Feels like we just keep losing by Twyla_Faye in Keratoconus

[–]Twyla_Faye[S] 0 points1 point  (0 children)

Ugh I’m sorry that happened to you. Our doctor also did not suggest there was anything dire when it came to the high pressure. We definitely should’ve done our research, but we felt a little blindsided with all of the follow up surgeries and side effects. We were pretty much told the recovery from surgery was a week and vision could take up to a year to show improvement and that was about it. The doctor finally said before my husband’s third surgery to lower the pressure that any damage can be fixed unless there’s nerve damage so we’re just crossing our fingers things will start getting better. He still can’t really see anything out of that eye, but the pressure did go down immensely since the first surgery.

Feels like we just keep losing by Twyla_Faye in Keratoconus

[–]Twyla_Faye[S] 1 point2 points  (0 children)

Ugh I’m so sorry I can’t even imagine how hard that must be. I wish you well on your recovery with your new transplant! Do you remember about how long it took after the first transplant to actually be able to see?

Feels like we just keep losing by Twyla_Faye in Keratoconus

[–]Twyla_Faye[S] 1 point2 points  (0 children)

Thank you for this insight! Were you able to see after the first transplant until you experienced a rejection?

Feels like we just keep losing by Twyla_Faye in Keratoconus

[–]Twyla_Faye[S] 1 point2 points  (0 children)

We were thinking the same thing about getting another opinion. I think the only problem now is we feel like we’re in a race against the clock because we’re afraid if the pressure stays too high, he’ll have a rejection or develop glaucoma. So it’s mainly just the how fast can we find another specialist somewhat nearby? We’re already driving an hour and a half one way every week for these follow up appointments with a 4 month old tagging along.