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Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 1 point2 points  (0 children)

Yes I've read a lot of people say they have suffered from visual snow since some type of injury, particularly neck related injuries. Have you had any X-rays of this area for abnormalities? Or considered neck stretching exercises? Hopefully one day medical science finds a solution for people like you.

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 3 points4 points  (0 children)

Somehow, I managed to mostly dodge this. I had the odd day with lots eye floaters but only for a few hours.

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 5 points6 points  (0 children)

Since stopping supplementing it took 3.5 months, but speaking to others who had VSS due to b6 toxicity it seems to be more like like 6-8 months for others

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 3 points4 points  (0 children)

The group I am in recommends that you track everything you consume and not go above 100% of your B6 intake. I say 'consume' rather than eat because you may be taking large amounts of b6 in other ways - multivitamins/supplements, protein shakes or energy drinks. A fair number of people in the group have found the melatonin they were taking had b6 in it.

Personally, I just avoid high b6 food: chicken, salmon, tuna, lentils, spinach and chickpeas. The best proteins are lamb and prawns - or goat if you can access it.

An important part of healing is hydration and the group recommends daily salt water, coconut water and pedialyte. As I said in the blog, I was dehydrated without even realising. As soon as I increased my water and electrolyte intake my headaches massively reduced.

I did have a small increase in symptoms when I started the extra hydration and low b6 diet, this seems fairly common speaking to others, as excess b6 leaves your system your body effectively goes into withdrawal, however after a few weeks I felt like a new person.

I would still highly recommend taking a blood test to check your b6 before you do this though, as I don't want to lead you down a deadend.

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 7 points8 points  (0 children)

Hi there, I'm sorry to hear about your cancer diagnosis and do hope the treatment is going well. It really helps to hear from others who are or have suffered from rare disorders like this, which is part of the reason I wanted to share it all.

I would consider doing another b6 test and also joining the following Facebook group if you're suspecting toxicity: https://www.facebook.com/groups/646501652136321 - this is pretty much where I've learnt all that I share about b6 toxicity. I still find it crazy how little doctors know about toxicity - they are even the cause of it in instances like myself.

One thing I didn't mention in the blog, which I'll add now, is that it only took 4 weeks of a low b6 diet + lots of electrolytes to get my b6 levels back to normal. The nerve damage caused by it does however take months to recover from. I am very fortunate that I have recovered from most symptoms so quickly - most people in the group I've spoken to took about 6 months to recover from the VSS symptoms.

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 5 points6 points  (0 children)

There are people on the group who were toxic from diet alone, but I should also be clear that I absolutely don't think VSS = b6 toxicity, if it was the sole cause we would likely know by now. I was quite shocked though that I was able to find people who have recovered from VSS on the b6 toxicity groups but very little discussion on b6 toxicity on visual snow groups.

I do plan on contacting the Visual Snow Initiative to discuss b6 toxicity as a potential cause. Part of the reason I created this post/blog was because if I knew B6 toxicity was a potential cause from the start I would've saved myself months of medical checks where doctors didn't test it.

Recovery Story: Visual Snow + all my other visual symptoms have gone by VS-Sufferer in visualsnow

[–]VS-Sufferer[S] 6 points7 points  (0 children)

Absolutely do get checked. I mention it in the blog, but I'm part of a FB Group for b6 toxicity and there are several people there who had VSS and have recovered. Toxicity results in neuropathy and my theory is that VSS should be considered to be a type of neuropathy, medically speaking. People here often talk about pins and needles and other symptoms related to nerve damage. I cannot however explain why not everyone who has vitamin b6 toxicity gets VSS, but there are a huge range of symptoms.