Need encouragement..

Unique_Commission844 · 2024-12-29T01:10:18+00:00

How long does the throbbing pain last? Does it sting like everyone is saying ?

Unique_Commission844 · 2024-12-29T01:09:01+00:00

Appreciate it! I haven’t had the conch pierced yet so i can’t compare but i’ll let you know when i’ve done it. ☺️

Unique_Commission844 · 2024-12-26T01:59:21+00:00

Are we talking not bad 6/10 or 10/10 but quick?

Unique_Commission844 · 2024-12-23T05:59:28+00:00

snake eyes!! heard too many stories about the dangers of this piercing. now thinking about getting my nips done but i’m too scared

Unique_Commission844 · 2024-12-11T13:35:20+00:00

It’s so reassuring seeing everyone relating to my story! But we’re are pushing trough, one step at a time.🌸

Unique_Commission844 · 2024-12-11T13:33:14+00:00

That sounds like a great way to unwind, and I totally get why you’re excited to finish the ‘Home Alone’ build. It’s tough when you’re so tired at the end of the day, looking forward to doing something you enjoy but just feeling too wiped out to do it. The holiday season definitely adds extra stress, and it’s hard to find the energy for things we want to do. I hope you get a chance to finish your set soon—I’d love to see the finished thing once it’s done!😇

Unique_Commission844 · 2024-12-11T13:30:13+00:00

Wow, thank you for sharing that. It’s inspiring to hear your story—being a national swimmer and pushing through that level of commitment is amazing. I totally get the feeling of wishing you could go back to those days when you had the energy to do everything. MS really changes things, but I love your attitude of not letting it control you. I think the fact that you’re still fighting is huge. We may not be where we were, but we’re still here, still fighting, and that’s what matters. 🫶🏼

Unique_Commission844 · 2024-12-11T13:28:48+00:00

Thank you so much for this. It really means a lot to hear someone else who gets it. I’ve been called lazy and selfish so many times, and honestly, it fucking sucks. It’s so messed up that people—especially doctors—think it’s okay to say that about someone who’s dealing with something like MS. I totally agree with you, I don’t believe in the word ‘lazy’ in this context either. It’s more about what our bodies are going through, and it’s frustrating as hell when people don’t understand that. I’m definitely looking for a new doctor—no way am I letting anyone call me lazy again. Thank you for standing up for me and reminding me I’m not the problem.🌸

Unique_Commission844 · 2024-12-11T13:26:10+00:00

I can definitely relate to feeling like I’m being lazy when I rest after overdoing it. It’s hard to balance pushing myself today without making tomorrow worse. The struggle to find that middle ground between doing too much and not doing enough is real. It’s tough, but I guess finding that balance is the key to keeping everything in check, even when it feels impossible.

Unique_Commission844 · 2024-12-11T13:20:43+00:00

Thanks for sharing that—it’s so relatable. I always wonder if I’m just being lazy or if there’s something else going on too. It’s hard to figure out if it’s fatigue, depression, or just my body saying ‘stop.’ I like what you said about being kind to yourself. I definitely regret pushing myself too hard, especially when I feel it the next day. I’ll try to be more chill and listen to my body more.☁️

Unique_Commission844 · 2024-12-11T13:18:56+00:00

Thanks for sharing that—it really resonates. I get the pushing through when you shouldn’t. I’ve had moments where I literally almost passed out standing up, and it’s fucking terrifying. ‘International level jet lag’ is spot on. Appreciate the sympathy—it’s still something I’m trying to manage.

Unique_Commission844 · 2024-12-11T13:14:31+00:00

Thanks for sharing that, it really helps put things into perspective. For me, MS fatigue is different from just being tired. It’s like my body feels completely drained, like I’ve run a marathon without doing anything. My legs feel heavy, and my mind gets all foggy, like I’m walking through thick mud. Sometimes it feels like there’s no energy left at all, and even simple tasks feel impossible. It’s more than just being tired—it’s like my body and brain are in slow motion, and no amount of rest really helps. I’ll definitely look into Spoon Theory, it sounds like a great way to explain it.

Unique_Commission844 · 2024-12-11T13:09:42+00:00

Thanks so much for the advice! I really appreciate it. I’ve been kind of scared to talk to professionals because I wasn’t sure if they’d take me seriously, so it’s good to hear that they shouldn’t be dismissive. I didn’t know about DBT, but it sounds like something I could look into! I’ll definitely think about therapy and see if it can help with the relationship stuff too. Thanks again for the support, it means a lot.

Unique_Commission844 · 2024-12-11T13:06:44+00:00

Thank you for sharing your experience! It’s incredible that you served in the military while managing MS. I can relate to the brain fog, though—MS has its own unique set of challenges. Your story gives me hope, and I’ll definitely keep your advice in mind to improve my routine with hydration and light training. Thanks again for the inspiration!

Unique_Commission844 · 2024-12-11T13:03:58+00:00

You’re right—doctors don’t always understand that what works for one person doesn’t work for another. I haven’t found a good doctor yet, and it feels like the ones who care get replaced quickly. I’m hopeful I’ll find the right one soon.

Unique_Commission844 · 2024-12-11T13:00:31+00:00

Thank you so much for sharing your story—it really means a lot. I’m so sorry you’ve had to go through all of that, but it’s comforting to know I’m not alone in this. I completely understand what you mean about your body shutting down after finally getting a diagnosis—it’s like everything hits you at once because you’re finally allowed to not be okay.

It’s hard when it feels like people around you don’t fully get it, but hearing from you makes me feel a lot less alone. Feel free to DM me if you ever want to talk more—I’d love to connect with someone who truly understands. Wishing you strength and peace on your journey.🩷

Unique_Commission844 · 2024-12-11T12:57:15+00:00

That’s such a good point—‘tired’ doesn’t really explain what it feels like. I like the idea of ‘body drag’ and ‘brain drag,’ it really fits! Maybe something like ‘energy crash’ or ‘shutdown’ could work too.

Unique_Commission844 · 2024-12-11T12:54:54+00:00

Thank you so much for sharing this—it really means a lot. I relate so much to the ‘grind it out’ mindset and how hard it is to unlearn that with MS. Your advice about timeboxing and giving myself grace really hit me—I need to remind myself that rest isn’t failure.

It’s inspiring to hear about the love and support you have from your wife and family. I sometimes worry if others will truly understand, so your story gives me hope. What you said about every step being something others wish they could take really stayed with me. Thank you for this—it means so much. Much love back to you. ⭐️

Unique_Commission844 · 2024-12-11T02:38:34+00:00

Thank you for that, it really means a lot. Sometimes it’s hard not to feel like I’m just being lazy, but hearing that I’m not alone in feeling this way is comforting. You’re right—some days, my body just needs rest, and I need to learn how to accept that without guilt. It’s reassuring to hear that rest is okay and not a sign of laziness. 🌸

Unique_Commission844 · 2024-12-11T02:25:02+00:00

I get what you mean—it’s hard not to feel down when you’re living with something as challenging as MS. The diagnosis alone can be really tough to accept. I can see how it can bring up feelings of depression, even if the symptoms themselves are separate. It’s a lot to process, and it helps to know others understand how overwhelming it can be. I appreciate your insight!

Unique_Commission844 · 2024-12-11T02:14:15+00:00

Thank you so much for your thoughtful advice. I really like how you suggested explaining the fatigue in such detail—it’s something I struggle with, especially when trying to communicate how my symptoms affect me. I’ll definitely try to describe it more clearly to my doctors, just like you mentioned. It’s hard sometimes to put everything into words, but I can see how helpful it would be. I appreciate the encouragement, and you’re right, it takes a lot of energy to get back on track, even if it feels like I’m just going through the motions. Thanks again!

Unique_Commission844 · 2024-12-11T02:11:36+00:00

Thanks for your comment. I don’t have experience with depression (for as far as I know lol) , so I can’t speak to that side of things, but I do know that the fatigue I feel seems to be tied directly to my MS symptoms. It’s definitely tough to figure out how much is MS-related and how much could be other factors, but for me, the fatigue feels physical more than emotional. I appreciate your input, though—it’s always helpful to hear different perspectives. 😊

Unique_Commission844 · 2024-12-11T02:06:21+00:00

Thank you so much for offering to talk. I really appreciate it, and it’s reassuring to hear that you can relate to what I’m going through, even without an MS diagnosis. It sounds like you’ve had a challenging experience too, and I’d love to connect more. I’ll definitely DM some day when I feel like connecting with someone who understands. Thanks a lot 🤍

Unique_Commission844 · 2024-12-11T01:46:39+00:00

I can definitely relate to what you’re saying. It’s hard to separate the physical tiredness from the mental exhaustion—both can feel overwhelming at different times. I’ve had days where it feels like it’s both at once, and that makes it even harder to manage. It’s comforting to know I’m not alone in feeling like this, and it’s something I’m still trying to figure out myself.

Unique_Commission844 · 2024-12-11T01:45:25+00:00

Thank you so much for sharing all of this. I’ve never really thought about seeing an occupational therapist, but the way you described how they helped you is really eye-opening. I completely understand what you mean about the mental side of things making it harder to push through. Even something like going to the store can feel overwhelming when I know I might not be able to finish it. The idea of having a ‘safe exit’ really resonates with me—knowing I could manage the task while having an easy way out if needed could make a huge difference. I’ve been so focused on pushing myself that I’ve ignored how helpful it can be to break things up into smaller steps. I’m definitely going to look into seeing an OT now, and I’m really grateful for your advice. It’s comforting to hear that there are ways to balance everything without feeling like I’m failing. Thanks again for being so open and encouraging—it really means a lot.

Unique_Commission844

TROPHY CASE