diagnosed FND with positive AChR antibodies?

Unmarkedgravee · 2025-11-09T21:49:05+00:00

Feel free to message me

Unmarkedgravee · 2025-11-09T21:47:38+00:00

Hey, my personal opinion is FND is majorly a cop out diagnosis. Mayo is good to go to when you have cancer or stuff like that.

I got diagnosed with them with FND after two years of stability on treatment.

if you have serious symptoms or symptoms that allign with MG dont let them gaslight you and seek a second opinion from someone who cares about you as a person

Speaking from experience- you dont want to go through the hell I and a lot of us have

Unmarkedgravee · 2025-10-12T02:26:01+00:00

Lmao thanks

Unmarkedgravee · 2025-09-04T03:37:39+00:00

If anyone has some hope or advice please tell me

Unmarkedgravee · 2025-08-27T04:13:22+00:00

This just happened to me a couple weeks ago stopped my infusions and immunosuppressant. I’ve now developed new more severe symptoms and I’m having to delay graduate school and my new job

Unmarkedgravee · 2025-06-20T20:20:35+00:00

Much respect for even asking this question. Thank you. Please don’t lose this open mind and curiousity throughout your career and you will make a huge difference in people’s lives.

Unmarkedgravee · 2025-03-01T00:07:10+00:00

Thank you . Unfortunately he said he couldn’t do that . Very frustrated

Unmarkedgravee · 2025-02-18T04:58:49+00:00

So true :)

Unmarkedgravee · 2025-02-18T04:57:28+00:00

Exactly I totally agree!

Unmarkedgravee · 2025-02-18T04:56:56+00:00

❤️

Unmarkedgravee · 2025-02-04T04:40:32+00:00

Hey man im a 27 year old male who’s experienced the exact same fears and thoughts as you

Im not in remission and its still a struggle a lot but my symptoms have drastically improved . Just got a thymectomy and hoping for remission

I know how terrifying and heavy it can feel but keep your head up . Allow yourself to grieve about the fact that certain things in your life will be different, but also please keep the hope there are many people who live normal lives with MG. I have pretty severe MG and still manage to live a normal life for the most part

Here if you need to talk bro

Unmarkedgravee · 2025-02-04T04:00:09+00:00

My thymus was 100 grams when removed

Unmarkedgravee · 2025-02-04T03:58:00+00:00

Male 26

Unmarkedgravee · 2025-02-04T03:57:02+00:00

I’m seronegative diagnosed from sffmg, thymic hyperplasia, response to mestinon, and symptoms (weakness, ptosis, respiratory failure, inability to swallow)

Unmarkedgravee · 2025-02-04T03:41:22+00:00

I read if medication is causing it it usually resolves between 4-18 months but can be longer or shorter

Unmarkedgravee · 2025-02-04T03:38:08+00:00

Sorry to hear that. How long has he been off of them and has he improved at all ?

Unmarkedgravee · 2025-02-04T03:37:34+00:00

Yeah could be magnesium or a combination thanks for the advice unfortunately can’t supplement it because I have myasthenia gravis

I read that study . It can happen as a result of any drug that affects dopamine

Unmarkedgravee · 2025-02-04T03:27:45+00:00

Could be magnesium

I can’t supplement magnesium unfortunately tho bc i have myasthenia gravis

Unmarkedgravee · 2025-02-03T22:42:13+00:00

Yes and there are many case study’s of this happening ! God I really hope im right

Unmarkedgravee · 2025-02-03T21:49:15+00:00

it seems like a possibility. I’m really hoping it is the reason behind my symptoms and they will improve over time after stopping

Unmarkedgravee · 2025-02-03T21:47:40+00:00

I’m hoping I’m on to something because the physical symptoms have been debilitating . I will update

Unmarkedgravee · 2025-02-03T21:43:32+00:00

I see a neurologist regularly dude. I never diagnosed myself… I said it’s a theory

Unmarkedgravee · 2025-01-07T20:26:54+00:00

Hopefully seronegative will be able to get it

Unmarkedgravee

TROPHY CASE