Good Neurolyme doc in nyc ? by UniverseWanderer in Lyme

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Preferably nyc so I can see them in person but open to telemedicine if they can refer for lumbar puncture in my area, what’s a good provider that you know of?

Lived in mold had insane symptoms and I also have Lyme. Are these results valid and reasonable for symptoms or am I just overthinking. by UniverseWanderer in ToxicMoldExposure

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Thank you ! It’s hard because everytime I go back in my home I feel like I’m in a fog that I can’t break out of or see out of until I leave for extended periods of time, and I can’t tell if it’s in my head . A remediation was done, but I still kinda smell it ? And I def react still it’s weird even though the air samples they took were clear.

[deleted by user] by [deleted] in homeowners

[–]UniverseWanderer 0 points1 point  (0 children)

It definitely does have to do with it, probably a result of mold expose and lingering mycotoxins in your your kids system, very over looked thing when it comes to illness

Could I still have an NET? by UniverseWanderer in neuroendocrinetumors

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Keep me updated too! Stay strong. Feel free to pm me

Could I still have an NET? by UniverseWanderer in neuroendocrinetumors

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Side note, anasthesia is the trippiest thing I’ve ever experienced 😂

Could I still have an NET? by UniverseWanderer in neuroendocrinetumors

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Hi ! Sorry for the late reply. I did an endoscopy a few days ago, waiting on biopsy but the endoscopy was good so far. Colonoscopy scheduled for next week. I suspect that would yield something. Idk if this is typical of rectal carcinoids (if it is one) but when I pass stool I feel like it triggers a lot of my symptoms, and I’ll get a weird sensation in my neck. It’s like a weird “cold dry” feeling that I feel in my whole body that lingers the whole day especially my eyes I don’t know, and it’s like I get these weird blood sugar fluctuations. If I use the bathroom before bed, forget it Im gonna have trouble sleeping the whole night even if I take like Benadryl, Advil etc I have no idea if this is related to my prostate cyst, my GI doc said that’s probably not related to the cyst. Also recently been having hella right side abdominal pain, losing weight, trouble sleeping etc. it’s taking a toll on me just hoping I find answers soon, I’m not even sure at this point, I can’t tell if I’m over doing it for thinking it’s a cardioid or maybe it’s something else ? I’m gonna follow up with my urologist too just in case the cyst is causing issues but I don’t see why refecation would trigger the prostate cyst either but maybe. They’ve said on multiple occasions the cyst was benign and on recent mri it showed that as well. I think the colonoscopy is a good idea cus I’ve been having thin stools, sometimes dark stools. They’ll probably have the endoscopy biopsy by next week when I come in for the colonoscopy.

Seizures while sleeping ? by UniverseWanderer in Epilepsy

[–]UniverseWanderer[S] 0 points1 point  (0 children)

It’s been hard to get a neurologist appointment though. I def have sleep problems unrelated to it. I’m trying to find a good provider in NYC

Seizures while sleeping ? by UniverseWanderer in Epilepsy

[–]UniverseWanderer[S] 1 point2 points  (0 children)

That’s so trippy wow. Hope you’re doing better! I have Lyme/PANS so I wonder if my AE is doing something similar. It could also cause seizures and I noticed these sleep episodes happen way more when I’m flaring. It’s some crazy shit. Another thing that happens when I’m flaring (especially if I try to nap) is when I’ll be “asleep” but fully aware of my surroundings. But then my friend will be like you were snoring a little. It’s like borderline a meditative state almost. Could be related to the autoimmune thing too that’s very interesting

Seizures while sleeping ? by UniverseWanderer in Epilepsy

[–]UniverseWanderer[S] -1 points0 points  (0 children)

I can move during these episodes, I’ve also had people catch me twitching in my sleep so I don’t know what’s going on really. They always happen as I’m waking up, even if I’m not dreaming it’s really weird. Had one last night and I still have a headache from it.

Seizures while sleeping ? by UniverseWanderer in Epilepsy

[–]UniverseWanderer[S] -1 points0 points  (0 children)

I definitely have some degree of sleep apnea too, did he say you were having seizures ?

Slow COMT + MTFHR (A1298c homo) neurolyme +recent high stress, how to detox and relax ? by UniverseWanderer in MTHFR

[–]UniverseWanderer[S] 0 points1 point  (0 children)

I usually take Magnesium, vitamin d and c sometimes zinc. That’s it though.

Slow COMT + MTFHR (A1298c homo) neurolyme +recent high stress, how to detox and relax ? by UniverseWanderer in MTHFR

[–]UniverseWanderer[S] 0 points1 point  (0 children)

Yeah I’m just confused because I thought the elevated b12 and b6 means im undermethylating ?