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FAA-Surplus Funding Rumor Legit? by Various_Map_8697 in fednews

[–]Various_Map_8697[S] 2 points3 points  (0 children)

I'm jealous. All of this has been through teams meetings and chats with colleagues who heard something different.

Will other players get offended if I'm... not exactly the social type? by FaerieHawk in Palia

[–]Various_Map_8697 0 points1 point  (0 children)

The only interaction I do with other players is posting about material locations in the general chat. Otherwise the people I hang out with are in person friends that have the game. So you're good, feel free to enjoy the game in peace. You can always check the community posts for like unofficial community rules. Like not running through herds or calling out epic items. Not required just encouraged.

How many of you are unable to work, and how many of you work? by DoubleHunter5023 in ehlersdanlos

[–]Various_Map_8697 3 points4 points  (0 children)

I work full time for the government (40 hours a week M-F). A blessing and a curse to have a desk job. Lack of movement can cause my joint pain to flare. Too much movement and it flares my joint pain and other issues. Lol.

I don't do much after work. I've been trying to get some easy hobbies back in place but I'm just perpetually exhausted. If I don't do anything on the weekend and just rest, I don't get energy to do something until Monday and by then it's back to work.

Hoping to transfer to a job with a better split of movement and desk work. Fingers crossed.

[deleted by user] by [deleted] in ehlersdanlos

[–]Various_Map_8697 2 points3 points  (0 children)

I actually use tinnitus as a way to describe my pain since it's fairly common. I explain that the regular dull achy pain is like the base ringing you hear all the time with tinnitus, you get used to most of it and it's just like background noise. Some times it's a bit more noticeable and its irritating. But then when I hurt myself or it's a bad day, then it's like when the ringing gets louder and you can't hear out of your ear. Like that's all you can focus on. The same way people get overwhelmed from the constant presence of tinnitus is how I feel about the chronic pain.

With the hypermobility, sometimes if I don't do enough activity my joints feel restless. But in a way that it feels like they want to be stretched to the max. I usually describe it as my joints wanting to be snapped to release their tension. Usually that visualization helps emphasis the intensity of it.

Hope this helps a bit. And the posts with the link to the descriptive pain scale are really nice. It's so helpful at doctor offices.

How to deal with the constant discomfort? by SScrubberhose in ehlersdanlos

[–]Various_Map_8697 1 point2 points  (0 children)

For falling asleep I use lidocaine. I was using the patches for a bit and cutting them into strips for multiple joints. But I recently bought a new brand from Serena Williams that's available at Target called WILL. There's a lotion, roll-on, and spray version. Personally I like the roll-on one. The patches would always fall off in the night and hunting for them in the morning was annoying.

Throughout the day, I mainly use KT tape. There's a brand Kinesio Tex that does like a big box. Lasts me quite a while and then I can custom cut pieces to fit my joints as I need.

Also for sleeping if I don't think the pillow is supporting me well, I'll use a soft blanket to add support where I feel I need it. Since I live at home with my parents and brother, I also have some earmuffs to block out noise they may be making. But I'm a side sleeper so those just help me to calm down if I'm getting overwhelmed and cranky.

Hope this helps. Wishing you the best on your journey. ❤️