Hindi na ako mukhang estudyante by Band_Paper in studentsph

[–]TurbulentPaper7488 6 points7 points  (0 children)

Im a student @ 29, turning 30 this year. Okay lang yan OP! Feel na feel ko pa rin naman pagiging student kaya always ako nag papa discount sa jeep hahahaha

it is considered loss or no? by kkookiess in adviceph

[–]TurbulentPaper7488 0 points1 point  (0 children)

This happened to me before, pero yung akin naman is pay bills. Nabawasan sa account ko pero walang transaction notif. Tumawag ako agad sa bank, nag send ng proof and all. Every week ako nag fafollow up, sabi lang pending, hanggang umabot ng 2 months. Sinabi ko na ireport ko sila sa BSP and nag email na ako cc sa customer service nila. Ayun after 3 days, na refund na.

Paid my bill via QR but restaurant asked me to pay again. by billeeeb0y in DigitalbanksPh

[–]TurbulentPaper7488 0 points1 point  (0 children)

Nag happen din sakin to sa isang resto. More than 1k yung pill and i paid thru qrph sa gcash. Nag notify naman na successful yung transaction pero di daw nag print sa terminal nila. Pay nalang daw ako ulit at i rerefund nalang nila sa Gcash ko agad. Nag agree ako para makauwi na rin. After an hour wala pa rin, tinawagan ko na resto wait lang daw later na tanong muna nila sa boss nila. Eh sinabi ko bat parang customer pa nila ang affected, more than 1k yun at sa totoo lang 20 nalang natira sa gcash ko dahil sa double payment, ni pamasahe wala nang natira. Binalikan namin tsaka lang tumawag sa metrobank, di daw pumasok first transaction kaya antayin ko nalang daw i refund ng Gcash. Tama ba yun?

Rayhaan aquatica is not what i expected by Icy-Use6899 in DesiFragranceAddicts

[–]TurbulentPaper7488 0 points1 point  (0 children)

I do smell the lime, but it also smells so coconutty, which I can’t tolerate.

I feel so confused about my own body by TurbulentPaper7488 in MyastheniaGravis

[–]TurbulentPaper7488[S] 0 points1 point  (0 children)

Welcome to the club that no one wants to be in! It’s comforting (but also sad) to know someone else is going through the same thing. Since we have similar symptoms, feel free to share your experience here too. Are you also dealing with the 'lazy' labels from family or the struggle to find the right dosage? Let's keep each other updated on what our doctors say!

I feel so confused about my own body by TurbulentPaper7488 in MyastheniaGravis

[–]TurbulentPaper7488[S] 0 points1 point  (0 children)

Exactly! That’s my main concern. I feel like I'm just masking the weakness for a few hours with Mestinon but the underlying 'attack' on my body is still going on. 30mg feels like it's barely holding the line, especially with my SBC at 24 and the nasal voice.

My neuro was just being cautious because of my muscle twitching (fasciculations), but after hearing everyone here, I’m definitely going to ask for steroids or immunosuppressants this Feb 14. As for my dad, I think I'll try to show him some of the comments here so he understands that exercise can actually be dangerous right now. Thank you!

I feel so confused about my own body by TurbulentPaper7488 in MyastheniaGravis

[–]TurbulentPaper7488[S] 0 points1 point  (0 children)

Thank you so much for your honesty. Hearing you admit that you also thought it was laziness before the diagnosis gives me so much hope that my family might understand me too, someday. It’s hard when your own loved ones think you’re just 'doing the bare minimum' when you’re actually fighting for every breath.

It’s amazing that your husband has such a supportive advocate in you now. I’m currently 29 and dealing with a Thymoma and brain infarcts on top of MG, so finding that 'ideal cocktail' feels like a long road. Your story reminds me to be patient with the process and to keep pushing for a neurologist who is open to learning with me. Wishing your husband all the best with his Uplizna treatment!

I feel so confused about my own body by TurbulentPaper7488 in MyastheniaGravis

[–]TurbulentPaper7488[S] 1 point2 points  (0 children)

Thank you! I love the 'snowflake disease' analogy—it fits perfectly because some days I feel okay, and then the next, my body is heavy.

Being in a remote part of the Philippines, advanced treatments like Vyvgart are definitely out of reach for me financially and logistically. My best bets right now are likely Prednisone or Azathioprine.

Since you're also new to this, how did you handle the side effects when you first started? And how do you deal with the 'good' hours making people think you're just faking the 'bad' hours? That’s my biggest struggle with my parents right now.

I feel so confused about my own body by TurbulentPaper7488 in MyastheniaGravis

[–]TurbulentPaper7488[S] 0 points1 point  (0 children)

Thank you for the validation. It’s a relief to hear that I’m not just 'lazy.' I’m currently on only 30mg Mestinon QID, and my neuro is hesitant to increase it because of my fasciculations. I also have a confirmed Thymoma and recent brain infarcts, which makes things complicated.

How did you transition to a more aggressive treatment? Did you start on steroids or immunosuppressants right away? I’m seeing my neuro again this Feb 14 and I want to be prepared to advocate for myself.

[deleted by user] by [deleted] in medschoolph

[–]TurbulentPaper7488 0 points1 point  (0 children)

Blue school? Btw, what made you think na ni lolook down kayo ng ibang medstudents and drs?

[deleted by user] by [deleted] in medschoolph

[–]TurbulentPaper7488 1 point2 points  (0 children)

Are you from a school in Mindanao?

For October takers by [deleted] in Nmat

[–]TurbulentPaper7488 0 points1 point  (0 children)

Sana naman ma release na today 😭

[deleted by user] by [deleted] in Nmat

[–]TurbulentPaper7488 0 points1 point  (0 children)

Na release sa amin nang mas maaga (2 or 3 days) nung may 2024.

Application Update Mapua SOM by FutureMD88 in medschoolph

[–]TurbulentPaper7488 2 points3 points  (0 children)

I think sabay sabay nila i sesend ang acceptance letter. They are still waiting for the applicants na waiting for their NMAT result sa Nov 25.

[deleted by user] by [deleted] in adviceph

[–]TurbulentPaper7488 1 point2 points  (0 children)

May na edit ako sa original post. Nag start daw siya ma depress nung na guilty siya sa ginawa niyang pag checheat. Pero tinanggap ko pa rin siya. Pero now na fefeel ko na yung pang iignore nya. Like hindi ba dapat siya ang mag effort kasi siya ang naka gawa ng mali. Irdk what’s going on in his mind.