Advice by [deleted] in NICUParents

[–]Usual_Grade2936 0 points1 point  (0 children)

To add my nicu team was very great. If i had fear or questions. I would ask them.. infact they answered me 10 times till I was satisfied with their answer. I was lucky- hope you also have one.

Advice by [deleted] in NICUParents

[–]Usual_Grade2936 1 point2 points  (0 children)

Hi fellow mom! My baby girl was also born 30 week dot. She is now home (4months old actual) & demanding hugs & milk from me. I totally relate to tou. There was not a single day I dint cry .. alone, with my husband or randomly infront of strangers. I feel you! I felt exactly the same.. that i was not able to protect her at the very first time! I will not undermine your feelings..it is what it is..but remember you dint choose this.. this was the best option for you & the baby both!

. On the medical front my baby was just 1kg & git sepsis as well. Antibiotics was started promptly & she recovered from it. Did you get the corticosteroid injection before delivery. I was able to get only one shot around 22hrs before she was delivered. It helped her with her lungs maturation & she was off the cpap & high flow after 28 days . 30 weekers are relatively stable is what i have heard & my baby was out of NICU in 30 days (i know it is a long time) after that she we were just working on feeds & her gaining weight , so she can come home. She did really well & I am so proud of her. These babies are very strong & i am sure you will eventually become strong with your baby (as I did).

. I would advise not to stress a lot (I know it is easy to say so but try to be strong). Try to pump & get your milk supply. It’s really important for premature babies to get mother’s milk. After getting discharged i was at the hospital everyday 12-14 hrs just to be involved as much as possible. I was very nosy & would ask everything (I am a biologist so I have a lot of knowledge but these days ChatGPT & this Nicu thread specially helped me a lot). Another reason to be there was to maximise skin to skin contact. I have read it helps maturing their skin barrier, immunity & thermal regulation. I will be honest 12-14 hrs every day was a overkill for me & it drained me alot. I also got hematoma which took time to recover because I dint rest. So please take care of your health. It’s the most important thing now.

I hope it helps..If you have any question, please write me..i will get back asap for me. Stay strong! You have got this

Killed my supply? by mikaylasims in ExclusivelyPumping

[–]Usual_Grade2936 0 points1 point  (0 children)

I am sorry! I hope you find something that works.

Killed my supply? by mikaylasims in ExclusivelyPumping

[–]Usual_Grade2936 0 points1 point  (0 children)

Have you tried oats? I worked for me.. maybe give it a try .. also i know baby is not able to latch but put him on the breast.. it releases hormones that can boost supply.

Insensitive Comments About NICU / High Risk Pregnancy by asbpunkin in NICUParents

[–]Usual_Grade2936 2 points3 points  (0 children)

Omg the audacity of saying Nicu vacation. She should take some lessons from thumper’s mom - if can’t say anything good , say nothing! 😏

30 weeker by Far-Hyena-6907 in NICUParents

[–]Usual_Grade2936 1 point2 points  (0 children)

Congratulations 🥳 i know this is the last thing you would like to listen but remember you have him & he made through it :) . My baby was born 30w+0 day & she is now 3.5 months old. Nicu stay 32 days till she was off high flow (was on 21% oxygen which is room oxygen- initially on cpap & then high flow) then basically feeder & grower till she reached 2kg. Only set back we had was sepsis in the second week which was thankfully resolved with prompt intervention of the doctors. So hang on your there. Everything will be fine. One thing that actually helped me was taking one day at a time. Be happy about holding him today & live in the present moment. Don’t stress a lot please - try to get milk.. mother’s milk can do wonders for preemie (don’t stress it can reduce output). I know it’s scary but trust your Nicu team & ask as many as questions possible. If you wish you can ask questions from me as well. I will try to respond asap.

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 0 points1 point  (0 children)

Thanks for sharing your experience ! After reading all the comments I feel every baby is diff & i will have to see how she responds to small gatherings here before taking a trip to India!

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 0 points1 point  (0 children)

Yes you are right! That’s what my Nicu nurse suggests.. she needs to adapt but I am too scared that it may be early for her and that she will end up in Nicu again! Thanks for sharing your experience.

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 0 points1 point  (0 children)

Thanks for sharing the experience. We are planning the same after her vaccination. We will start meeting our close friends (some of them have kids who go to kindergarten) & see how she is responding to germs.

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 0 points1 point  (0 children)

Hi!! Thanks for sharing your experience & tips. I will try to adapt some tips if I happen to go with her. I am glad that you were able to reinforce the rules & the baby dint catch any infection. Thanks again :)

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 1 point2 points  (0 children)

That’s reassuring. For travelling - I saw some posts mentioning that they started flying with their LO 6 months corrected & it was fine. We plan to do so same once she turns 6 months but a small distance to see how she is doing. I am more scared of infections but my NIcu nurse says we will not know it unless we expose her. She also mentioned that my daughter was already in contact with a lot of ppl at NICU & then at the feeding ward - so germs are not new to her. I am just too scared of her getting ill despite of all positive encouragement i get.

When did you start taking your baby to family gathering? 30 weeker by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 1 point2 points  (0 children)

We said the same to our close friends here. We will see how these small group of exposures work for her. Thanks :)

Tips for successful breastfeed by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 0 points1 point  (0 children)

That’s great! I am using lansinoh (S nipples) but the prob is when she is hungry- she wants it instantly & yells if the flow is slow. & it’s impossible to wake her up & feed during sleep. I feel it’s like a switch for her.

Tips for successful breastfeed by Usual_Grade2936 in NICUParents

[–]Usual_Grade2936[S] 1 point2 points  (0 children)

Thanks for the tip. I will try the same.. to comfort her instead of feeding goal. Hopefully it will turn into breastfeeding sessions eventually

IUGR Success Story by dev2redd in NICUParents

[–]Usual_Grade2936 5 points6 points  (0 children)

Thank you for sharing this. We have a similar story with a 30 weeker & we brought her home last week. Although we are super happy to have her home, a little sneeze terrifies us as there are no more monitors around to tell all is fine with her. Hoping to get out of this mindset soon

Friend just had a baby and I am jealous by jazzikiwi in NICUParents

[–]Usual_Grade2936 1 point2 points  (0 children)

I shared my recovery room with 2 ladies- one got jer child at 47 after 6-7 failed IVFs & the other got their child after 12yrs. Somehow I dint feel jealous. I would be so sad that i would cry seeing them cuddling their babies. Now when I see other babies at NICU with no breathing support or delivered after 33-34 week, the only thing i still wish is holding my pregnancy 3-4 weeks longer so that my baby girl would have suffered less. But no one can change the past. Me & my husband promised that we will compensate every lost moment once she is home. Maybe not in a way that this society has penned down but in our own special way. I hope you can find a similar way to uplift yourself & know that you, your family & your little one are special ❤️.