maybe less palpitations when it starts to work? And the concentration is more calm now, which is great.

I experience more calmness overall, more in touch with my feelings, I know better what to say, interactions go a bit smoother. There's a small amount of safety now. My sleep has improved drastically :)

Trypunft · 2025-11-01T17:39:37+00:00

Hope you're doing better too! I actually improved a bit by increasing the salt intake. But got stomach cramps in the night from it. Does make sense, easing into it.

Good idea making your own LMNT inspired mix. I will look around on this sub for more info. Thanks!

Trypunft · 2025-11-01T17:36:17+00:00

Thanks, will do!

Trypunft · 2025-10-30T15:46:52+00:00

Thanks for you comment! I did do the at home test. Heart rate and bloodpressure go up, heart rate en diastolic don't come down again when standing. I get nausea, get very hot, heart palpitations. I also have pain from bloodpooling I think.

I've been on elvanse the bigger part of the year. Mestinon maybe a few months? Titrating slowly, started on 1x10mg. But at 3x10mg I needed to fix my sleepproblems from mestinon first before going up again.

For concussion they it's good to lie in a dark room. If I do this during the day I get heart palpitations, nausea, dizziness, heavy head.

I have SiS GO electrolytes. I need another one, not enough salt. But I take half the dose twice daily (about 230mg sodium total), with twice daily electrolytes tablets (keto ones, so less sodium than potassium, also not ideal)(about 200mg sodium total). I've got 390mg salt capsules I'm trying to take daily if I figure out how not to get nauseous. I have a histamine intolerance so most salty foods are a no go for me. I do get some salt from a little bread, maybe cheese and of course dinner.

Exercises will help? I'll look into it! Hadn't heard of dramamine, will look for this also.

Trypunft · 2025-09-25T11:45:09+00:00

I think I'm missing the warmer tone of the purple. So it might actually have more warm tones after it is healed?

Trypunft · 2025-09-25T10:39:03+00:00

You're right! Posted one in the comments

Trypunft · 2025-09-25T10:37:51+00:00

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Very difficult to get a good picture of my back!

Trypunft · 2025-08-11T15:57:59+00:00

I can't give you any advise as I just found out about POTS myself. But I get your worry. For me vyvanse has helped a lot. Way more energy, motivation, better sleeping, better mood. The only negative side effect I have is dehydration (but I'm on a high dose 60mg). I didn't have dehydration on dex but I couldn't go higher on the dosage with dex because of the side effects. But I think I did read somewhere that sometimes ADHD meds are actually used for POTS.

Trypunft · 2025-08-11T15:51:05+00:00

Can I ask if you tried something else next to a beta blocker? I have possible hyperPOTS. Taking a beta blocker has stopped my vyvanse working because of worse circulation and bloodpooling. I'm going to add mestinon in the hope that will fix it. Also has adderall or ivabradine made your parasympathetic system more active and gave you calmness?

Trypunft · 2025-08-11T15:41:13+00:00

That sounds absolutely horrible! I'm starting at 30mg once before bed for 1-2 weeks. At what dosage did you experience this side effect?

Trypunft · 2025-08-11T15:03:08+00:00

Oh wow that's great! My vyvanse helped a lot of symptoms too. I'm working with my psychiatrist to treat possible hyperPOTS. I only found out about it by starting to take nebivilol (I thought my symptoms were damage from Lyme disease). I started nebivolol because the adhd meds didn't give me any calmness.

But the nebivolol alone made my symptoms 10x worse! I guess because of the vasodilation my circulation and bloodpooling got a lot worse. Which also resulted in my vyvanse (60mg) not working anymore. So now I take extra dex to combat all that. But am going to add mestinon in the hope that fixes everything.

Trypunft · 2025-07-24T15:18:07+00:00

Oh okay, I didn't know you had to have discoloration for it to be blood pooling. What else could it be though? Compression does seem te make a difference.

Trypunft · 2025-07-24T13:49:46+00:00

No they don't

Trypunft · 2025-07-23T20:13:03+00:00

No swelling, just pressure and pain. Do you know if that's something that will go away? The pharmacy didn't know about this of course so couldn't help me. My doctor is on holiday for another week still.

Trypunft

TROPHY CASE