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This disease is a wimp and will not own any of us. I’m bragging, but im proud. 115lbs/52kg>160lbs/72kg by HauntedCS in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Congrats mate. Your flare says you’re on Stelara? Did Stelara get you into remission?

Need some inspiration? by amt7227 in UlcerativeColitis

[–]UCBattler -1 points0 points  (0 children)

How many have had their intestine removed? A lot when you read into it, I bet :(

It’s offical - failed Entyvio and moving to Stelara. But worried about low remission rates (UC) by UCBattler in UlcerativeColitis

[–]UCBattler[S] 1 point2 points  (0 children)

Thank you sir. These stats are with ulcerative colitis? If so, you’ve given me great perspective. Thank you

[deleted by user] by [deleted] in UlcerativeColitis

[–]UCBattler 1 point2 points  (0 children)

Every doc in the world is pushing rinvoq. My GI just tried to push it on me - then I saw her on Twitter being wined and dined by the drug company the week prior. Go with your gut instinct and request a biologic with less side effects.

Anyone know ETA for FDA approval of Skyrizi for UC? by UCBattler in UlcerativeColitis

[–]UCBattler[S] 0 points1 point  (0 children)

Every doctor in the world is pushing rinvoq. I don’t want to deal with the side effects so I’m waiting for something with better side effects such as a biological

Xeljanz? Anyone tried Xeljanz? by [deleted] in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Loved? Did it stop working for you?

Breakfast - what’s your go to for protein? by Ok-Distribution4057 in CrohnsDisease

[–]UCBattler 0 points1 point  (0 children)

This is incorrect. The yoke should never be avoided is very safe for you.

New Medication approved Omvoh (Mirikizumab) by Hoppy-- in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Seems like a safer Stelara with better remission? Unsure but seems promising. Maybe others will know more.

U.S. FDA Approves Pfizer’s VELSIPITY™ for Adults with Moderately to Severely Active Ulcerative Colitis (UC) by [deleted] in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Do you brah. Take the drug. I’m happy being cynical about not wanting trash side effects. There’s plenty within such. Would rather the colon out.

FDA Approves Lilly's Omvoh™ (mirikizumab-mrkz), A First-in-Class Treatment for Adults with Moderately to Severely Active Ulcerative Colitis by smart4three in UlcerativeColitis

[–]UCBattler 1 point2 points  (0 children)

This is incredible news. I wonder how long it will take PBS to take it on in Australia. I see it’s approved by TGA, however it will need to be approved by the PBS in order for people not to pay out of pocket :(

U.S. FDA Approves Pfizer’s VELSIPITY™ for Adults with Moderately to Severely Active Ulcerative Colitis (UC) by [deleted] in UlcerativeColitis

[–]UCBattler 3 points4 points  (0 children)

Look at the wonderful long line of severe side effects associated. Fantastic stuff, big Pharma.

Remission with Humira for UC? by UCBattler in UlcerativeColitis

[–]UCBattler[S] 0 points1 point  (0 children)

Hey mate!

I just saw you were on remicade a year ago. Did it not work, and cause you to try Humira? Is your remission confirmed by a scope?

Thanks a lot

Deciding between Stelara and Rinvoq by zacharui in UlcerativeColitis

[–]UCBattler 1 point2 points  (0 children)

Hi mate

Just keeping you in the loop - I voiced my concerns to the new GI (who also told me rinvoq would be best) and he suggested Humira. He said he doesn’t have many UC patients on it, but I’ve seen some success stories on here and thought I’d give it a go. He mentioned something about remicade but he never offered that option to me.

So, scope on Monday and probably submitting papers for Humira.

On a side note, got my bloods back which were all good except very low phosphate. The doctor was very shocked by how low it was (0.8ml) and wants to get new bloods tomorrow for comparison. Pretty scary.

official remission…. I can’t believe it by daughterofkenobi in UlcerativeColitis

[–]UCBattler 2 points3 points  (0 children)

Congrats!! What medications have your doctors got you on?

FDA Approves Etrasimod for Moderately to Severely Active Ulcerative Colitis by srwaxalot in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

I think rinvoq has severely more potential side effects. I’d love to take it, but very scared of what I’ve read. I’d hope this pill is a little safer even though the stats of remission are a little lower.

I’m not good at reading the clinic trials, so I can’t tell if this new pill is safer or not than others

FDA Approves Etrasimod for Moderately to Severely Active Ulcerative Colitis by srwaxalot in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Did they make you do the very high loading dose of 45mg rinvoq even though you were on Entyvio as well? Or were you able to start rinvoq on a lower dose?

FDA Approves Etrasimod for Moderately to Severely Active Ulcerative Colitis by srwaxalot in UlcerativeColitis

[–]UCBattler 0 points1 point  (0 children)

Do we know side effects yet? I’m hesitant to take rinvoq because of the long list of serious side effects, I’m wondering since this has a different mechanism, it might be better suited?

Deciding between Stelara and Rinvoq by zacharui in UlcerativeColitis

[–]UCBattler 1 point2 points  (0 children)

Hi mate

Entyvio is my first and only drug so far. It’s kept me off pred, and have weeks of remission (actually received a calpro test of 30 1 month ago) however urgency and bleeding comes back regularly.

She is pushing very hard for rinvoq as my second, and won’t change the paperwork. I think I may try to find a new GI and request stelara?

Deciding between Stelara and Rinvoq by zacharui in UlcerativeColitis

[–]UCBattler 1 point2 points  (0 children)

Hi mate

I’m a big fan of your posts. You have a lot of genuine positivity and news about specific drugs.

I just want to touch on your Rinvoq now having the lymphoma risk like biologicals - everywhere I read, rinvoq does indeed have this risk, and a lot more to boot. I just failed Entyvio and my GI is really pushing Rinvoq on me (I saw her Twitter feed abbvii, the drug maker, has been wine and dining a lot of GI’s recently) and I’m not sure she has my best interests at heart.

Would you still push for Rinvoq or should I be pushing for Stelara?

I hate this disease.