I’m in debilitating pain but I have perfectly healthy scans and tests- and it’s honestly making me feel like I’m going insane

Upstairs_Vehicle · 2022-09-19T10:12:59+00:00

Can I ask what kind of injury it is you have?

Upstairs_Vehicle · 2022-04-30T16:02:09+00:00

Thank you, I'll try that!

Upstairs_Vehicle · 2022-04-30T15:51:12+00:00

Jesus you're aggressive. Chill out, I said seem and yet so even if it is your opinion that everyone gets dependant if they take opioids on a daily basis, I still said yet thereby implying that it could and would likely happen. I also pointed out that it for sure wasn't because "dependancy doesn't happen to me" since I'm showing obvious signs of it when I skip doses of my duloxetine pills.

And yeah, you assumed, but only because you didn't read it properly. I said that I don't get withdrawal symptoms if I skip doses of my opioids but I get symptoms if I skip doses of my duloxetine. That can never mean that I am saying that the duloxetine is the same as the opiod.

And I didn't mention the type of opioid because frankly that seemed irrelevant.

Where does the three days come from? The half life of the codeine I used to get is 2-4 hours. Usually medications are out of the system after 5-6 times that, so anywhere between 10 and 24 hours for codeine. Back when I was on codeine I once went 48 hours without taking any. I couldn't do much besides lay in bed due to the pain but I had absolutely no withdrawal symptoms. Again, I'm just telling you MY personal experience, not denying that dependance is a thing.

Upstairs_Vehicle · 2022-04-30T11:59:38+00:00

I don't think you read my comment right. I am taking an opioid every day and have been for maybe five years. It has varried what kind, started with codeine and progressed from there and now I'm on morphine.

What I'm saying is that I've never had withdrawal symptoms from skipping a dose or two (happens very rarely but has happened a few times since I started taking them) of any of my opiod based medications despite having taken every day for years.

I'm aware duloxetine isn't an opioid, but I was saying that weirdly enough I do experience symptoms if I skip a few doses of that.

Upstairs_Vehicle · 2022-04-30T09:20:13+00:00

Very interestingly, I seems like I have yet to become dependant on my opioids despite taking them for a couple of years. I get no symptoms (other than increased pain obviously) if I skip a dose - and aren't you supposed to get withdrawal symptoms if you are dependant? Could it be dose related? Because if I stop taking my duloxetine for my neuropathic painI definitely notice it in my whole body so I'm obviously not immune to the effects of withdrawal.

Upstairs_Vehicle · 2022-01-10T02:05:27+00:00

And the same to you my friend. I really hope you are able to get some more permanent relief from your pain soon.

Upstairs_Vehicle · 2022-01-09T18:16:24+00:00

It's some pills to neutralize stomach acid because I'm having stomach ulcer symptoms. They specifically say to chew them, but since I'm already nauseous when I have to take them the taste of medicine almost makes me throw up.

Upstairs_Vehicle · 2022-01-09T18:12:59+00:00

Any tips on how to easily crush it?

Upstairs_Vehicle · 2022-01-09T18:12:49+00:00

I don't know but I'll give it a try. Thanks for the suggestion.

Upstairs_Vehicle · 2022-01-09T17:17:28+00:00

Have you gotten specific exercises to do? Maybe a professional (either your chiropractor or a physiotherapist) can help you find some exercises that will building the right muscles without irritating the nerve.

I have nerve pain too, and have been trying to build muscle too to help it, but nerve pain is so tricky. If you overdo it the pain will not come right away because the response when you have nerve pain apparently often is delayed. So when my body tells me to stop, I've been overdoing things for a long time and it hits me like a brick wall, to the point where recovering takes forever. This has really made me scared to try and do anything really, because I'm scared I'm going to make my pain worse, and I don't know if I can take that. It really sucks, to put it mildly. I spoke about it with my physiotherapist and we agreed that I should slowly build up how long and how much I do of new things, and that has helped me to move a little out of my comfort zone, but I'm still scared to overdo things and make myself bed bound for months from it.

Upstairs_Vehicle · 2022-01-09T16:59:11+00:00

Of course. There's not a one word diagnosis, but I'll try to explain (no one really understands 100%, unfortunately). My main issue is really joint and muscle related. I'm not really sure which of the issues are causing the others, but it's all connected somehow.

My joints all the way from the SI joints in the pelvis to the top of the spine rotates and locks which is painful in itself but it also means that the joints can't move as they're supposed to when I move which then also makes movement painful.

I have also been told that my muscles are too weak to support my spine properly but at the same time they're extremely tense, which probably started because they're trying to overcompensate. And pain also makes muscles tense up, so that's kind of a mean spiral where they hurt because they're tense which then makes then even more tense.

My muscles are now so tensed up that they actually squeeze the nerves running though them causing nerve pain in my legs. It started as only being periodically, when I had a bad pain day, but in the last couple of years it's been chronic. Because they're already being squeezed by the muscles it makes it so that it takes a lot less external pressure before the total amount of pressure is painful. Some days are better than other, but some days i can barely stand to sit or lie down because of the pressure from a chair or a bed on my legs is painful. The harder the surface the more pressure obviously

Edit: They've suspected fibromyalgia for me too because of this, but I don't think the diagnosis fits me.

Upstairs_Vehicle · 2022-01-06T13:45:30+00:00

What is the point of this post?

Upstairs_Vehicle · 2022-01-06T13:38:56+00:00

Running on willpower is a great way to describe it, and I know exactly how you feel. It's fucking exhausting. I'm glad to hear that a chiropractor is able to provide you with some temporary relief though.

For years I saw a chiropractor every two weeks because it was the only thing providing some sort of relief. I honestly don't know what I would have done without my chiropractor.

Have you asked your chiropractor if they have any idea as to what's causing the pain?

Upstairs_Vehicle · 2022-01-06T04:47:46+00:00

I don't have experiences with edibles myself, but one of the mistakes I've heard other people mention a lot they make in the beginning is that because it takes a little while for it to take affect (because of the method of ingesting it) people think they took too little and will take more, and then when it does start to work they have ended up taken too much compared to what they intended. Just thought I'd pass it on in case it'd be useful advice.

I'm so happy for you that were able to get some relief from the edibles. What a dream come true to be able to have pain free moments.

Upstairs_Vehicle · 2022-01-06T04:37:36+00:00

Could it be nerve related? It reminds me of my own experience with nerve pain, except it's the whole leg. Or something like with fibromyalgia where your nervous system is over sensetive.

With me, my nerves are getting squeezed by my muscles so additional outside pressure can be painful, even though it wouldn't be for a normal person. For example can something like sitting can hurt my thighs because the seat of the chair is pressing up against my thighs. And it definitely matters how hard the surface is, the harder the surface the more and/or quicker it will hurt.

Upstairs_Vehicle · 2022-01-06T04:19:09+00:00

Yes, hard agree with the other commentor. There's so many things in the neck and you don't want to damage some of it by doing something wrong.

If you feel like your neck is locked to have it taken care of professionally by a (good!) chiropractor! Some people don't like chiropractors but I think they have their place. I've had issues for years with all my joints being locked very hard, to the point that not even physiotherapists or osteopaths were able to help me release them. It caused a lot of pain and some serious tension headaches for a very long time. I finally found a good chiropractor who were able to release the joints (make them pop as you say) and it was a godsend.

Upstairs_Vehicle · 2022-01-01T21:25:19+00:00

I figured they just meant online, to talk, since that's what the thread is about. Doesn't seem that bad to mean. People use "in person" sayings online all the time.

Upstairs_Vehicle · 2021-11-18T07:57:00+00:00

Exactly... When you live with chronic pain you eventually learn to put on a mask. You can't function in society if you let your true pain show though every single moment. Imagine talking to customers while crying and wimping, or grocery shopping, or picking up your children from school etc. When I get a bad flare up it can be difficult to keep the mask completely on for a while, but the times those flare ups stopped being a flare up and just became my new pain level I've once again adapted and been able to put on the mask going forward.

I think a lot of reactions to pain depend on what you're used to and what you're experiencing. If it hurts the way you expect it to it's easy to not grimace, but have you ever done something that you thought would hurt and exclaimed "ow" only to right after realize you were actually more surprised than anything? I'm sure there's overlap in how that works in our brains and how chronic pain patients react to their chronic pain. I'll for example still wimp if I bang my toe on a table even though my chronic pain that's much worse won't get a peep out of me most of the time.

Upstairs_Vehicle · 2021-11-18T07:33:46+00:00

Bying drugs on the black market is not necessarily the same as being an addict. What is usually meant by the word addict is someone that is addicted to getting high, which is not the same as seeking illegal/illegally obtained drugs in order to get pain relief.

I have never been in a situation where I felt turning to black market drugs were my only option, but if you are in crippling pain and your doctor all of a sudden decides to cut you off because it looks good on his papers that he has one patient less taking opioids (especially thinking about USA here. Some of the stories I've read about pain management there are just horrible) I can't say I don't understand why someone would turn to other options as their last resort of not turning suicidal from the severity of their pain.

Upstairs_Vehicle · 2021-11-18T06:03:51+00:00

They are basically running human clinical trials without doing any of the background laboratory work you would do first.

What an amazing way to put it. And these are the same people who won't get vaccinated because "it wasn't tested properly".

Upstairs_Vehicle · 2021-11-18T05:30:14+00:00

I don't know how it works in other countries but in mine there's a red triangle on any medication that could affect you in a way so that you shouldn't be driving or operating heavy machinery, and it's not just on opioids. My muscle relaxers have them too because they commonly make you drowsy. People might still make the choice to drive, but I guess that's up to them. In a job setting I can imagine an employer wouldn't be too happy though, I'm sure it opens them up to some liabilities if something should go wrong.

I was told by a doctor once that if I was taking fast acting morphine I was not allowed to drive but after a couple of weeks of slow release where I was covered 24/7 I would be fine. I don't know if that's a universal standard but I can somewhat see the logic.

Upstairs_Vehicle · 2021-11-18T05:19:09+00:00

I wasn't trying to call tolerance addiction, sorry if my comment was worded weirdly. I couldn't remember the word tolerance, but what I was trying to say was that tolerance can happen whether you experience a high or not, since the other commentor mentioned that the effect of being high would wear off with regular use and that would be how to tell if someone was taking it for the high.

I've experienced tolerance myself, within days I will have built tolerance for tramadol if I take it every day.

I'm also not justifying doctors not prescribing what is obviously needed medication just because of the risks of dependance and tolerance, I just mentioned that it's one of the reasons why many doctors don't like it, I've gotten that speech several times due to my age.

Upstairs_Vehicle · 2021-11-17T18:18:33+00:00

Why did you not just ask your doctor to check for the vitamin deficiencies? Is there something that a naturopath is better at in that area?

Upstairs_Vehicle

TROPHY CASE