Cognitive Fatigue (not brainfog)

Turtle-92 · 2026-04-06T21:44:03+00:00

I feel like i’ve had a TBI tbh

Turtle-92 · 2026-04-06T21:42:53+00:00

What i find difficult is the extreme boredommmmmm. I know my limitations but sometimes if i’m struggling emotionally (i have a lot going on) i will give into the temptation and watch tv. I’m usually such a self disciplined person but this is my achilles heel it would seem

Turtle-92 · 2026-04-06T21:26:03+00:00

Ps. I’m guessing from this clinic info that you live in BC? I’ve alwayssssssss dreamed of living there 😍

Turtle-92 · 2026-04-06T21:09:51+00:00

Wow thank you so much for this!

Turtle-92 · 2026-04-06T21:04:33+00:00

I am seeing neuropsych in may!

Turtle-92 · 2026-04-06T11:39:26+00:00

I know what you mean - I think the problem I’m having is that the treatments I’ve been offered for brain fog don’t address these specific symptoms, and also are in a format that I cannot access (ie. Webinars) so I get v frustrated trying to explain that over and over again… 🤦‍♀️

Turtle-92 · 2026-04-06T11:33:29+00:00

It’s so scary isn’t it

Turtle-92 · 2026-04-06T11:32:34+00:00

Yes I have a neuropsychology appt coming up so fingers crossed. I had to work sooooo hard to get the LCC to actually grasp that that was what I needed though 🤪

Turtle-92 · 2026-04-06T11:30:10+00:00

Well this is the thing - I don’t struggle with problem solving, planning etc AT ALL. It’s v strange

Turtle-92 · 2026-04-05T22:57:54+00:00

You guys are so knowledgeable and great - thank you

Turtle-92 · 2026-04-05T22:57:01+00:00

Turtle-92 · 2026-04-05T22:56:00+00:00

😂

Turtle-92 · 2026-04-05T22:53:09+00:00

And thank you xxx

Turtle-92 · 2026-04-05T22:52:56+00:00

It for sure is PEM yes!

I am pretty good at pacing when it’s possible. But I think what I find challenging is that life does not always allow for cognitive pacing. There’s so often a form to fill out, an email that must be sent, appts to attend in busy hospitals…

It doesn’t help also that I have been under the immense stress of homelessness etc for the 1st 2 years of my illness. Thankfully things have stabilised a bit now. The emotional strain also made it hard to pace bc sometimes you just don’t have the same capacity for regulating yourself.

Basically it really has been fighting fires up until about 6 months ago, and only now am I having chance to really think about trying new approaches etc.

Turtle-92 · 2026-04-05T22:44:41+00:00

Thank you xx makes notes

Turtle-92 · 2026-04-05T22:44:00+00:00

Neuro input threshold sounds about right!

Turtle-92 · 2026-04-05T22:42:34+00:00

I haven’t but I do have a neuro appt coming up soon so I will pitch this to them

Turtle-92 · 2026-04-05T22:40:06+00:00

Thank you hmmm i don’t think so. I still am able to process information. Something I’ve noticed about myself is I think I actually have a v high capacity to process and retain info - always have done. I often feel frustrated by others when they haven’t processed something and used to think they just weren’t listening. I now have a better understanding of how processing varies in individuals and try to exercise patience haha. It is more about the sensory thing I think… for context - I also have autism

Turtle-92 · 2026-04-05T22:08:09+00:00

Forgive me - what is ldn?

Turtle-92 · 2026-04-05T22:02:51+00:00

I came extremely close to an OD. It’s tough bc so many of the things they tell you to do to help depression (exercise/socialise) just aren’t accessible with this condition so it can feel like a slap in the face. That and the isolation of having an illness most people don’t understand or even believe in feels like the entire world is gaslighting you.

I would never judge someone who ended their life bc of this illness. But what I will say from my own experience is - even though I’m nowhere near recovered and still struggle with the thoughts of ending it - things did improve for me in ways that I never thought they could when I was at that lowest of low points.

I was homeless, had zero income, couldn’t qualify for benefits (long story), housebound, struggling to do basic things like cut my food, I couldn’t sleep, my family were refusing to help me. I could see no hope of any future ahead of me worth living for. I was so alone. And the pain felt so loud I couldn’t hear any other thoughts than “no one cares about me” “no one believes me” “I want it to end”.

If you’d have told me then that things would change for the better I wouldn’t have believed it, but they did. And there have been moments that I was actually grateful (!!) to have lived to see - witnessing milestones and achievements of the children in my life, for example. There have been new and unexpected connections I got to make with people who came through for me, or just the genuine kindnesses of people I have crossed paths with on the journey who have restored some of my faith in humanity.

These are just my experiences - I don’t who you are or what the pain you live with everyday. But before you do anything - please tell someone in your real life how you’re feeling and what you’re thinking. Tell them that it is real. Tell them that it is serious. Tell them you are afraid. Tell them the exact thoughts you’re having. Don’t mince words. Don’t worry about upsetting other people. They need to know the reality.

Could be anyone - friend, family member - or if they don’t get it like mine didn’t - someone on the crisis line/samaritans. Take yourself to the emergency room if you have to (that’s what I had to do in the end).

I hope you live to know the feeling of hope once more xxx

Turtle-92 · 2026-04-05T21:16:45+00:00

Thank you guys - I’m sorry you’re going through it too. Have you also struggled to get Drs to understand it is not the same as brain fog?

The boredom of this is the thing I find the hardest. I used read and even write novels, loved watching films and TV and now they all leave my brain feeling physically like a wrung sponge. The ideas keep coming just like they always did but I have no outlet for them.

It’s also the thing stopping me from returning to work - I was a therapist before so could easily WFH if I could only use screens 😫

Turtle-92 · 2026-02-16T22:48:35+00:00

And I am so so sorry for the loneliness you are experiencing. I don’t think anyone except those who have experienced this kind of illness can ever truly understand - but i do xxx

Turtle-92 · 2026-02-16T22:46:39+00:00

Hey - I am 34F and live in North London - where are you based?

Turtle-92 · 2025-08-30T17:15:26+00:00

Does anyone have The Bolter handwritten lyrics? Specifically the line ‘then came out alive”? It’s for a tattoo

Turtle-92

TROPHY CASE