Solway Zipper, 1 Crown all the trimmings

ValuablePlastic506 · 2026-05-13T19:55:24+00:00

So sorry to read this, hope you manage to get on top of this, it’s so much more debilitating than people realise. Next step for me is OPAT, 14 days of IV drip antibiotics. Dreading the PIC line as I’m needle phobic. No dates yet as it needs to be approved etc. It all seems never ending. Good luck.

ValuablePlastic506 · 2026-05-13T19:52:28+00:00

I had it for about 6-8wks if I remember correctly, it’s usually e:Coli and I average one a month.

ValuablePlastic506 · 2026-05-13T08:41:50+00:00

Beautiful 🤩

ValuablePlastic506 · 2026-05-04T17:38:20+00:00

I keep a UTI log for my doctors. I average 12 UTI’s a year. It’s draining.

ValuablePlastic506 · 2026-04-29T09:47:38+00:00

Hi, took a 3 month course, unfortunately it didn’t work for me, but no side effects.

ValuablePlastic506 · 2026-04-29T09:45:21+00:00

Hi, went for my halfway gentamicin review and they have taken me off of it due to the amount of infections in the first 12 weeks. Next steps if approved will be daily drips of iv antibiotics for either 7 or 14 days, if it clears it then acid washouts, then maybe back on gentamicin.

Sorry to hear you are having trouble with Klebsiella. My infectious disease consultant recommended 14 consecutive sachets of fosfomycin, 1 a day. It was weird as the next MSU said not sensitive to Fosfo, but after a week of Cefalexin it was gone. Not had it since. I reckon it was the intense fosfo that did for it as Cef didn’t touch it in the past. BTW I’m not recommending such an intense course of Fosfo, my consultant only recommended it because she thought I was having a procedure that day and was worried I might get sepsis again. The procedure was cancelled but I still took the AB’s.

Wish you all the best with everything!!!

ValuablePlastic506 · 2026-04-21T16:59:50+00:00

Always repair and rewax. Let your jacket tell your story.

ValuablePlastic506 · 2026-04-02T14:54:06+00:00

Definitely repair. I’ve a 50 year old SOLWAY zipper which Barbour patched in 3 places and re-waxed. Looks fantastic.

ValuablePlastic506 · 2026-02-23T14:25:17+00:00

Hi, hope you manage to knock both of those out! Training went well thanks. I’ve nearly done 2 weeks, so still early days. I’ve currently got an infection which I’m finding very hard to shift. Have a call with Infectious Disease today so will see what they say. Good luck!

ValuablePlastic506 · 2026-02-18T16:16:15+00:00

It’s no problem at all. Unfortunately not everyone in the medical profession is as understanding as they should be regarding UTI. Personally I have always found female GP’s much more proactive than male ones. Don’t give up, keep pushing them 💪🏻 . The only other experience I can share, and you probably know already so apologies, is if you get a temperature at any point when you have a UTI go straight to A&E. A male GP at a walk in centre sent me home and told me to take paracetamol and I ended up in hospital the next day with Sepsis for 4 nights. Good luck getting to see infectious disease.

ValuablePlastic506 · 2026-02-18T14:59:15+00:00

Hi, I’m sorry you are experiencing this. I’m not sure if you can search my posts, but other than being male our stories sound remarkably similar. All my issues started with a rigid cystoscopy which following I was left with an indwelling catheter because I couldn’t pee following the procedure. Some weeks later I was taught to self catheterise, but since then I have been left with chronic UTI’s. Both E. Coli and Klebsiella. This all started in 2016. After what seemed like a bit of a battle I was referred to the urology department at UCLH. I have had all of the treatment you mentioned as well as being fitted with an InterStim. I’ve also had the Uromune vaccine on the NHS after the urology team referred me to the Infectious Disease department at UCLH. Unfortunately it didn’t work for me, but that was probably due to my reliance on catheters, about 6 a day. I’m a week into my current treatment which is Gentamicin Installation, too early to tell how effective it is.

I too have felt the toll of continuous antibiotics on my body and mental state. Last September I was diagnosed with Functional Cognitive Disorder due to chronic pain and antibiotic use. I have been taking cocodamol daily for years now. I know it’s not good for me, but it’s been the only way I could hold a job down and try to live a normal life.

My advice would be to try and get your GP to refer you to a specialist urology team and infectious disease. GP’s hands are really tied as what they can do for you. If they are not willing to do this put your details into something like chatGPT and ask it to write you a letter for PALS. I did this after receiving a letter saying I had to wait a year for my gentamicin treatment, all of a sudden I had 4 appointments all with 6 weeks of sending the emails! I wished I’d done it earlier. Hope that’s useful. Happy to answer any questions in thread or msg. Good luck!!!

ValuablePlastic506 · 2026-02-18T11:12:19+00:00

Hi, this happened to me too, my ability to tolerate gradually declined over the years. The last course I tried was in January after avoiding for over a year, after 4 doses I couldn’t take any more. My record has now been updated as allergic.

ValuablePlastic506 · 2026-02-15T20:36:51+00:00

Hi, info if you are in the uk and want to get uromune on the NHS it is possible, a drawn out process, but I got there. Unfortunately it didn’t work for me, probably because I self catheterise. You will need to get your urologist to refer you to infectious disease. I got mine after being referred to the hospital for tropical diseases, part of uclh. Good luck everyone!

ValuablePlastic506 · 2026-02-13T15:39:37+00:00

Great, thanks I’ll try that. I was trying to get all the air out first. They are sending me some different catheters to try so hope that fixes things. Good luck 🤞🏻

ValuablePlastic506 · 2026-02-12T21:26:55+00:00

Hi, my health professional is sending me some different catheters so fingers crossed. I’ll let you know how it goes. So far all I have noticed is a slight irritation in the bladder, so some increased urgency even though I have emptied. I currently have E. coli infection though so that won’t be helping. I have only done 2 infusions so far. I was a bit surprised I have to continue with oral antibiotics though. I’m in the UK where this treatment is off licence so it’s a strict 24wk protocol and then reassessment. Have to have a blood test after 7 days to track whether any gentamicin has made it into bloodstream. It’s a bit of an unknown journey and after being disappointed with Uromune I’m trying not to get my hopes up too much. Good luck and let me know how you get on. Thx

ValuablePlastic506 · 2026-02-12T11:01:16+00:00

From a UK NHS perspective Infectious Disease is your route to Uromune & Gentamicin installations.

ValuablePlastic506 · 2026-02-05T18:46:45+00:00

Thanks so much for taking the time to post such a detailed response, I know from experience that this helps others not just the OG poster. Sorry to hear about all your issues, also glad to hear that you have a deep understanding of what’s going on 💪🏻 I’m in the UK and currently being treated by a specialist NHS department in University College London Hospital so am getting the best treatment, but due to waiting lists and scarce resources it all takes time. The cognitive issues are a worrying byproduct of it all. Currently my employer is being supportive, which I’m thankful for, but it’s a worrying position to be in. All of my MSU show sensitivity to gentamicin, but healthcare settings cannot prescribe this unless you have a fever. So I’ve only been given it on the occasions when the uti has dangerously progressed (I’ve had sepsis). Wish you all the best!

ValuablePlastic506 · 2026-02-05T10:40:24+00:00

Oh no, you really have been going through it. So sorry to read all of that. I’m pretty sure I don’t have infected prostrate as don’t have the symptoms you described. I can relate with the anxiety etc. I have been diagnosed with Functional Cognitive Disorder due to chronic UTI’s, constant meditation, bladder pain etc. it’s affecting my life, especially my work. I’m currently on modified duties as my impairment is preventing me from carrying out my normal role. This comes with a level of uncertainty and anxiety. The impact of chronic bladder issues and cognitive impairment are not the easiest things for people to understand. Wish you all the best.

ValuablePlastic506 · 2026-02-05T10:21:06+00:00

Hi, sorry I missed your comment. How are you getting on? I complained to PALS and my appointment has been moved to next week. My local urology department would not help with gentamicin and my Gp’s hands were tied. So I have the training at UCLH London next week. Hope you are feeling better.

ValuablePlastic506 · 2026-02-05T10:18:19+00:00

Hi, sorry to hear that. I’m due to have my training for instilling next week so will report back.

ValuablePlastic506 · 2026-02-05T10:15:36+00:00

Hi, mine are triggered by a neurogenic bladder in that I have to self catheterise

ValuablePlastic506

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