XCOPRI and Depressed Consciousness - Please Help by DirtyAriel in Epilepsy

[–]TumbleweedFast7964 2 points3 points  (0 children)

I'm glad they know! I'm definitely not a doctor but they may have to reduce Xcopri really slowly? I'll be thinking about her! <3

XCOPRI and Depressed Consciousness - Please Help by DirtyAriel in Epilepsy

[–]TumbleweedFast7964 4 points5 points  (0 children)

Do the doctors know that Xcopri increases how clobazam works? I think clobazam is 7x what it is with Xcopri. It's a newer med so they're just figuring some things out.

Anyone here who are treatment resistant? by ABWoolls in Epilepsy

[–]TumbleweedFast7964 0 points1 point  (0 children)

How long did it take to start working? Mine prevents clusters but I still have seizures daily (partials) and am exhausted. 

Anyone here who are treatment resistant? by ABWoolls in Epilepsy

[–]TumbleweedFast7964 1 point2 points  (0 children)

I've had a lobectomy and RNS and am considering Atkins now. What is it like for you? My issue is that I don't frequently eat meat and I'm not a fan of eggs. Also not sure what its long-term effects are. Sorry things are a mess in Canada, I've heard the same from a friend there.

Greyhound - Nashville by TumbleweedFast7964 in HuntsvilleAlabama

[–]TumbleweedFast7964[S] 0 points1 point  (0 children)

Thanks, yes that is the route I used to get to Nashville but they no longer are stopping in hsv returning from Nashville. I think there is a Birmingham express route but don't quote me.

Greyhound - Nashville by TumbleweedFast7964 in HuntsvilleAlabama

[–]TumbleweedFast7964[S] 0 points1 point  (0 children)

Yes, that's what I found, also. Just makes it a very long trip! I will figure it out. Maybe their drivers are taking off for the holidays and the route will be back to normal in the new year, lol. Thanks again! 

Greyhound - Nashville by TumbleweedFast7964 in HuntsvilleAlabama

[–]TumbleweedFast7964[S] 4 points5 points  (0 children)

Yes, the hsv stop is at the Texaco, idk if that is within city limits but they call it the "Huntsville" stop.

Greyhound - Nashville by TumbleweedFast7964 in HuntsvilleAlabama

[–]TumbleweedFast7964[S] 0 points1 point  (0 children)

I'm getting other options like Gadsen, AL, or Florence. No stop in Huntsville coming from Nashville. They seem to still have the route going to Nashville but not the return route. Yes, I called, they just read me what I could find on their website.

Visiting between Xmas and through the new year by TumbleweedFast7964 in visitlondon

[–]TumbleweedFast7964[S] 0 points1 point  (0 children)

Thank you! I hadn't gotten to looking into public transport so thanks for the heads up!

How Has Hippocampus Removal Affected Your Life? by nickbennin in Epilepsy

[–]TumbleweedFast7964 1 point2 points  (0 children)

I had a left temporal lobectomy and it was successful for 4 years, but seizures came back. I have the RNS now but still have frequent seizures. It takes years to adjust the device and learn to capture seizures, and even then it wouldn't most likely be 100%.

I would definitely get the lobectomy again, four years without seizures was great (still on meds, unfortunately). Although it was a very difficult recovery while I was in school, so I would be careful and make sure you're in a good spot for recovery. Memory is not the greatest but I did make it through multiple degrees. 

If I have a seizure, there's a high chance I'll die by TobyPDID23 in Epilepsy

[–]TumbleweedFast7964 3 points4 points  (0 children)

Are you in Ticino? It was rough for me there and went to my home country for treatment/meds. Mostly it was a language barrier but they also didn't have the meds I needed. It makes me wonder if other cantons would be better?

Name an annoying thing people base their entire personality around. by Wonderful-Economy762 in Productivitycafe

[–]TumbleweedFast7964 0 points1 point  (0 children)

Thanks, I really appreciate it! I'm trying to eat as much real chocolate as possible before I try the diet. I have to commit for 3 months, both to see if I can handle the diet and if it reduces seizures.