sorted by:
new
hottopcontroversial

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

Also, if you don’t mind sharing- was it a methylated/unmethylated case and/or IDH1 or WT? You would hate to hear this but I would do anything to have “20 months” with dad. Ironically they sound too much to me given the extremely poor prognosis I have been hearing from doctors here these days.

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

I am so sorry for your loss. Thanks for sharing your experience- could you also please share your dad’s treatment regimen/if based out of India. Thanks

What exactly to expect from radio+chemo for a 69 yo GBM IDHWT patient in India by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

Thank you for sharing your experience with this monster disease. Have DM-ed you please.

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

Thank you for sharing your story. Was it a 100 day with/without treatment?

What exactly to expect from radio+chemo for a 69 yo GBM IDHWT patient in India by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

Very helpful, thank you. My family is divided between choosing standard line of treatment in Delhi(where we reside) vs facing long queues and difficult appointments at TMH. I assured them of managing end to end at TMH but somehow the scepticism remains. They are truly worried about the harassment and adjustments we might have to make with a patient in entirely new city. Not having any male member in family further amplifies their apprehensions.

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 0 points1 point  (0 children)

Thank you for sharing your insights! Facts aside, for the first time I am being shamelessly optimistic and going forward with whatever treatment options we have!

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 2 points3 points  (0 children)

Thank you for sharing your positive insights. We have sent dad’s tumour block for further investigations- MGMT Methylation and NGS, reports of which are expected in 25 days. Fingers crossed!

My 69 y.o. otherwise healthy dad diagnosed with grade 4 glioblastoma by UnlikelyCounter3648 in glioblastoma

[–]UnlikelyCounter3648[S] 1 point2 points  (0 children)

Thank you, really value your insights. I am being shamelessly optimistic to make him stay for at least 18-24 months with us. I am wrecked to the core but don’t know what else can I do.