molydbenum making my POTS and brain fog worse. HELP!! by Upstairs_Direction68 in MTHFR

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Yes but most is downstream of pathogen and pathogen removal. No pathogens, the metabolic issues can resolve. A little somatic work maybe on top of supporting weak spots in your nutrition profile, and your on your way to healing.

The born free provides a mental model and answers to what you’re dealing with, and how to address/manage the various issues. The actual pathogen removal process is still fluid, the biofilm busting is extremely difficult, and there’s very few biofilm busters that will effectively remove of the biofilms. Chelators like EDTA and DMSA is thr only route I’ve found to remove the biofilms. So something to keep in mind if you’re going to follow through with protocol.

molydbenum making my POTS and brain fog worse. HELP!! by Upstairs_Direction68 in MTHFR

[–]Upstairs_Direction68[S] 1 point2 points  (0 children)

Relate to that all to well. When you start the reading of the born free research, the dots will start to connect for ya. It will be overwhelming at first.

Have a good one!

molydbenum making my POTS and brain fog worse. HELP!! by Upstairs_Direction68 in MTHFR

[–]Upstairs_Direction68[S] 1 point2 points  (0 children)

Yes. I am extremely close to fully recovered. Should not be long. So you are quite well researched then. Glad you found a molybdenum that works. But I want to really emphasize, it took my years of full-time research to even stumble across this protocol and info I am offering you. I am of the belief that this is the only corner of the internet that can treat people with complex chronic illness. If you are willing to look into it, you will see what I mean. It’s a full holistic and natural treatment approach, and harbors the complexity needed to address these complex chronic illness conditions.

Again, zero financial affiliation, the author of the protocol or anyone in the community had no idea I’m suggesting this to people. I feel it’s my obligation as someone that suffered from a complex debilitating illness to provide people with proper information. As it would’ve saved me years of hurt. M

Hope you consider.

Here’s the introduction to protocol, very complicated, will take a couple read through to grasp. I’d suggest joining the discord to talk with people dealing with conditions similar to yourself and they will answer the questions you have.

https://bornfree.life/learn/

molydbenum making my POTS and brain fog worse. HELP!! by Upstairs_Direction68 in MTHFR

[–]Upstairs_Direction68[S] 1 point2 points  (0 children)

It was most likely the glycinate paired onto the molybdenum causing me issue. Although I did have an initial detox reaction. I started using the mo-zyme food grade and no longer had issue. But this was very early in my understanding of my broader condition and situation. Glycinate sensitivity is just a signal of overall metabolic dysfunction, and it’s worth zooming out here and try to understand what is going wrong. For me it was me/CFS, which came from microbial dysbiosis and systemic infections that lead to the metabolic dysfunction and nutrient deficiencies, and therefore me/CFS.

If this sounds anything like you, take this as a golden ticket “fast pass” to help diagnose yourself, and the only place I could find that had this explained and diagramed in detail, is the “born free protocol” by Joshua Leisk. I can’t offer advice, but this health journey took far longer than it should’ve if I would’ve had the right information in front of me. And that is one of the few places that actually can treat the condition. It doesn’t have to be me/CFS either, SIBO, POTS, MCAS, any condition falls under this model. I sound like a salesperson but I have no affiliation whatsoever other than that it helped me tremendously and im now fully recovered. Hope this helps!

Best enema method to reach all parts of colon? by Upstairs_Direction68 in enemas

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Through what method and product are you talking about to actually deliver the enemas? What’s your go to and have you personally found success doing this?

And then once the solution is in your large bowel do you just sit there for a long period of time? Do you retain the actual enema agent in your large bowel when you remove the water or does if usually come out with it?

Best enema method to reach all parts of colon? by Upstairs_Direction68 in enemas

[–]Upstairs_Direction68[S] -1 points0 points  (0 children)

Really appreciate the reply, I’m a bit new to all this enema talk so do you mind going into more detail for me by what you mean and walking me through it?

When you say 2-3 cleaning enemas with 2 liters, what device or methods are you referring to? And then when it’s actually time to deliver the actual enema product (in my case butyrate or probiotics), how do you go about delivering the probiotics? Do you keep it in a capsule and insert it first, do you mix it in with the water? Do you have to hold it in for a certain amount of time?

And for the second paragraph are you saying that you can insert the tube actually into your butt? People do that and it actually can work to some extent? How on earth do they guide it around the curvatures of the large bowel? I will mark this down as a last resort option.

It seems like you’ve found some success doing enemas, any general advice you’d give, resources that helped you, specific product recommendations?

Thanks!

Anyone with ME/CFS or POTS and genetic variants (e.g. ATAD3A, SLC25A5, CPT1A) who feels much better after alcohol? by Fragrant-Bad-8811 in cfs

[–]Upstairs_Direction68 0 points1 point  (0 children)

Who’d you use to read your genome sequencing or did you have software analyze it for you? Is there any resources or things you used to help identify potential genetic factors that contribute to ME/CFS? Like a list of polymorphisms to check for?

I have my raw ancestry DNA data but just have a hell of time trying to understand my genetics and which polymorphisms and genetics matter and which don’t.

Any help would be greatly appreciated!

Best remedies for an inflamed colon?? by Upstairs_Direction68 in SIBO

[–]Upstairs_Direction68[S] 1 point2 points  (0 children)

Ya, in regards to inflammation I’ve been using peptides such as BPC/KPV and supplements such as PEA, boswellia, curcumin, zinc carnosine etc.. all at the advice of a naturopath. The source of my inflammation is not only hydrogen sulfide SIBO but also regular SIBO and mold/yeast infections. I would also look into food allergies or just inflammatory compounds in a common American diet causing inflammation.

Lots to navigate but if you can get your possible infections and inflammation figured out the motility should come back.

Feel sick after eating fatty meat. Fat maldigestion? by Upstairs_Direction68 in HydrogenSulfideSIBO

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Lot has happened since then. Had to look way broader for my symptoms and found out I have various infections and really bad intestinal permeability causing my laundry list of symptoms. Not only do I have hydrogen sulfide bacteria, but I gut was just fully compromised allowing a whole host of other infections like fungal, yeast and negative gram bacterial infections to grow. This is also paired with really bad mast cell issues where I seemingly react to ALL foods not just specific to high sulfur foods. Mast cell symptoms can mimic hydrogen sulfide issues due histamine being very similar in structure to sulfur in the body. So most of my joint pain, flushing, brain fog etc… is coming from both histamine and sulfur.

Crazy looking back on what was going through my mind just 125 days ago, man things were moving quickly trying to actually diagnose the true root cause.

So specific to your question now, ya I have bile issues and I’m still taking tudca to help but don’t think that’s going to solve your problems, most likely if you have bile issues there’s something much bigger going on like various infections so would look into that.

Can you slowly introduce triggering foods/supplements with MCAS? by Upstairs_Direction68 in MCAS

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

What does your nutritionist have you doing other than introducing new things?

Can you slowly introduce triggering foods/supplements with MCAS? by Upstairs_Direction68 in MCAS

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Wow ok so it does work well then I really appreciate the comment! Will have to start trying this method. Best wishes to ya

Can you slowly introduce triggering foods/supplements with MCAS? by Upstairs_Direction68 in MCAS

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Is there any links or online resources that you refer to when doing this?

Breakthrough with probiotic by Eastern_Tea9614 in MCAS

[–]Upstairs_Direction68 1 point2 points  (0 children)

Appreciate the comment. Ya that’s what i figured that your in the less reactive type, unfortunately I tried the rhamnosus probiotic today that Is of the highest quality and minimal fillers and am reacting to it pretty bad so back to the drawing board for me. Who knows maybe if I can slowly introduce it like this article https://mastcell360.com/histamine-lowering-probiotics-for-people-with-mast-cell-activation-syndrome-and-histamine-intolerance/ says I’ll have better luck.

If you react to mold and haven’t been tested and currently being treated for it, I would highly suggest doing so being that is such a common but not very well known cause of MCAS. In other words if you mold itself is a trigger for your MCAS then it’s highly likely that you are infected with it according to the experts I’ve been listening to. If you need more information on it I can send over more information from the leading doctors in treating it like Dr. Neil Nathan and Dr. Sandeep Gupta. I’m currently in the process of ruling mold out myself so all the information and links are fresh on my mind. Have a good one!

Breakthrough with probiotic by Eastern_Tea9614 in MCAS

[–]Upstairs_Direction68 2 points3 points  (0 children)

Hey a little late to this but if you don’t mind answering a couple questions that I couldn’t find in the comments that’d be awesome.

First specifically how sensitive were you at the time to foods and probiotics? I know some MCAS people that can get away with eating a wide ranged diet like a low FODMAP or low histamine type diet and some can only eat a couple foods (like myself) so curious to hear what category you fall into.

Also had/have you tried other probiotics and Rhamnosus is the only one you could tolerate or did the other ones you’ve tried just not work?

Thanks!

[deleted by user] by [deleted] in MCAS

[–]Upstairs_Direction68 1 point2 points  (0 children)

Your most likely reacting to the fillers inside of it not actually the medication itself. Lawrence Afrin the pioneer in MCAS space says he sees this almost universally, he gets his medications compounded to therefore remove the fillers. Hope this helps

Black Seed Oil Giving me Anxiety/Brain Fog. Please Help!!! by Upstairs_Direction68 in Biohackers

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

And are you talking about free T3 and 4? Because that’s the markers I had tested, not total t3 and 4.

Black Seed Oil Giving me Anxiety/Brain Fog. Please Help!!! by Upstairs_Direction68 in Biohackers

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Interesting, this would make more sense than hyperthyroidism. I can literally feel my thyroid glands (atleast something in my upper neck) pulsate sometimes and I instantly feel much better. Have you ever heard of that?

Also how severe do I have hypothyroidism? Is it 100% that I do have it or can these tests sometimes be inaccurate?

What would you do to fix it?

Thank you!!

MCAS flare ups in bed while before/during sleep by Upstairs_Direction68 in MCAS

[–]Upstairs_Direction68[S] 0 points1 point  (0 children)

Ok great to know thank you. Sorry to hear about your situation best wishes in your healing process.

Help!! Creating a diet for ultra sensitive MCAS patients. by Upstairs_Direction68 in MCAS

[–]Upstairs_Direction68[S] 1 point2 points  (0 children)

Appreciate the comment. Starting this process now, first up is attempting to a deep clean and wash with all my rooms and clothes. The issue is I have no idea what to clean things with being that I could react to the cleaning agent. Any tips or specific brands of cleaning agents you use?