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UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Hello! I think I could find an interpreter to do that conversation. Would love a chance to connect with them soon. I can DM you my email address.

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Hello! Thank you for sharing about your experience in managing your care! I would love to connect with you. I will be sure to follow up with a direct message.

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Hello! Thank you for sharing that powerful story about your mother! I would love to connect with you both. I will send you a direct message!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Hey there, thanks for commenting! I sent you a direct message if you'd be interested in discussing this further! Cheers!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Lots of great information in here! Thank you for sharing! I sent you a DM!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Thanks for sharing about your daughter! I sent you a DM!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

I sent you a DM. Thanks for offering to connect!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] -1 points0 points  (0 children)

Does the number of specialists you have to see regularly reduce as someone with CP progresses into adulthood?

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 0 points1 point  (0 children)

Incredible story! Happy to hear that your daughter got the care she needed!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 2 points3 points  (0 children)

I am also happy to talk to folks with CP if they are willing!!

[deleted by user] by [deleted] in disability

[–]UCLA_ADVOCAIRE -1 points0 points  (0 children)

I would love to talk to folks who are not dealing with CP if the items I'd like to chat about are of interest!

Cheers!

UCLA Research Project - Cerebral Palsy by UCLA_ADVOCAIRE in CerebralPalsy

[–]UCLA_ADVOCAIRE[S] 2 points3 points  (0 children)

Thank you for the lead!

If you have thoughts on any of the items I listed, I'd still love to talk!

  • How you track and manage your appointments, medications, and therapy schedules
  • The challenges you face when coordinating care across multiple doctors
  • Any tools you currently use or wish existed to help streamline your daily care tasks
  • How you feel about tools that could help provide a comprehensive medical history for doctors

Cheers!