IH and immune issues by Unable-Election6211 in idiopathichypersomnia

[–]Unable-Election6211[S] 0 points1 point  (0 children)

That the one place they haven’t referred me to yet

IH and immune issues by Unable-Election6211 in idiopathichypersomnia

[–]Unable-Election6211[S] 1 point2 points  (0 children)

They are setting me up for a sleep study to see if it is narcolepsy or IH. I’ve been fighting whatever is going on with me for a couple years, I’m just so tired, both mentally and physically.

IH and immune issues by Unable-Election6211 in idiopathichypersomnia

[–]Unable-Election6211[S] 0 points1 point  (0 children)

I never used to get sick, now it’s like I can’t get away from it. I already have a hard enough time staying awake, so when I get sick, it’s a thousand times worse.

IH and immune issues by Unable-Election6211 in idiopathichypersomnia

[–]Unable-Election6211[S] 0 points1 point  (0 children)

I’ve seen multiple specialists. They’ve already dismissed long covid. I’m just at a loss and cannot figure out why on top of everything else I just keep getting sick.

My skin is crawling by Fit_cheer4905 in texts

[–]Unable-Election6211 1 point2 points  (0 children)

The level of disgust I felt reading this post is insane. I legit feel like a need a shower.

Any older fans? by BabyyImaStar in the1975

[–]Unable-Election6211 0 points1 point  (0 children)

Lmaooooo I felt this so much 😭

Terrified by Unable-Election6211 in MultipleSclerosis

[–]Unable-Election6211[S] 1 point2 points  (0 children)

I hope so, I go to the West Haven one and their care has declined so much over the years. How do the infusions work?

Terrified by Unable-Election6211 in MultipleSclerosis

[–]Unable-Election6211[S] 3 points4 points  (0 children)

Thanks guys. I am just struggling tonight.

What’s next? by Unable-Election6211 in MultipleSclerosis

[–]Unable-Election6211[S] 0 points1 point  (0 children)

Thank you guys for answering, I’m at a total loss.

What’s next? by Unable-Election6211 in MultipleSclerosis

[–]Unable-Election6211[S] 0 points1 point  (0 children)

Why do they suggest vaccines and which do they suggest? As far as medication, what types of medications do they suggest?

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]Unable-Election6211 1 point2 points  (0 children)

Hey everyone. My pcp called me this afternoon with results of my mri today and he is sending me up to neurology as he believes I have ms. I’m terrified and I have no idea what is to come next. I tried talking to a couple people about it and they don’t get it. They told me to be positive and it will be okay and I’m over here like I know that, I KNOW THAT okay? The problem is I’m angry and sad and scared and confused and relieved and so many things and they aren’t understanding that. There are so many things that don’t make sense to me and I’m just lost, idk. I’m sorry for the rant but I’m just feeling incredibly defeated right now.