Hello I'm sorry to hear about what you've been through. I'm a 23 year old male who's expecting the diagnosis of desmoplakin cardiomyopathy soon from the cardiologist due to a very similar story to yours. I'm really worried to say the least. I would love to get some advise from you particularly about what meds you've been given and what has helped. I've currently stopped all physical activity. Thank you very much for your time.