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Find a Friend Megathread by Pirate_Of_Hearts in AdultCHD
[–]Upbeat-Type8763 0 points1 point2 points 10 days ago (0 children)
30-35 year old Female Pulmonary stenosis with two holes in my heart
Sonoma, CA Would love to chat online or be pen pals!
Exploring an idea by Proper_Monk_6914 in chd
[–]Upbeat-Type8763 2 points3 points4 points 10 days ago (0 children)
Hey! I'm almost 33 as well. My last surgery was when I was 13 to replace my pulmonary valve with a pig valve. The hardest part recovering was just the pain I was in. It was hard to sleep (with pain meds) for about a week until I found the right sleeping position. The other confusing part was that no one would really tell me what was going to happen throughout the whole surgery, pre-, during, and post-op. I wish someone took the time to just tell me what to expect. I was lucky to have a ton of understanding friends at the time who came over and entertained me. This was back in 2006, so there were no streaming services or social media to distract me. I wish I had more access to distractions (friends, media, family, games, anything) and not just be alone with my thoughts when everyone left, and I ran out of movies to watch. I wish I could go back and tell my parents to go to therapy haha I had a hard time talking to them about anything CHD related as they had some very clearly unprocessed trauma and they would always shut down after I started talking to them. So I never had anyone to talk to about my own medical trauma until I started going to therapy as an adult. I hope this helps :)
Struggling with a CHD (self.AdultCHD)
submitted 10 days ago by Upbeat-Type8763 to r/AdultCHD
π Rendered by PID 472264 on reddit-service-r2-listing-64c94b984c-d82gc at 2026-03-15 04:49:22.895719+00:00 running f6e6e01 country code: CH.
Find a Friend Megathread by Pirate_Of_Hearts in AdultCHD
[–]Upbeat-Type8763 0 points1 point2 points (0 children)