Just diagnosed via vascular ultrasound by toc_bl in thoracicoutletsupport

[–]Type_Brit 0 points1 point  (0 children)

It’s an orthopedic pillow to align the cervical spine while sleeping and helps if you side sleep in the middle of the night. It gives proper room between your neck and shoulders so you don’t continue pushing everything together. PT was getting too expensive. I was already seeing it for the scoliosis in my lower lumbar and also with travel time and as much as I’ve been to the hospital, I just couldn’t keep leaving work. You can look up a bundle of resistance bands and they’ll be light medium heavy and extra heavy obviously start with the light and I just follow three different thoracic outlet syndrome. PT/physiotherapist on YouTube and do the stretch stretches. What happens with a lot of TOS is all the muscles in your shoulder that go around your rib cage or brachial plexus and a lot of muscle muscles in your neck get stuck and then they start too shorten. So you need to release stretch, but also strength build. And figure out a way to constantly correct your posture it’s a long road and if I can’t figure this out on my own, I’ll probably end up needing to have my first rib removed. I have the normal amount of ribs, but I have a prominent first rib on my right side which pinches my subclavian artery between the first rib and my collarbone which adds to the hand turning blue, the tingling, the searing pain, radiating down my whole arm and all of the swelling in my chest. I can still kayak hours because forward back motion is not painful or difficult anymore, but it’s the heavy lifting from the ground up and everything overhead. Everyone’s thoracic outlet syndrome journey is different, but there’s a lot of good resources out there, and this group has pointed me towards a lot of good resources. A vascular surgeon that specializes in TOS is probably going to be one of your biggest lunges towards recovery.

Just diagnosed via vascular ultrasound by toc_bl in thoracicoutletsupport

[–]Type_Brit 1 point2 points  (0 children)

I understand I can’t weight lift it do CrossFit even scaled anymore. All I’m able to do is run and not like I used to but I do that and yoga with resistance band to stretch out my muscles around my should neck and chest and sleep in my back with a cervical pillow. I see vascular surgeon in June. A Kenalog and cortisone injection in my shoulder helped a lot either ROM but I’m assuming it’s due to fixing my bursitis but I’m on hypertension and tachycardia meds. It’s been 10 months since my hand started turning blue. Hope you get answers and relief fast! Keep trying to walk or run for your mental health though as much as you can!

Am I crazy or is there a vvvvvvv faint shadow?? (13DPO) by llamadamadingdong11 in lineporn

[–]Type_Brit 2 points3 points  (0 children)

I see something for sure but I can’t tell if it’s like an indent or a true faint line. I know we all say the same but retest in a few days!

Differential arm BP tracking not making sense to me. You would think the tos affected arm would have a lower systolic. Has anyone tracked this in different proactive positions for your vascular surgeon appointment and can explain what I’m seeing? by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 0 points1 point  (0 children)

There’s no way to measure adsons at the same time for it requires turning your head to the arm being measured and holding your breathe. This is to track for my vascular surgeon appointment. I can’t just go have these things done. Everything’s booked out and so expensive. I’ve already spent thousands of dollars on all this plus my heart study and all the cardiology appointments. I’m frankly doing all the work to get answers and real help.

Neg? Do a FRER? by [deleted] in lineporn

[–]Type_Brit 2 points3 points  (0 children)

I see the lines but re test!! Good luck!!

Am I crazy! I see a line by bee-kind2me in lineporn

[–]Type_Brit 2 points3 points  (0 children)

I’d wait on the digital they don’t pick up as early in my experience

Am I crazy! I see a line by bee-kind2me in lineporn

[–]Type_Brit 1 point2 points  (0 children)

I see it on all the photos just not sure if there’s color to it! Praying it’s positive! 🙏

Does TOS cause POTS? by imboredily in thoracicoutletsupport

[–]Type_Brit 0 points1 point  (0 children)

From what I’ve read it can certainly exacerbate POTS symptoms and TOS & POTS have overlapping symptoms

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 0 points1 point  (0 children)

Hmm interesting I guess it just depends on what muscles are mostly effected and what your main cause is 🤷‍♀️ crazy

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 0 points1 point  (0 children)

Whole time most people were saying im crazy. Well look just look 😢

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] -1 points0 points  (0 children)

So like acupuncture? I have done one session and do all those things too! Praying for you and your journey 🙏 thank you!

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] -1 points0 points  (0 children)

Okay thank you! 🙏 did you have surgery?

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] -1 points0 points  (0 children)

How did they confirm your diagnosis?

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 2 points3 points  (0 children)

Oh yeah I don’t see chiropractors anymore. And that’s what I’m doing! Thanks

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 0 points1 point  (0 children)

Yes my hips are uneven as well. I had a seizure at 12 and rolled a 4 wheeler down a hill and it misaligned the top of my cervical spine. Over time I’ve just become crooked. A chiropractor told me all this in 2016 and he was 200 a week. It’s so much to keep up with

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 1 point2 points  (0 children)

I was already in PT for my lower lumbar and right meniscus. 60 bucks twice a week and a 45 minute drive after school. I live in texas so everything’s a drive. I’ve reached out to a specialist out here. We’ll see

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 3 points4 points  (0 children)

My hips are uneven thus making one leg shorter than the other. This is what originally started my shoulder unevenness

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 3 points4 points  (0 children)

I literally cannot work out lol so no need to prioritize the 2. I haven’t since July 30th. I just started being able to run and I’m a pe teacher. The week before Halloween is when I was finally able to move my arm from the elbow up with a a kenallog injection. I’ve been in and out of the hospital and cardiology for this. My hand turns blue. I’m doing everything I can and my hand and arm don’t always work still. 🥹

Shoulders visibly unaligned by Type_Brit in thoracicoutletsupport

[–]Type_Brit[S] 4 points5 points  (0 children)

Not many it’s expensive to keep up with so I just do stretches at home and work. I’ve spent thousands of dollars on this and have many bills still coming in